Heart Rhythm Conditions – Welcome to the group

Hello @rkincaid, I would also like to add my welcome to Connect. My daughter has Long QT Syndrome that was detected in her mid 20s. I did a search on Google Scholar (https://scholar.google.com./) and found an article that may be helpful for you. It's a good tool to find research information.

A Rapid Irregular Rhythm in a Healthy, Young Patient - How Fast Can You Go?
-- https://jamanetwork.com/journals/jamainternalmedicine/article-abstract/2663752

John

Hello @rkincaid

I see this is your first post on Connect and I would like to welcome you. I can imagine your concern for your 11 year old daughter and I can also understand her concern about having such a fast heartbeat. As we are not medical professionals at Connect, the best we can do is to offer you our support and encouragement.

Since you visited these 3 different cardiologists in 2 different states, it sounds like you are certainly doing your due diligence in looking for a diagnosis and some answers. You mentioned, however, Lyme Disease. Has she seen an infectious disease specialist?

Wishing you well in your search for answers. I look forward to hearing from you again with updates.

Teresa

As a mother, my heart goes out to you. Having fast heart rates and feeling your heart pound like it is going to jump out your body, or feel it trip now and again, is very, very stressful. My heart started doing that when I was 27 and now I am 67. So for 40 years I have had it off and on. I have learnt to live with it. I have never taken any medication because my doctors say it is benign. I have played tennis all my life and have never had any problem with sports. I have had three c sections, and several surgeries and never had a problem. So I am sorry I cannot suggest any course of action other than letting you know my experience. It might help you relax at least a little bit.
I have been following this blog: there are a lot of people who suffer the same problem. They suggest magnesium, which I take. I also take CoQ10. Please, keep os updated of her progress. Loli

My daughter who is 11 has been having fast heart rates for over 2 yrs now. They pound so hard you could see it. The first and only time a doctor saw it was a field day and it was going so fast she couldn’t get it. She sent us to get an ekg and a referred us to a ped cardiologist. The ekg said Long qt. The cardiologist said just a glitch no way she had that. Now over 2 years later 3 different cardiologist, multiple heart monitors which showed beats over 200, tachycardia, sinus rhythm, and on a beta blocker for over a year we still have NO diagnosis. She repeated a stress test Good Friday in which the doctor said SVT. But all 3 cardiologists all say no. She even had one of those doctors tell us it was normal to have fast heart rates and nothing was wrong with her. Really? Never heard of that being normal. She was tested for Lyme 2 years ago after having a tick on her stomach after visiting an animal shelter. She’s been misdiagnosed with pheochomocytoma and a benign tumor on her brain. Why is it 3 doctors in 2 different states can’t figure this out. She has no energy but wants to play sports. She’s also afraid her heart will start pounding again and will have to quit. Somebody please help us figure this out. Getting her retested for Lyme this week. Any and all suggestions are welcomed.

I have a very low EF at 30% and am told I need a pacemaker defibrillator, any info on how to deal with a defitbrilator? They are quite large and afraid of how it will look as I am a small thin person.

Hi, Gayl! Do you have any questions for the group?

I'm Gayl

Have you been given a Beta Blocker? Carvedilol seems to be the rug of choice to suppress heart rates.

Hello to the moderator ... Thank you for volunteering @knaazpereira. Am I the only one who can NOT feel or witness any lumps bumps or drum beats from my heart housed inside my big chest? Oh yes ... once I felt a substantial and memorable loud flutter in my chest under the rib cage ... wentq on for 14 seconds ... The nurse was soooooo happy that some thing at last happened after three days of resting in a white gown ... she ran out of the room to remind those listening to my heart from another place in the hospital that an important event had occurred. The next day the stage was set for me to have a cathater ablation in that the medications were not working to lower my heart beat of 100. Trying to kill with HEAT the offending site in my heart and to stop the wrong message of too much electricity emanating full blast ahead... Never did a feel anything more than that flutter that started the stage curtain to open... The catherization did NOT work. Maybe it was because the Doctor, an Electrophysiologist ... And of course an cardiologist was too careful losing courage to go too close to the five metal? clips holding firmly the edge of my new repaired tricuspid and mitral valves. Now, I am thinkingundsvton about my cardiologist who whispered plan that I should go for another ablation ... This time with a qdifferent electrophysiologistyn. Having my heart beats 80-100q beats a minute is too fast ... Such speed could produce a STROKE. So prayers will be in the menue for the night along with any sudden and bright ideas as to how to proceed. Would a pacemaker be good idea to keep the beats in balance? Already have embedded a RevealLINK that sends the the beats to the lab to assist the docs in figuring the next step. Maybe it could be a pacemaker ... Any thoughts on this?
K

Hi,
What tile of magnesium are you taking that helped your pvs? Thank you.