Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

https://academic.oup.com/eurheartj/article/45/5/346/7473265
You may already have found this or similar articles, so your suspicion that the leads might have caused deterioration in the function of the leaflets seems spot on. It might not be true in your case, but your suspicion or concern is not misplaced. Surprised the heck outta me that the two were linked. I'm learning all the time, as are you. Unfortunately, I have no experience or learning about this, so I hope someone chimes in pretty quickly.

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I'm Jerry (@favoritepitch), 76 next month, early 2024 I ended up in the hospital 3 times for heart-related. No previous heart conditions though advised to start a low-dose statin at least a decade ago; didn't start but made some dietary changes; exercise was already way above average. Been feeling strange sensations in clavicle areas bilaterally, but attributed it to changes in exercise regiment. Jan 2024 at a wellness visit with PCP, after hearing of my reported (clavicle-area sensations and lightheadedness a couple days prior), hooked me to an EKG, reported that my usually around 50bpm HR was at 117 while sitting and displayed atril flutter; he rushed me to the nearest, best heart hospital. Treated for a-flutter in ER via medications, transferred to a unit and next day medication-induced stress test; cardiologist later reported scans looked "pretty good, no significant blockages." Prior to stress test, the physiologist specializing in cardiology took diet and exercise history. He said my history of serious endurance training (at least 50 years; soccer (college), mile runner and x-country in 9-12th grades, and high-volume cardio training for road-racing at 10Km to marathons, indicated research from the previous 15 years indicated I fall squarely in the category of long-term, endurance athletes who end up with cardiac arrhythmia(s) - in my case both a-flutter & then a-Fib. Discharged with various meds to continue. Four weeks later rushed to hospital with an MI; angioplasty and stent (thank you doc!). Four weeks after the MI my cardiologist was with me for a scheduled electro-cardioversion at "heart" hospital where I'd been rushed two months earlier. Cardioversion removed a-flutter and a-fib; 5 minutes from being discharged from hospital that same day, I was overcome with a feeling of something bad is happening to me. Shouted for help that I was "going down" and immediately flat-lined, was brought back, flat-lined again, brought back and rushed to emergency surgery for temporary pacemaker (thank you doc! - my cardiologist, for a second time within 8 weeks). Cardiac electro-physiologist (EP) came to me and said there were options, but her diagnosis was I had sick sinus syndrome (severe underlying conduction problem) that had been masked by my a-flutter and the cardioversion's removal of the a-flutter and a-fib enabled the SSS to "take over" causing the flatlining to happen (about two hours post-cardioversion). The EP strongly recommended I not leave the hospital without a permanent pacemaker. Got the pacemaker around 8-9pm that day. Between the pacemaker and the meds (especially metoprolol), my exercise has been cut back immensely though - not exceeding 70-75% max HR since then - March 2024. But thankful to be alive and able to exercise even at this level. I want to learn as much as I can about SSS: how is it diagnosed with certainty? what are the metrics, methods, and tests underpinning the diagnostics? I understand it is not curable. Will exercise actually accelerate further deterioration of the sino-atrial node and therefore SSS? And other related questions to SSS including could electro-cardioversion have caused damage to my sino-atrial node or other parts of my heart causing the "severe underlying conduction problem?" Grateful to be a part of this community at Mayo, to learn and share. 9/15/2026

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@favoritepitchcheck out The Haywire Heart it reports in detail the heart rhythm issues for ultra endurance athletes Tour de France riders are 5x more likely to develop Sfib

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@favoritepitchcheck out The Haywire Heart it reports in detail the heart rhythm issues for ultra endurance athletes Tour de France riders are 5x more likely to develop Sfib

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@chickenfarmer - Thank you. One of the first things I did was read The Haywire Heart, recommended to me by a friend of a friend who was scheduled for an ablation. He, also, in his 70's, had been a long-term endurance athlete and Afib and another arrhythmia and said my life-long history of serious endurance training plus atrial flutter and Afib seemed to be in the category of long-term endurance athletes. The physiologist at the January 2024 stress test who took my background info on exercise, diet, ... said the presence of arrhythmias in serious (year-after-year, high-volume training miles) in long-term endurance athletes was discovered roughly 15 years prior and that kicked off a large research effort into this finding leading to many relevant published papers.
Since the cardio version removed the a-flutter and Afib, I've not pursued an ablation, but had been considering it. I had meant to include The Haywire Heart in my post, but forgot. It is definitely a valuable read in my view; authors being cardiac electrophysiologist with cardiac arrhythmia, world-class cyclist with cardiac arrhythmia and the scientist who discovered these arrhythmias in long-term endurance athletes, by chance. Plus, many case studies described. Thanks for mentioning this book, reminding me of it!

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THere wasa nother book I read about a guy named scoggins ex NAvy who would do these ultra marathon events - 150 mi run etc -Can't Hurt Me. HE was also floored by Afib at a fairly young age. I'm in a group of cyclists whpo have been riding together for years We're not racers just out to enjoy nature while riding bikes. 3 of 4 of us have Afib. I was ablated 9 yrs ago and was Afib free for about 3 yrs before i began to experience short manageable bouts plus lots of ectopic beats : these seem to get worse when I cycled. Anyway the spells got longer this year necessitating several trips to ER for electroconversion. I'm now 4 weeks past a Covergent procedure and looking forward to an Afib free future. Ill be back onthe bike soon

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Hi. I have been diagnosed with Atrial Flutter on Sept. 10th. My pulse was 146. I went to ER and was kept in observation for 48 hours. I will see the cardiologist's PA for a follow up on the 28th. I am taking Eliquis 5 mgs. 2x a day and Metoprolol 50 mg. at night.

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