1. < Heart Rhythm Conditions

Heart Rhythm Conditions – Welcome to the group

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Feb 14, 2018

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Kanaaz Pereira, Connect Moderator | @kanaazpereira | May 5, 2018
In reply to @sydneysmom "Hi Kanaaz Glad to be joining the group. Hoping in finding out how others manage their..." + (show)
@sydneysmom

Hi Kanaaz
Glad to be joining the group. Hoping in finding out how others manage their symptoms of POTS/Dysautonomia.
My daughter was recently diagnosed with dysautonomia. Her heart stops while having fainting episodes. On the tilt table test her pause was 30 seconds. She has been dealing with this since a teenager she is now 28. Her fainting episodes are triggered by anxiety or pain. It happens on average 3 times a yr. Many yrs of wrong medications & misdiagnosis has allowed this disorder to control her daily activities in her life.
Her new neuroscience dr recommends a pacemaker & is referring us to Mayo Clinic to see an Autonomic Specialist. We have been put on a waiting list at Mayo. It could be 6 months before we get in. It’s hard to wait so long for relief since she also suffers with migraines, neck pain, weakness, overall just never feeling “normal”. She is extremely thin, pale & always Cold.
Curious if others with similar symptoms/ diagnosis found relief from a pacemaker implant?
Concerned mom

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Hi @sydneysmom,

I was wondering if you had a chance to see these other discussions on Connect:
– Diagnosed with dysautonomia. Looking for treatment options http://mayocl.in/2bKzAwa
– Managing POTS (Postural Orthostatic Tachycardia Syndrome) https://connect.mayoclinic.org/discussion/managing-pots-postural-orthostatic-tachycardia-syndrome/
– Learning to Live Well with POTS Brightens Daily Life for Christine Esposito: https://sharing.mayoclinic.org/2016/12/15/learning-to-live-well-with-pots-brightens-daily-life-for-christine-esposito/

I'd also like to invite @neeci @mojoearle @morgandickson @jenniferjjjj @widman @flick027 @kfletch to join this discussion, and share their experiences or insights that might help your daughter.

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jeannieg7 | @jeannieg7 | May 5, 2018
In reply to @anniegk "I was told by a doctor that i have a hiatial hernia. I have Irregular heart..." + (show)
@anniegk

I was told by a doctor that i have a hiatial hernia. I have Irregular heart beat that gets worse when iam full of gas. It is very nerve wracking to have the irregular heartbeat. I notice when i wake in the morning, i have a full feeling in my upper chest. My hearbeat problems have been worse the last couple of years. I just recently had a 24 hour monitor and Iam waiting results. I have had this on and off for 40 +years. Along with this, i have the sensation of not being able to get a deep breath.

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I know how you feel. Just had a 30 day event monitor, now also have a fib. High anxiety with this whole situation. I should be acclimated by now, have had them for a very long time

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TWPTRUSTREK | @twptrustrek | May 5, 2018
In reply to @anniegk "I was told by a doctor that i have a hiatial hernia. I have Irregular heart..." + (show)
@anniegk

I was told by a doctor that i have a hiatial hernia. I have Irregular heart beat that gets worse when iam full of gas. It is very nerve wracking to have the irregular heartbeat. I notice when i wake in the morning, i have a full feeling in my upper chest. My hearbeat problems have been worse the last couple of years. I just recently had a 24 hour monitor and Iam waiting results. I have had this on and off for 40 +years. Along with this, i have the sensation of not being able to get a deep breath.

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I have accented pvc s and skips with gas as well

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anniegk | @anniegk | May 4, 2018

Is this something new that has developed? If it is i think i would be checking in with my doctor. I have had heart beat irregularities for the last 45 years. I notice mine are getting worse the last couple of years. Iam having it checked out.

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1 reply
farmor | @farmor | May 4, 2018

Hi, Great site, I am new here! my problem is that when I go to bed I have this fast beating heart and it makes me feel very hyper. I have a very easy life but this insomnia makes me very tired doing the day. I do not take any naps and I am on thyroid medication, that is getting adjusted all the time.

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2 replies
anniegk | @anniegk | May 4, 2018
In reply to @anniegk "I was told by a doctor that i have a hiatial hernia. I have Irregular heart..." + (show)
@anniegk

I was told by a doctor that i have a hiatial hernia. I have Irregular heart beat that gets worse when iam full of gas. It is very nerve wracking to have the irregular heartbeat. I notice when i wake in the morning, i have a full feeling in my upper chest. My hearbeat problems have been worse the last couple of years. I just recently had a 24 hour monitor and Iam waiting results. I have had this on and off for 40 +years. Along with this, i have the sensation of not being able to get a deep breath.

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Thanks for the tip. Do you find that your heartbeat irregularity is worse if you have gas?

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ramakambhatla | @ramakambhatla | May 3, 2018

@kanazpereira: Hi.. I have few years since I had this problem of (also called) v.ectopy and have been taking Cordarone 100mg from 2013-Holter- ECG,showing v.ectopy of 2800 /reduced to 86 in 2014, for 5 years. Recently, the dose of medicaion to prevent ventricular tachycardia (cordarone) is reduced to 50 mg, as QT was 537 ms, responded with QT is 444 ms. I have been asymptomatic mostly. I have CAD-LAD stent and stable on medical treatment for
19-20 years...

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success101 | @success101 | May 3, 2018
In reply to @anniegk "I was told by a doctor that i have a hiatial hernia. I have Irregular heart..." + (show)
@anniegk

I was told by a doctor that i have a hiatial hernia. I have Irregular heart beat that gets worse when iam full of gas. It is very nerve wracking to have the irregular heartbeat. I notice when i wake in the morning, i have a full feeling in my upper chest. My hearbeat problems have been worse the last couple of years. I just recently had a 24 hour monitor and Iam waiting results. I have had this on and off for 40 +years. Along with this, i have the sensation of not being able to get a deep breath.

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Bragg vinegar one tablespoon
In half cup water or more
has helped me a lot.
Taking before bedtime..
Bend over after ward and stand up. I can belch like a
Trouper. I try never to eat
Too much just before bed.
That does complicate it a lot.

My way of getting out the gas.

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jeannieg7 | @jeannieg7 | May 3, 2018
In reply to @unicorn "Hi I am Chris. I have a hiatal hernia, and when the stomach comes into the..." + (show)
@unicorn

Hi I am Chris. I have a hiatal hernia, and when the stomach comes into the throat, my heart goes crazy. working with a cardiologist now, echo, lipid bloodwork, etc. But I would like to know if anyone else has the hernia with the palpitations.. Thnks

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Hi Chris. I also have a hiatal hernia & am getting to believe that the hernia can be a contributing factor in pvc’s. Mine acts up on a daily basis. I know people who have issues aftereating with their hearts

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anniegk | @anniegk | May 3, 2018

I was told by a doctor that i have a hiatial hernia. I have Irregular heart beat that gets worse when iam full of gas. It is very nerve wracking to have the irregular heartbeat. I notice when i wake in the morning, i have a full feeling in my upper chest. My hearbeat problems have been worse the last couple of years. I just recently had a 24 hour monitor and Iam waiting results. I have had this on and off for 40 +years. Along with this, i have the sensation of not being able to get a deep breath.

REPLY
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