Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@soloact

I\'m Judith, age 72 with a birthday coming this spring. I have bradycardia (slow heart rate), which can get down to 38 bpm, and supraventricular tachycardia, known as SVT. But the SVT is intermittent and occasional, although it used to happen more often. It is most likely to happen with stress or exertion. Also have Grade II diastolic dysfunction, which translates to symptomatic heart failure, but doing relatively OK so far.

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Good afternoon @soloact I had a recent Zio patch showing SVT and EP was not planning on medication. There were 17 episodes in 2 weeks with max heart rates-250. I am an athlete and was concerned about driving my rate higher. They put me on low dose Toprol. I had an ECHO read as “ normal,” but have exercise intolerance when jogging for 2-3 years. The dobutamine stress test was “normal.” How was your diastolic dysfunction picked up? Any symptoms or medication?
Thank you

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@twinkie23

Thank you for that info. I will definitely get a meter. I got results from my carotid ultrasound today and there is narrowing seen and also nodules on my thyroid so that could contribute to my symptoms.

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My friend was just talking to me yesterday about the effects of elevated thyroid on heart. Hope that is an answer for you without invasive treatment!

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Thank you for that info. I will definitely get a meter. I got results from my carotid ultrasound today and there is narrowing seen and also nodules on my thyroid so that could contribute to my symptoms.

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@twinkle23 since my kid has type 1 diabetes, I am very familiar with the A1c. A normal A1c does not rule out low blood sugar. It is a 3 month average and lows could be balanced out by high normal blood sugars. You could buy a blood glucose meter, very affordable, and test your blood sugar when you feel that way. I am having similar issues and feel "low" even in the low 70's, which is still considered normal. Sometimes those feelings will happen when the drop in blood sugar is fast, despite a blood sugar in the 70's. Other times I have been in the low 50's so I know that is what is causing my weakness. I carry glucose tablets and try to avoid sugar, which can boost blood sugar when then crashes. Protein and fat even things out. Or maybe it is your heart...but I would personally not do anything invasive until I had tried a meter!

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I am a 69 year old married woman with SLE and strong family history of heart disease. I began having “spells” of what I thought was low blood sugar about 6 months ago. I finally consulted my family PA this past week after getting very weak, shaky, sweating and feeling bad while singing in our choir loft this past Sunday. She ruled out low blood sugar with a normal A1C. The PA then set up a Cardiology referral and had a 30 day event monitor put on me yesterday. Today I am having a carotid ultrasound. I was kind of shocked by the possibility this may have been caused by my heart. I’m wondering if any of you have had a similar situation. Thank you for your time and support.

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@janja1949

My name is Janice. I’ve had a pacemaker for 5 years. I had an atrial ablation 2 years ago. I have limited diaphragm function. I’m on Metropolol, Eliquis, etc. After being hospitalized with COVID for a week, etc. my life has come to a standstill. I was type AAA just 3 years ago. I’m not allowed to drive and I have no energy. After a whole battery of specialists there has not been much improvement. I’m 74 years young. Sorry to be negative but I am isolated. Just need some encouragement. I have a scoliosis which is putting pressure on my left lung. Breathing is an issue. I heard that Mayo has a team which looks into diaphragm issues. Thank you for listening.

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Hi Janice
So sorry to hear what you are experiencing.
Its so hard to know the correct thing to say.
I wish you all the best!!
There are a lot of nice people on the Mayo site and always willing to listen.
You said you had an ablation and you next sentence was about limited diaphragm function.
Was the diaphragm issue the result of the ablation?
Again best of luck in all your endeavors.

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@janja1949

My name is Janice. I’ve had a pacemaker for 5 years. I had an atrial ablation 2 years ago. I have limited diaphragm function. I’m on Metropolol, Eliquis, etc. After being hospitalized with COVID for a week, etc. my life has come to a standstill. I was type AAA just 3 years ago. I’m not allowed to drive and I have no energy. After a whole battery of specialists there has not been much improvement. I’m 74 years young. Sorry to be negative but I am isolated. Just need some encouragement. I have a scoliosis which is putting pressure on my left lung. Breathing is an issue. I heard that Mayo has a team which looks into diaphragm issues. Thank you for listening.

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If you are a reasonable distance from a top facility like Mayo or Cleveland Clinic I would look into getting care there. I have a cardiologist close to my home in Central Florida but am also seeing a cardiologist at Mayo Jacksonville. I have a 4.8 cm thoracic aneurysm and want to be in the Mayo system should surgery be required. Driving five hours round trip for an appointment is inconvenient but totally worth it for that level of expertise.

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Thank you for your kind words. I do have a family which is very supportive.
I am very fortunate.

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Gosh, Janice, you have a lot on your plate. Do you have help, a friend, someone to spend even 30 minutes with you every other day? You seem to need to express yourself, maybe because it helps you to think things through while you are forming thoughts and expressing them. Many of us are like that.

I'm sorry I have little to no experience or training in the conditions you cite, but I do encourage you to be optimistic, hopeful, and as aggressive as you can be to help yourself. Maybe that is your newest hobby for the time being...figuring out how to get on top of these several disabilities. 🙂

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My name is Janice. I’ve had a pacemaker for 5 years. I had an atrial ablation 2 years ago. I have limited diaphragm function. I’m on Metropolol, Eliquis, etc. After being hospitalized with COVID for a week, etc. my life has come to a standstill. I was type AAA just 3 years ago. I’m not allowed to drive and I have no energy. After a whole battery of specialists there has not been much improvement. I’m 74 years young. Sorry to be negative but I am isolated. Just need some encouragement. I have a scoliosis which is putting pressure on my left lung. Breathing is an issue. I heard that Mayo has a team which looks into diaphragm issues. Thank you for listening.

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