Heart transplant

Posted by lupedelarosa12 @lupedelarosa12, Feb 28, 2017

My son has had a heart transplant and is recovering but is on a high dose of steroids and is acting really different coherent , bilegernt, not him at all , is this normal

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@mlee1969

Loooking for felow heart transplant individuals to converse with

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Welcome to Mayo Clinic Connect, @mlee1969.
I moved your messages to the Transplants group https://connect.mayoclinic.org/group/transplants/ so that you can meet other transplant recipients. In particular I moved your message to the discussion about heart transplants where you can meet others who have received a heart transplant and family members, like @amynewheart @fatherscaregiver @linda59 @lupedelarosa12 @coyne and @eileenheart

MLee, why don’t you start by telling us a bit about you? When did you have your transplant? How are you doing today?

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@mlee1969

Loooking for felow heart transplant individuals to converse with

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@mlee1969, I am a transplant recipient and I want to extend an enthusiastic Welcome to our Mayo Clinic Connect Transplant Discussion group! I see that Colleen has already invited you to tell us about yourself. I look forward to hearing more from you and continuing this conversation.
Rosemary

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@fatherscaregiver, @amynewheart, @lupedelarosa12, We have not heard from you for a while. I sincerely hope that you and your loved ones are doing well. Would you care to share what you have been up to?
I also come to you for information and support for heart transplantation. I want to introduce you to @buckeyegurl, Rachel. She is interested in learning more about heart transplant.
Thanks (in advance),
Rosemary

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@rosemarya

@fatherscaregiver, @amynewheart, @lupedelarosa12, We have not heard from you for a while. I sincerely hope that you and your loved ones are doing well. Would you care to share what you have been up to?
I also come to you for information and support for heart transplantation. I want to introduce you to @buckeyegurl, Rachel. She is interested in learning more about heart transplant.
Thanks (in advance),
Rosemary

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Just to stay strong and have faith and never give up thats what got me thru all the waiting and worrying

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Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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So true my days were filled with just staying well enough to take care of both my special needs son and daughter and my ailing mom who i was caregiver to my days were one day at a time, and one hour at a time i waited from oct 2005 to jan of 2011 knowing that i needed a new heart my kids and mom were my strength to hang on

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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Oops it wasn’t oct of 2005 that i knew i needed a transpant it was the 23rd od december 2005 to jan 20th 2011

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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@glinda, I have realized that particular dates have deeper meaning for me since my transplant. Especially date listed, and date transplanted. I also remember the exact time and place when I got the “Call” from my transplant surgeon.
Rosemary

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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Me also a lot of people don’t understand that for us it’s important they think that we shouldn’t make a big deal about having to have or having had a transplant tbey don’t realize how life changing it can be

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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@mlee1969 Gary, It is good to hear from you. Thank you for sharing your insight and for letting us know that you are ok.
I had to laugh (LOL) when you wrote that you were not the funniest person to be around back then. Those could have been my words! No one could even attempt a joke around me or they got an ugly glare from me. One of my earliest memories after my transplant surgery in 2009 {liver/kidney) was seeing my 2 sons come into my room with my husband and they had a bounce in their step – and were smiling! That memory always brings a smile for me:-)
Rosemary

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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I also think that many people (friends and family) think, “over and done”. They do not know that after our life saving transplant, that we have become caretakers of these precious organs. We have to continue being monitored, and we need to take our medicines, and practice good healthy lifestyle!

@glinda, I want to share this ‘trick’ with you. If you ever want to direct a question or a reply to a particular individual here’s what to do. Copy the @name from the top of the post that you are replying to, then paste it to your reply. (my preferred method)
Or you can type @ and then the first 3 -4 letters and a list should pop up to select from.
Glinda, the way you are doing it is fine, I just wanted to let you know. But by tagging a member, they will be sent a notification.

Rosemary

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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Thanks I’m not real good at online stuff and don’t know how to copy or paste yet

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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@glinda, You are doing great!
At the bottom of this page, you will see a list of items for easy reference. In the left column, look at the “Get started on Connect” and you will see all kinds of helpful information. Of course, I am also willing to help you, too.

Did you know that:
you CAN reply to any conversation? (this is when the “@name becomes important- because they will get a notification.)
you CAN like any reply by clicking on the heart icon?
you CAN scroll thru any discussion, and any of the GROUPS, PAGES, EVENTS, CHAMPIONS that are across the top of this screen?
Sometimes, you will be “tagged'” by me or another member to another discussion. And you will get a notification.

Right now I am halfway dealing with a cold-nasal congestion thing, trying to get house in order for holidays, and watching my messages pop up. So please bear with me.
Rosemary

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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Thats ok i am a very patient person so no worries and i hope uou get better soon as colds really scare me a cold was what destroyed my heart and caused me to have the transplant

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@mlee1969

Unfortuantly we are all different, in the begining it can be very difficult. Hard to say. I know all medicines go down as you put to gather days out from surgery date. I do have to say that I wasn’t the funiest person to be around back then. I had my transplant on April of 2015. I’m alright. Also still married so at times its baby steps. Stay busy, trust in doctors, do something you enjoy. The doctors know. Wish you the best Gary

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Thats ok i am a very patient person and hope you get better soon from tour cold colds really scare me as it was a cold that destroyed my heart and led to my transplant

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