Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@tedalmon

Hi, My name is Ted and I have been sampling the forum occasionally and have commented a time or two. I am a patient at Mayo Clinic Jacksonville and live in Palm Coast FL and in Rhode Island for four months in the summer. I have had AFIB since a hip replacement surgery in 2015 and presently just take Xarelto and Propranolol to keep my heart rate down. I have been monitored a number of times. Most recently the test showed much more frequent episodes of AFIB along with some other rhythm irregularities. I am now considering an ablation, but learned I also now have Parkinson's, so I am just sort of letting it all sink in. I have always been very active and healthy, work out regularly, and play a lot of golf. I'm 75 and retired from a long business career.

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A-fib is more common as we get older, I’m almost 79. Sorry to hear of your diagnosis of Parkinson’s. The very same doctor was on the team who discovered the link to certain heart abnormalities like mine. That’s why it’s named WPW for Wolff, Parkinson, White Syndrome. As for the ablation, that’s the usual course of treatment but is nearly impossible in my case because if my birth defect. Hope things work out for you. @becky1024.

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@predictable

Thanks @becky1024. You gave us more insights on problems lurking behind asymptomatic arrhythmia -- something more to ask our medical team about when we visit them. Having just lost a brother-in-law to cancer after years with a pacemaker, I can delve into the issues confidentially with his family -- which was not a promising option in the past. You give us a large measure of confidence that doctors can be found to help us manage the most mysterious illnesses, and I am glad your life has been saved by them. Martin

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The SA Node is the heart’s natural pacemaker which is part of my Electophysiologist Doctor’s training. Any Heart Rhythm issues are their specialty. Because my heart birth defect is so rare, 1 in a million, there are only roughly 350 people in the United States that are born with this type of defect each year. I and my PCP had to do a lot of research into my life to even get an appointment with the top person in that field in my area. So if you have any doubts, get a second opinion from a doctor who specializes in this field not a regular cardiologist. Hope all goes well. @becky1024

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@tedalmon

Hi, My name is Ted and I have been sampling the forum occasionally and have commented a time or two. I am a patient at Mayo Clinic Jacksonville and live in Palm Coast FL and in Rhode Island for four months in the summer. I have had AFIB since a hip replacement surgery in 2015 and presently just take Xarelto and Propranolol to keep my heart rate down. I have been monitored a number of times. Most recently the test showed much more frequent episodes of AFIB along with some other rhythm irregularities. I am now considering an ablation, but learned I also now have Parkinson's, so I am just sort of letting it all sink in. I have always been very active and healthy, work out regularly, and play a lot of golf. I'm 75 and retired from a long business career.

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Hi Ted, I'm Dana and now live in Arizona where due to VT had an Heart Transplant and am very familiar with Ablations, I am also a Rhode Islander where I graduated from High School so some find memories of the Bristol and Warren area plus a bit of time in Cranston and Warwick. So Glad you joined our group and if I can be of any assistance in the Ablation department let me know.
Blessing

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Hi, My name is Ted and I have been sampling the forum occasionally and have commented a time or two. I am a patient at Mayo Clinic Jacksonville and live in Palm Coast FL and in Rhode Island for four months in the summer. I have had AFIB since a hip replacement surgery in 2015 and presently just take Xarelto and Propranolol to keep my heart rate down. I have been monitored a number of times. Most recently the test showed much more frequent episodes of AFIB along with some other rhythm irregularities. I am now considering an ablation, but learned I also now have Parkinson's, so I am just sort of letting it all sink in. I have always been very active and healthy, work out regularly, and play a lot of golf. I'm 75 and retired from a long business career.

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@becky1024

Martin, you might want to go thru my posts and look for my reply about my rare heart birth defect and my experience with WPW, Wolff, Parkinson, White Syndrome. I’ve experienced many issues with my heart since I’m 10yo and I’m 78 now. I was experiencing Pulseless Ventricular Tachycardia, Bradycardia, A-Fib and Spontaneous Blackouts and had 3 heart attacks. My regular cardiologist had no clue what was wrong and my warning to any poster with a heart rhythm problem to get an appointment with an Electrophysiologist, a specialist in the heart electrical system.

Because my heart defect is so rare, a 1 in a million occurrence, the doctor was so intrigued by my symptoms he implanted a $25,000 heart loop recorder under my left breast. It monitors each beat of my heart for any abnormalities. It records 24/7 by the loop recorder and relayed over the internet to technicians in Oregon and sent to my doctor here in Pennsylvania every day. Regular cardiologist can be clueless like 3 of my doctors so if A-fib is a problem or any other rhythm problem, contact an Electrophysiologist immediately, it may save your life.

