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ntgerh64
@ntgerh64

Posts: 2
Joined: Feb 28, 2018

May-Thurner syndrome (MTS)

Posted by @ntgerh64, Wed, Feb 28 3:19pm

Joined today. Wondering if anyone in this discussion group has been diagnosed with May Thurner Syndrome and have varicose veins along with acute and chronic venous stasis? If so, how are you dealing with the venous stasis in your legs? I’m struggling with this and hope someone else may be experiencing same or similar issues and will share what they are doing or experiencing.

REPLY

Welcome to Connect, @ntgerh64,

You may notice that I changed the title of your message so that it better reflects your concerns, and it might also make it easier for other members to connect and share their experiences with you.

I'd like to introduce you to @marlene64 who has shared her journey with Livedoid Vasculopathy and May-Thurner syndrome. You may wish to read the conversations in this discussion:
https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/

I'd also like to tag @zenk @gonefishinmt @patientrea @prairiesmoke @aimeenc @mlemieux, and invite them to join this discussion with their insights.

Another discussion that might interest you is, "Swelling and pain in my left ankle and lower leg – venous insufficiency?" https://connect.mayoclinic.org/discussion/i-have-had-swelling-and-pain-in-my-left-ankle-and-lower/, where @gailg writes about venous insufficiency, and may be able to offer some suggestion, as well.

@ntgerh64, how have you been managing the swelling and pain thus far? Do you use compression stockings?

@kanaazpereira

Welcome to Connect, @ntgerh64,

You may notice that I changed the title of your message so that it better reflects your concerns, and it might also make it easier for other members to connect and share their experiences with you.

I'd like to introduce you to @marlene64 who has shared her journey with Livedoid Vasculopathy and May-Thurner syndrome. You may wish to read the conversations in this discussion:
https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/

I'd also like to tag @zenk @gonefishinmt @patientrea @prairiesmoke @aimeenc @mlemieux, and invite them to join this discussion with their insights.

Another discussion that might interest you is, "Swelling and pain in my left ankle and lower leg – venous insufficiency?" https://connect.mayoclinic.org/discussion/i-have-had-swelling-and-pain-in-my-left-ankle-and-lower/, where @gailg writes about venous insufficiency, and may be able to offer some suggestion, as well.

@ntgerh64, how have you been managing the swelling and pain thus far? Do you use compression stockings?

Jump to this post

Have worn compression hose since my early 20’s. I’m now in my 70’s. It helps with leg swelling. This past 6 months though I developed acute venous stasis over the chronic venous stasis which has always been present but is getting worse. With this acute episode which I can’t get under control, I’ve tried different antibiotics both pill and ointment. Seems like it’s going to go away then flares up again. Compression hose do help but not completely.

@kanaazpereira

Welcome to Connect, @ntgerh64,

You may notice that I changed the title of your message so that it better reflects your concerns, and it might also make it easier for other members to connect and share their experiences with you.

I'd like to introduce you to @marlene64 who has shared her journey with Livedoid Vasculopathy and May-Thurner syndrome. You may wish to read the conversations in this discussion:
https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/

I'd also like to tag @zenk @gonefishinmt @patientrea @prairiesmoke @aimeenc @mlemieux, and invite them to join this discussion with their insights.

Another discussion that might interest you is, "Swelling and pain in my left ankle and lower leg – venous insufficiency?" https://connect.mayoclinic.org/discussion/i-have-had-swelling-and-pain-in-my-left-ankle-and-lower/, where @gailg writes about venous insufficiency, and may be able to offer some suggestion, as well.

@ntgerh64, how have you been managing the swelling and pain thus far? Do you use compression stockings?

Jump to this post

Hi, In May of this year I had severe left leg swelling. I went to my local hospital and found I had a massive dvt. They admitted me and put me on heperin. Two days later they did a Ekos System procedure where they removed the blood clots which extended into my abdomen. At this time they discovered the May-Thurner syndrome and inserted two stents. It was also determined that I had Factor V Leiden. It is now almost October and the swelling has greately reduced. I am wearing compression stockings and take warfarin on a daily basis. The left leg is numb to some degreee but I am able to walk, but sometimes a lot of walking tends to make my leg sore. How long can I expect the numbness and pain? I am 63 years old and have never had a blood clot before (dvt) before.

@kanaazpereira

Welcome to Connect, @ntgerh64,

You may notice that I changed the title of your message so that it better reflects your concerns, and it might also make it easier for other members to connect and share their experiences with you.

I'd like to introduce you to @marlene64 who has shared her journey with Livedoid Vasculopathy and May-Thurner syndrome. You may wish to read the conversations in this discussion:
https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/

I'd also like to tag @zenk @gonefishinmt @patientrea @prairiesmoke @aimeenc @mlemieux, and invite them to join this discussion with their insights.

Another discussion that might interest you is, "Swelling and pain in my left ankle and lower leg – venous insufficiency?" https://connect.mayoclinic.org/discussion/i-have-had-swelling-and-pain-in-my-left-ankle-and-lower/, where @gailg writes about venous insufficiency, and may be able to offer some suggestion, as well.

@ntgerh64, how have you been managing the swelling and pain thus far? Do you use compression stockings?

Jump to this post

I wear compression stockings every day. I take a tylenol for pain. Mostly I tough it out.

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