Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Dr says it is not from beta blocker.sliws beats.nor so sure

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@gator123

What do you mean by woozy I take metoprolol and I don't know what that is giving me headaches after 8 years and getting me real light-headed and stuff

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Woozy means light headed basically. Do you check your blood pressure? Mine is low to begin with and beta blockers sent it too low.

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@windyshores

Mine feels like large fish flopping around 🙂

I think a second opinion is a good idea. Some people on another forum (I will send you a private message) say that beta blockers are not a good choice. Diltiazem is a calcium channel blocker.

I tried a beta blocker for heart palpitations before menopause, years ago, and could not tolerate. I have low blood pressure and could not feel my arms! Also woozy.

Sent you a private message @riverpark!

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What do you mean by woozy I take metoprolol and I don't know what that is giving me headaches after 8 years and getting me real light-headed and stuff

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@riverpark

Afib for me is absolutely unmistakable with racing pulse and a wild, terrifying irregularity I have heard described as “kittens playing roughly in your chest.” Hard for me to imagine having an AFib event without immediately knowing it, and it would definitely awaken me if it occurred while sleeping.

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Terrifying. I wonder why I hardly ever notice it (I then use the Apple Watch. Afib
detector to check if I'm awake.)

Perhaps it's because mine isn't very tachycardic (only low 100s - 100-135)
And yet I know I have fairly frequent episodes - several times a week, perhaps more. I'll be interested to get the results of my last week-long cardiac "event monitor")

Thanks for answering.

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Thanks dalous! My surgery went great and I’m feeling good. My EF increased from 50ish to 64. I have heart failure
with preserved ejection factor so my EF
has not been very low. My surgeon, on video, says it’s important to ask your Dr. how many valve repairs or replacements he/she has performed. My surgeon performs about 300+ per year. The more the better. I was worried about my surgery but it went very well. I haven’t heard about the mitral clip. Interesting!
Keep us informed as to what you find out! Good luck!!

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@bjanderson

Well, I had my 1st Afib encounter in 2015 when I was 63. It was so scary. I went to the ER and spent the night. Left the next day on 100mg Flecanide. Also learned I had severe tricuspid valve regurgitation. So, we left Florida and headed home. Went to Mayo Clinic, in Rochester. That was all 7 years ago. I just had open heart surgery for that tricuspid valve and mitral valve repair. I have put all my trust in Mayo. Afib is no fun. I am in it all the time but the meds are helping keep the heart beat
at a decent rate. So try not to be too overly concerned. However, that is being said by one of the biggest worriers ever!!😉

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Hi bjanderson, I had my first Afib event in Jan 2022 and so far not any more. An Echocardiogram showed I had 10-15% ejection fraction, severe mitral valve regurgitation, and moderate tricuspid so I was interested to see you had both valves repaired. The cardiologist I saw on a recent ER stay was just interested in putting me on meds and did not want to discuss the valves. It is my understanding (self educated online) that the ejection fraction can be improved by having these valves repaired. Did your EF change? I have also read about a Mitral clip that can be attached to the valve during a catheterization/angiogram, which means no open heart surgery. I see the cardiology team at UC Davis in Sacramento soon so maybe some of my questions will be answered. Good Luck to you in your recovery.

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@riverpark

Afib for me is absolutely unmistakable with racing pulse and a wild, terrifying irregularity I have heard described as “kittens playing roughly in your chest.” Hard for me to imagine having an AFib event without immediately knowing it, and it would definitely awaken me if it occurred while sleeping.

Jump to this post

Mine feels like large fish flopping around 🙂

I think a second opinion is a good idea. Some people on another forum (I will send you a private message) say that beta blockers are not a good choice. Diltiazem is a calcium channel blocker.

I tried a beta blocker for heart palpitations before menopause, years ago, and could not tolerate. I have low blood pressure and could not feel my arms! Also woozy.

Sent you a private message @riverpark!

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@realitytest

How do you all know when you're in AFIB and how long it's. lasting? I have an Apple Watch that allows me to check for AFIB, but otherwise I wouldn't know.

I have AFIB at least several. times a week (can't tell at night) often for several hours, even more.

My doctor says taking Xarelto is enough protection against stroke, as it prevents clotting.

I've never been advised to go the hospital for AFIB. Why? Very confused by all the different advice.

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Afib for me is absolutely unmistakable with racing pulse and a wild, terrifying irregularity I have heard described as “kittens playing roughly in your chest.” Hard for me to imagine having an AFib event without immediately knowing it, and it would definitely awaken me if it occurred while sleeping.

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@windyshores

I have come to think that actual physical pressure from air in my GI tract, against my heart, is my main trigger. I am always reclining and always in the evening. The solution might be a big burp if I could!

My heart rate is erratic too so I know just how you feel. My highest was 180 but it bounced around.

The old CHADS score made female gender one of the factors but they took that off! I don't have high blood pressure etc.

Noone seems to know how long you have to be in afib to have stroke risk. The study on short term anti-coagulation was for people who were in afib more than 5.5 hours.

Do you have an electrophysiologist?

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No, I don’t have an electrophysiologist, just an excellent cardiologist at present. But your electrophysiologist question does open up a whole other series of confusing questions. For example, my cardiologist, who prescribed the Flecainide and metoprolol I’m taking now (lowest doses on both), talked me into taking them against my strongest wishes not to take meds saying, “at least they will give you a couple years of improved lifestyle.” So his statement and plenty I have been researching does suggest that these kinds of meds stop being effective after a while. On the other hand, I have seen statements on blogs like this from folks who have been taking these same meds for many years with ongoing good results. Similarly, I have seen plenty of comments that suggest the drugs are definitely temporary and that the only true fix is ablation or something similar, with lots of advice saying to skip the drugs and seek ablation right away. My present thought is to continue with the drugs for another few weeks to see if I can tolerate them better with time, since I feel like I have a moderate case of the flu with them. Then, I think I will seek referral to an electrophysiologist who is heavily experienced with ablations, if I can find one, and see what he or she has to say about my situation.

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How do you all know when you're in AFIB and how long it's. lasting? I have an Apple Watch that allows me to check for AFIB, but otherwise I wouldn't know.

I have AFIB at least several. times a week (can't tell at night) often for several hours, even more.

My doctor says taking Xarelto is enough protection against stroke, as it prevents clotting.

I've never been advised to go the hospital for AFIB. Why? Very confused by all the different advice.

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