Heart Rhythm Conditions – Welcome to the group

@bjork579 Hello Tim

I see that this is your first post on Connect. Welcome! I am glad that you have chosen to participate. I am very impressed with all of the good cardiac treatment you have had, including a heart transplant. I'd like to introduce you to @rosemarya. Rosemary is the volunteer mentor of the Transplant discussions and has had two transplants herself (kidney and liver). I am sure she would like to welcome you to post in her discussion groups as well.

I look forward to reading more of your posts.

Teresa

No, Mayo did not do this. My surgery was in Buffalo, NY. I was told that I could have MRIs before they left the dead lead in. Then they said I couldn’t. I hate those tests anyway. Best of luck to you.

Hi, my name is Tim. I received a heart transplant 12 years ago. I have had 5 stents in my new heart and 2 years ago had a pacemaker installed because of a Brady event. Needed adjustment early on but doing well now. Taking meds to help regulate irregular heartbeat. Thanks for allowing me to participate.

Well, my resting is down on the metoprolol. At first was 55 to 60 but has been creeping up over the last year. Probably at about 80 during the day. Weight is not an issue for me although I did lose about 15 pounds over the last six months because of a diet change. It is just always so interesting that though are hearts are beep-bopping all over the place --- that all is "normal". Really severe palpitations can be so disconcerting. So I really get it when people are anxious about that.

This side of heaven we are always going to have \"issues\". I am thankful that their are folks we can talk with about our particular \"issues\". I see my pacemaker as a miracle. Mine was inserted almost three years ago for bradycardia and without it I would probably not be here. My heart would stop beating for 6 seconds at a time-apparently that raised some eyebrows. I\'m not saying life with a pacemaker is all fun and joy but it was an option and I ran with it. I am on Metoprolol ER 25mg-which I break in half and take twice a day-12 hours apart. Last fall I was started on Eliquis as AFIB has popped up in my monitoring. When AFIB entered the scene I went through several tests and everything came back normal, fine, A okay. I was encouraged to up my exercise game and I have. I don\'t know when the Afib strikes I seem to be asymptomatic. As I told the cardiac nurse there are days I feel sluggish so I nap but those days are few and far apart. In April I will turn 64. I retired four years ago. I would suggest having a B12 level drawn if you are low on that vitamin you can be run down as well along with other symptoms. I have been B12 deficient for lots of years and just a few years ago learned by dad was also. He was bone dry and now has back the energy level an 86 year old should have if not better. Just a thought. Thanks for reading, thanks for sharing and I will keep each of you in my prayers. Thank you MAYO clinic.

Hi @skymya,

I can only imagine the stress of all that you\'ve been through! Thank you for joining Connect, and sharing your story. Here\'s some information about Antiphospholipid syndrome (APLS) from Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/antiphospholipid-syndrome/symptoms-causes/syc-20355831

I\'d also like to invite @soitis4590 and @lena999 to join the conversation and share their experiences. You can view @soitis4590\'s posts here: https://connect.mayoclinic.org/discussion/antiphospholipid-and-lyme-disease/

Although this is an older discussion, https://connect.mayoclinic.org/discussion/antiphospholipid-antibody-syndrom/, I hope @taogirl2 @colettehellerud @lagata are keeping well, and will return to share their insights as well.

@skymya, may I ask why the ablation was postponed?

@markjones

I appreciate that detailed information about ingredients in skin care products. Thank you!

Teresa

Hi @babs2519, and welcome to Connect. How long have you had these palpitations? And how do you control or stop them when they occur? We're so glad you joined the Community, and look forward to getting to know you.

Did they do this to you at Mayo? I probably need to replace my lead too and am concerned about having a dead one in the heart too. I think that pretty much all pacemaker users cannot be MRI\'d.

Hi Sharon,

My resting heart rate is also around 120, which makes everyone nervous. I\'ve gotten used to it since I have had it checked.
Funny, when I wore the halter monitor, several years ago, my heart rate was \'good\' from around 6pm to 5am. At 5am, it went up significantly and remained that way until around 6pm. I am sure you can figure out why. I arose at 5am to get ready for work, and by around 6pm, I had time to relax after work. So, work was not doing me any good. I really should wear a monitor now since I have been retired almost 6 years (lol).

My resting hear rate used to be higher. My doctor put me on the Metoprolol. After losing 90 pounds, my rate came down to 120. For about a year after the weight loss, I only took the meds when my heart rate went above 120. I now am off the Metoprolol. Because I am no able to take any NSAIDs, I take Crestor to protect my heart. I am really very good about it because of the positive impact it has on my heart.
Be well!
ronnie