Looking for any food links regarding Vasculitis - Wegeners disease
Hello – looking for any food links regarding Vasculitis – Wegners disease – it’s such a new diagnosis – and also very difficult to research – any ideas ?
Interested in more discussions like this? Go to the Autoimmune Diseases group.
@gingerw, @colleenyoung, @becsbuddy, @siosal, and everyone
Thank you so much, Colleen. I am tomorrow having a meeting with my new rheumatologist at Mayo who's confirming this diagnosis. I'm anxious to hear what he has to say. Nephrology dx ANCA vasculitis about a month ago. I'm having lots of different issues pop up this year, added to Sarcoid, autoimmune, multiple UTI's quite sever requiring ED visits with sepsis, etc. Also, now having a difficult time with sinus infection leading to surgery in few weeks. So, this cute little diagnosis may actually be an underlying problem causing much of the other illnesses/issues. Right?
I just read this page, so am heading now to Ginger's article links to learn more.
Thank you all for this latest gift to me, from out of the blue. I Hope @siosal, you get the answers and information you need. I'm walking down the same path, it seems.
Blessings to you all.
elizabeth
Yes. I get the infusion and drive home.
I have no awareness of any reaction.
I am very careful about where i go and who i am with bec although i feel fine, my natural immune responses are pretty limited.
@siosal, @colleenyoung, @becsbuddy et al
How often do you get the infusions? Do you notice any positive effects? Glad you're not having negative effects!
Will probably be doing the same drive, soon, different place of course. I actrually can't wait to get started;
blessings
elizabeth
@siosal How are you today? Did you get any information from the articles @gingerw posted? Colleen asked me to join the conversation. I don’t have ANCA but my sister does. She was diagnosed about 5 yrs ago and is doing very well. I think she had rituxan infusions. I have a different autoimmune disease, but i also had rituxan. It was given as 2 doses twice a year. Unfortunately for me, it quit working after the 3rd cycle. I then had 6 cycles of cyclophosphamide which put me into remission. Now the doctor is trying an oral drug that will keep me in remission.
If you are old enough to get the AARP magazine, there is a wonderful article about autoimmune diseases. I haven’t been able to access the article online so cant provide a link. I’ll keep trying.
I know you’ll be okay, just keep taking care of yourself (think Covid), and rest even when you don’t want to.
Becky, I think you might be referring to this recent AARP article:
– The Rising Toll of Autoimmune Diseases in Older People https://www.aarp.org/health/conditions-treatments/info-2021/autoimmune-diseases-rising.html
Becky
Good to hear from you.
My very large family including uncles aunts and cousins seem to have a cAst of characters with various often a bit mysterious autoimmune issues. I have several as does one sister. Ours are different ones. Some of
My aunts and first and second cousins have similar problems.
After reDing all the sad spouse comments i got quite a scare.
I feel fine. I used to need a nap each day. Since my second covid shot i have not needed one.
I hope you and your sister are doing well.
Thank you.
Great read! Thanks for sharing
Thank you for posting