Heart Rhythm Conditions – Welcome to the group
Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.
I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
Hi, so glad to join this group. My name is Jean, many call me Jeannie. I have had PVC’s since I’m around 12. Have gotten worse over the years. Now have a fib. Had numerous tests and recently had an echo cardiogram in such I was experiencing msny PVC’s and one showed up on the test. IMy meds were recently changed but the palpitations are still there. I don’t do caffeine, alcohol, but am a high anxiety person. My cardiologist told me to relax, do yoga & meditation. The PVC’s are so darn annoying. Thank you
I have had irregular heartbeat on and off since i was in my late 20's. Iam now in my 70's and they have become much worse. I have had several 24 hour halter monitors. So far i have been told i have SVT, premature heartbeats etc. My last 24 hour monitor showed 500 events. The doctor just blew it off. I sometimes find that a walk stops the irregularity. I take propanolol for it.
HiAfter 5 cardio versions 2 ablations 1 stent 1 angioplastyAnd a cath explore during the last 9 years I'm doing great no fain for 5 yrs Now have 18 mos of jumpy pvc s and a loop inserted for monitoringStarted magniesium suggested by a er doc and pvc s have diminished to almost nothingCheck it outI'll be 76 May 3099thRegardsRon
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Hello, my name is Sonja. I have had ‘episodes’ with my heart for years. Every test I’ve had has been negative, until June, 2016. I don’t want to have anything wrong, just want answers to why my heart would race so hard, skip beats then almost black out. At least I have learned to control the blacking out. At times sound asleep, my heart would have a real hard beat that it would wake me up and shake the bed. After many visits to the ER, in June, 2016 I was hooked up to the monitor and the ER doc said ‘I see what your talking about’. OMGOODNESS!! Here come the answers I have been waiting for! She called the cardiologist and immediately I was scheduled for angioplasty. The cardiologist inserted two stents because of 80% blockage. My family and I were excited. We hoped this would correct the episodes I had. But to no avail it didn’t. Our youngest son has the same symptoms I have. His cardiologist recommended ablation procedure. We were excited that this may be the answer for us. Again, nothing. So here we are living with these episodes, being told every test is normal and nothing life threatening. Praying we don’t have an episode will driving, which could be life threatening to us and other motorists. BTW, the doc said our son didn’t inherit his heart issues from me. I find that hard to believe since my mom and daddy passed away with heart attacks; and my older brother had quadruple bypass at 50.
Thank you for a listening ear. Hoping someday to have real answers!
@thankful
Thank you for sharing your great news about your experience at Mayo.
Teresa
@predictable- Martin, I just wanted to thank you for taking the time last February to respond to my request for possible questions I might ask at my Mayo appt. this past April. We've just returned from AZ. back to our home in OR and wanted to follow up with you and other members on how the appts. went.
It was a very busy day and also the last full day in town and it started with a 12 hr. fast so the next morning at 9:30 was blood work, next at 1:30 an EKG and then at 2 a consult with the cardioloigist assigned to me Dr. J. J. Lynch. Next was the Stress Echo which was amazing! I had a team of 2 techs working with me and Dr. Lynch spent much of the time as well in the room. I never had a stress echo before but after they wire you all up for the stress portion, they have you lay down so the echo tech can shoot a bunch of pictures of my resting heart. Then they have you pop up from the bed on a tread mill and begin very slowing ramping me up about every 3 minutes to the next level. I had just finished the 12th minute at 3.5 speed & a 12% grade when the Dr. asked can you go another level? I told him I would give it my best! The tread mill registered a speed of 4.5 and a 16% grade. It was flying and I started jogging to keep up! The Dr. asked if I could go anoth 90 seconds and I said yes. The tread mill comes to an abrupt stop and they have me drop down immediately onto the bed and the echo tech immediately gets after it. I was somewhat winded, but also very exhilarated. The tech was really great having me breath and commenting how well I did and the great pictures she was getting. The Dr. said to me right then and there that there was no way my EF was still at 30 and said mostly likely at 45-48. I can't express how wonderful those words were to hear! After getting cleaned up I spent another 1/2 hr. with Dr. Lynch going over all the preliminary results from all the tests from the day and talked quite a bit about the echo. I was told a year after my HA after my echo that there was no change and likely there would be none. I was bummed! Dr. Lynch seemed to think that new blood vessels have probably been growing and extending new rich blood back into some of those areas of nearby tissue. I got the chance to ask all your questions you sent me and more, never feeling he was in a rush. I'm so glad I made that appt. with the Scottsdale Mayo! What amazing care I received there! Thank you Martin! @thankful.
Hi Kanaaz
Glad to be joining the group. Hoping in finding out how others manage their symptoms of POTS/Dysautonomia.
My daughter was recently diagnosed with dysautonomia. Her heart stops while having fainting episodes. On the tilt table test her pause was 30 seconds. She has been dealing with this since a teenager she is now 28. Her fainting episodes are triggered by anxiety or pain. It happens on average 3 times a yr. Many yrs of wrong medications & misdiagnosis has allowed this disorder to control her daily activities in her life.
Her new neuroscience dr recommends a pacemaker & is referring us to Mayo Clinic to see an Autonomic Specialist. We have been put on a waiting list at Mayo. It could be 6 months before we get in. It’s hard to wait so long for relief since she also suffers with migraines, neck pain, weakness, overall just never feeling “normal”. She is extremely thin, pale & always Cold.
Curious if others with similar symptoms/ diagnosis found relief from a pacemaker implant?
Concerned mom
Hi. I joined the group because for the last 8 mos I have had symptomatic PVCs. I know they are benign but I still have ended up in the ER 3 x’s. The extreme temporal headache, jaw pain and dizziness makes ignoring them impossible. I also can’t seem to function for the days it occurs. I do have days when I am without symptoms. I am now getting a second opinion and am scheduled for a heart cath on Monday. I am wearing a 30 day monitor.
I am very interested in the magnesium
Tablets.
I to have pics with afib that is in rhythm.
I've been taking mag calcium with
Tumeric. Just started so will keep
Taking them.
Thanks for heads up.
Let us all interested parties know
more.
Thank you for the suggestion. I am doing magnesium chloride oil foot baths and I take a powdered magnesium citrate (natural Calm) for digestion. Hoping they help with PVCs. What kind of tablets do you take?