Jump to this post

Thanks @becky1024. You gave us more insights on problems lurking behind asymptomatic arrhythmia -- something more to ask our medical team about when we visit them. Having just lost a brother-in-law to cancer after years with a pacemaker, I can delve into the issues confidentially with his family -- which was not a promising option in the past. You give us a large measure of confidence that doctors can be found to help us manage the most mysterious illnesses, and I am glad your life has been saved by them. Martin

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@predictable

@lenmayo, let me share the experiences I have had with AFIB. Diagnosis only by EKG in my regular annual physical exam. No perceptible heart-rate symptoms then or now, seven years later. However, two years after the diagnosis I suffered a "small stroke" which affected movement of my legs, feet, arms, and hands somewhat as well as my hearing, taste, and smell. Put on Warfarin anticoagulant and still taking it daily with monthly lab tests to confirm it's working. As in the past, AFIB is detectable only by EKG and not by any variations in heart rhythm. I also have been on a beta blocker (Coreg) since my stroke. The beast is in the closet, and I intend to keep it there by continuing my AFIB therapy. Martin

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Martin, you might want to go thru my posts and look for my reply about my rare heart birth defect and my experience with WPW, Wolff, Parkinson, White Syndrome. I’ve experienced many issues with my heart since I’m 10yo and I’m 78 now. I was experiencing Pulseless Ventricular Tachycardia, Bradycardia, A-Fib and Spontaneous Blackouts and had 3 heart attacks. My regular cardiologist had no clue what was wrong and my warning to any poster with a heart rhythm problem to get an appointment with an Electrophysiologist, a specialist in the heart electrical system.

Because my heart defect is so rare, a 1 in a million occurrence, the doctor was so intrigued by my symptoms he implanted a $25,000 heart loop recorder under my left breast. It monitors each beat of my heart for any abnormalities. It records 24/7 by the loop recorder and relayed over the internet to technicians in Oregon and sent to my doctor here in Pennsylvania every day. Regular cardiologist can be clueless like 3 of my doctors so if A-fib is a problem or any other rhythm problem, contact an Electrophysiologist immediately, it may save your life.

REPLY
@predictable

@lenmayo, let me share the experiences I have had with AFIB. Diagnosis only by EKG in my regular annual physical exam. No perceptible heart-rate symptoms then or now, seven years later. However, two years after the diagnosis I suffered a "small stroke" which affected movement of my legs, feet, arms, and hands somewhat as well as my hearing, taste, and smell. Put on Warfarin anticoagulant and still taking it daily with monthly lab tests to confirm it's working. As in the past, AFIB is detectable only by EKG and not by any variations in heart rhythm. I also have been on a beta blocker (Coreg) since my stroke. The beast is in the closet, and I intend to keep it there by continuing my AFIB therapy. Martin

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Martin, the greatest danger of AFIB is stroke. I'm amazed your doctors didn't put you on a blood thinner sooner as AFIB can be rather easily detected, even by wearable devices now. But your coumadin/warfarin may be able to be replaced now by any number of alternatives like Xarelto or Eliquis that don't need testing and are just as effective as Warfarin. Most importantly, you should be asking your doctors these questions. I am not an expert, but I have AFIB like you and have read and studied in addition to my treatment. If you are a Mayo patient it is easy to submit questions on your patient portal. Good luck to you. Ted

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@predictable

@lenmayo, let me share the experiences I have had with AFIB. Diagnosis only by EKG in my regular annual physical exam. No perceptible heart-rate symptoms then or now, seven years later. However, two years after the diagnosis I suffered a "small stroke" which affected movement of my legs, feet, arms, and hands somewhat as well as my hearing, taste, and smell. Put on Warfarin anticoagulant and still taking it daily with monthly lab tests to confirm it's working. As in the past, AFIB is detectable only by EKG and not by any variations in heart rhythm. I also have been on a beta blocker (Coreg) since my stroke. The beast is in the closet, and I intend to keep it there by continuing my AFIB therapy. Martin

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Hi Martin,
Thanks for your reply. I never had an EKG showing AFIB except just after three operations.
I wore a Holter twice for a month with also no indication.
A friend of mine just came off Eliquis by having the watchman installed.
https://www.watchman.com/en-us/how-watchman-device-works.html
Best of health,
Len

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@lenmayo

I had AFIB just after my CABG, my Left Kidney Removal, and an Appendectomy. I wore a Holter twice for a month each time after the CABG and kidney removal. There was no evidence of AFIB. My blood pressure monitors, which have the ability to detect AFIB, and my Kardia Mobile do not give any indications. My cardiologist insists on me taking Eliquis. Does anyone have any thoughts on this?

Jump to this post

@lenmayo, let me share the experiences I have had with AFIB. Diagnosis only by EKG in my regular annual physical exam. No perceptible heart-rate symptoms then or now, seven years later. However, two years after the diagnosis I suffered a "small stroke" which affected movement of my legs, feet, arms, and hands somewhat as well as my hearing, taste, and smell. Put on Warfarin anticoagulant and still taking it daily with monthly lab tests to confirm it's working. As in the past, AFIB is detectable only by EKG and not by any variations in heart rhythm. I also have been on a beta blocker (Coreg) since my stroke. The beast is in the closet, and I intend to keep it there by continuing my AFIB therapy. Martin

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@helent

Just diagnosed with premature ventricular contractions.
Can't take beta blockers as I have low blood pressure. Tried other meds and had bad palpitations. Is it dangerous to just ignore these episodes??

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@helent, you must see your doctor right away. It IS dangerous to ignore PVCs as well as side-effects of medications taken to deal with them.

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