Connect
Heart Rhythm Conditions – Welcome to the group
Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.
I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.
Let's chat. Why not start by introducing yourself?
Like
Helpful
HugInterested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
Connect
Thank you! 🙂 I have had both an echocardiogram and a stress test, which were normal, as well as a normal EKG and blood work in the ER initially. The cardiologists at our facility will not see me for even a consultation since these tests came back normal.
Thank you! 🙂
-
Like -
Helpful -
Hug
1 ReactionHello @miamom,
I am so happy that you posted here on Connect. I am Teresa, a volunteer mentor, and I've also had some heart problems both with heart rate, and valve issues so I do understand how uncertainty about a diagnosis can make everything worse! I applaud you for seeking out information - here at Connect we encourage everyone to be their own advocate for good health care. We also encourage second opinions when needed.
How far do you live from a larger medical facility? Is it within reason to drive so that you can put your mind at ease regarding this?
I look forward to hearing from you.
Teresa
-
Like -
Helpful -
Hug
2 ReactionsHelloI am in sinus rhythm with extra pvcsI have a I'm implant for 24/7 monitoringI have had two ablation for AFib and those ceased the Bradicardia and I was normal for 4 yrs and now have the pvc s within normal rhythm patternThe pvc s are annoying but do not impare me Other than emotionallyIf you have irregular beats with no impairment be patient they will figure it out RegardsRek
Sent from AOL Mobile Mail
-
Like -
Helpful -
Hug
3 ReactionsWelcome aboard. If you don't mind me asking-being snoopy-what work up have you had beyond the two day event monitor? Next questions are you scheduled with a cardiologist? Or perhaps you were. On this site you will find many different heart events happening and so many wonderful people sharing and offering encouragement. Me, personally, I was dealing with bradycardia which required a pacemaker. I am not a coffee person so I can't say that was my trigger. I had 6 second pauses register on a 30 day event monitor that required more investigating. I have a strong heart just not a consistent normal sinus rhythm but then I was found to have junctional node rhythm decades ago that didn't represent itself to be a serious concern-now I am not so sure. But then the PM has been an important component for me. Here's to hoping the "mystery" gets resolved for you.
-
Like -
Helpful -
Hug
1 ReactionAnd, a couple of people (one nurse, one doctor) have questioned a possible heart murmur when listening to my heartbeat...
Maybe I should also add that my heart rate is almost always within normal limits (although it has been noted to be elevated a few times recently, since the start of all of this), my blood pressure is always normal or even low (90/60, 100/60), I'm generally in good physical health (although could certainly stand to work out more :)), I'm pretty active with my job (I'm a clinical and educational audiologist), I'm 5'10", 150 lbs., and my family history includes my maternal grandfather who had valve replacement and pacemaker placement. Sorry if this is more information than needed! 🙂
-
Like -
Helpful -
Hug
1 ReactionThank you, Kanaaz!! Thank you for the information -- I look forward to reading it! Thank you for forwarding my message to the proper spot on the website! And, thank you for validating my concerns. Sometimes I feel like, 'maybe it's all in my head?', 'maybe I'm making a mountain out of a molehill', 'maybe it's just anxiety? or my morning coffee?', as so many people have suggested to me during this time-frame. I do have times of feeling stressed and anxious (like most people, I would imagine), but no more now than usual. Could it still be the reason for my symptoms starting in late December (and continuing to this day)? I do drink a couple cups of coffee each morning (I have for years); could that suddenly be causing my symptoms? I have recently started drinking less, to see if that helps. So far, I don't really notice a difference.
I do feel light-headed and rather weak for a few seconds -- and sometimes I almost feel like I can't catch my breath -- when I have a 'spell', and I just don't feel well, in general, for the short time that the palpitations happen. Then I'm good for awhile...until the palpitations happen again. I haven't determined any triggers yet. I keep looking for some sort of pattern. They happen when I'm active/moving about and when I'm relaxing/sitting/lying in bed. They happen at all times of the day. The two-day holter monitor did pick up some instances of both tachycardia and bradycardia (with no pattern to when/what I was doing/etc) , some even when I was sleeping, but they said there was no arrhythmia (I think that's how it was worded...). There were no recommendations listed on that monitor report, so I'm guessing tachycardia and bradycardia are not a problem/big deal, as long as there is no arrhythmia? I just feel so clueless about all of this and want to feel more educated/informed/confident. I wish the cardiologists who read my monitor and test results would have at least included an explanation/some information, especially since it turned out that they won't see me....
-
Like -
Helpful -
Hug
3 Reactionsoops, sorry! looks like we were in contact with each other at the same time! 🙂
Hello @miamom,
Welcome to Connect. You may notice that I moved your discussion into the Heart Rhythm group. I did this as I thought it would be beneficial for you to be introduced to the many members who have discussed much of what you are experiencing.
If you are replying by email, I suggest clicking on VIEW & REPLY so that you can read through some of the earlier messages and meet some of our other members talking about their or their loved ones' experiences.
I can imagine how worrying your symptoms must be! Here's some information about palpitations, when to see a doctor, etc. from Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/heart-palpitations/symptoms-causes/syc-20373196
If the Holter monitor didn't pick up any irregular beats or if the events occur less than once weekly, your doctor might recommend an event recorder.
The device records your heartbeat so that your doctor can assess the heart rhythm when you have symptoms. You might wear an event recorder for several weeks. https://www.mayoclinic.org/diseases-conditions/heart-palpitations/diagnosis-treatment/drc-20373201
@miamom, while we wait for other members to join in, could you share a bit more about your symptoms? Do you notice any triggers? Do you have any accompanying discomfort, dizziness, or feeling faint? I'd sincerely encourage you to keep talking and asking questions.
-
Like -
Helpful -
Hug
1 Reaction