Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for kjhunt @kjhunt

Hello all. Have had aFib most of my life. 57 yo now. It’s gotten worst. Lots of episodes. Am wondering if this condition, if anyone has had to take leave from work or use health insurance to be away from work to deal with getting better. Plus I think it’s work related stress that brings on my episodes. The medications really knock me on my ass.

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@kjhunt
I had Afib which lasted 10-12 hours, pounding, until I had an Ablation. Do you have access to an Electro-Cardiologist?

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Profile picture for jovi45 @jovi45

I have hypothyroid I take synthroid I also have has arrithmas for several years . My heart missed a beat and then went very fat to catch up.I have hospilzed with suspected TIA 3 times and have has EKG and several heart test which were all normal. I have had several holter tests none of them showed A/FIB
I wear a Fitbit watch which detected A/FIB AT 5am, It wakened me up. My cardiologist put me Eliquis 5mg twice daily and Bisoprolol 5 MG Valsartan 20 MG l was able to trace the A/Fib associated mainly with drinking wine and caffeine .I stopped drinking wine ,all caffeine tea & chocolate all spiced foods also ginger garlic & Tumirin and all hot peppers. According to my watch I don’t appear to have any more episodes of A/FIB Since. I have severe high spikes associated with walking at the mall, making dinner. My HR Goes spikes to over 125 when I am walking or grocery shopping. Is this unusual?

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@jovi45 Those spikes are natural in all likelihood. As you stand from sitting, your heart must work harder to get blood from further below your heart back up to your lungs. You will spike just standing from seated. Then, if you begin to move around, maybe use your arms also, there is more 'work' being done, and your heart rate will climb further. This is both desirable and normal....it helps you to function those ways. What would worry you is if your 'spike' goes past 135 or so, maybe over 145, just walking casually or even when seated and calm. There is only a possibly disordered heart that would need a rise in HR to the 140's and higher to let you walk to the kitchen. Or a heart in arrhythmia, such as in the case of POTS (postural orthostatic tachycardia syndrome), or maybe in atrial fibrillation (AF). I don't see how you can have an arrhythmia with an HR around 125 when you are moving about. I could be wrong, and I'm also not medically trained. The thing to do, when you have symptoms, or see that your HR is above 125 when just doing normal stuff, is to take a Kardia or Fitbit reading, and then look at its graphical representation, the one that looks like a real ECG. Either device 'should' be able to upload the file to an app where you can see what the squiggles look like. Any arrhythmia will either be too fast, or there will be a nasty mess to look at, including no P wave and the highest peaks don't have the same distance...they're spaced out randomly. That would be AF.

The Holter can only record what really happens when it is on you recording. If you take off the leads and turn it in, and driving home you have a short run of AF, that's a miss. Your Fitbit may have been wrong, but it may have been right. You should have a record still on it of that detection. See if you can find it, upload it to the app, and look at it. Show it to your doctor.

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Profile picture for jovi45 @jovi45

I want to follow this group as I have AFib

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I have hypothyroid I take synthroid I also have has arrithmas for several years . My heart missed a beat and then went very fat to catch up.I have hospilzed with suspected TIA 3 times and have has EKG and several heart test which were all normal. I have had several holter tests none of them showed A/FIB
I wear a Fitbit watch which detected A/FIB AT 5am, It wakened me up. My cardiologist put me Eliquis 5mg twice daily and Bisoprolol 5 MG Valsartan 20 MG l was able to trace the A/Fib associated mainly with drinking wine and caffeine .I stopped drinking wine ,all caffeine tea & chocolate all spiced foods also ginger garlic & Tumirin and all hot peppers. According to my watch I don’t appear to have any more episodes of A/FIB Since. I have severe high spikes associated with walking at the mall, making dinner. My HR Goes spikes to over 125 when I am walking or grocery shopping. Is this unusual?

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I want to follow this group as I have AFib

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Profile picture for clementyne @clementyne

Hi
I just found out I have fast and slow heart rates daily. All because I switched from Samsung to Apple, and my Apple watch has been telling me my heart rate is under 50 and over 100. I have had a few irregular EKGs in the past, but when they were redone, I had a perfect sinus rhythm. I even had one of those life screenings, because my husband is a heart patient and I wanted to get ahead of the game, and it came back that I had an extra heartbeat, but when I took the report to my PCP they did an EKG, and it was normal.
After my watch started notifying me of different heart rates, I started taking my blood pressure daily, and it was normal, but it would also pick up these different heart rates.
I made an appointment with my husband's cardiologist and she had me wear a Holter monitor for 5 days. I just had my ECO done, and now I wait for the results. The technician did mention a PVC or an arrhythmia, but I have absolutely NO symptoms at all. I don't feel anything. The tech asked me if I felt flutters, dizziness, or pounding, and I have never had any symptoms.
I am a breast cancer survivor and had 35 weeks of daily radiation, which can cause heart problems later. I don't see the Dr until May 15th, so I just have to wonder what the heck it is, and is it something serious? I am guessing if they found something that needed immediate attention they would contact me, or at least I hope so.

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@clementyne We'll all have to await the results. Guessing isn't going to be more than a waste of anxious energy in my opinion. If it is an arrhythmia, it can be managed, but it depends on which arrhythmia and what is to be done for it. You'll have to be patient.

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Hi
I just found out I have fast and slow heart rates daily. All because I switched from Samsung to Apple, and my Apple watch has been telling me my heart rate is under 50 and over 100. I have had a few irregular EKGs in the past, but when they were redone, I had a perfect sinus rhythm. I even had one of those life screenings, because my husband is a heart patient and I wanted to get ahead of the game, and it came back that I had an extra heartbeat, but when I took the report to my PCP they did an EKG, and it was normal.
After my watch started notifying me of different heart rates, I started taking my blood pressure daily, and it was normal, but it would also pick up these different heart rates.
I made an appointment with my husband's cardiologist and she had me wear a Holter monitor for 5 days. I just had my ECO done, and now I wait for the results. The technician did mention a PVC or an arrhythmia, but I have absolutely NO symptoms at all. I don't feel anything. The tech asked me if I felt flutters, dizziness, or pounding, and I have never had any symptoms.
I am a breast cancer survivor and had 35 weeks of daily radiation, which can cause heart problems later. I don't see the Dr until May 15th, so I just have to wonder what the heck it is, and is it something serious? I am guessing if they found something that needed immediate attention they would contact me, or at least I hope so.

REPLY
Profile picture for jozie16 @jozie16

Hi
Yesterday I had a sensation of my heart dropping in my chest. It lasted for a little while, it was very noticeable and I’ve never had this happen before. I have supra ventricular tachycardia. I get episodes of syncope (lightheadedness or near fainting) every now and then. And I get a rapid heart rate and sometimes a flutter, or I skip a beat from time to time. Most of the time I don’t notice it. I’ve been seeing a cardiologist for several years (but right now I’m waiting for my new one. I don’t see him until July). I’ve worn heart monitors, and I’ve had EKGs and echocardiograms, but I’ve never had this strong sensation in my heart dropping in my chest before. (I even wonder if my heart stopped), Tomorrow I see a doctor.

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@jozie16 Usually the 'skipped beat' feeling, maybe with a strong thump at the end, is known as a PAC, or premature atrial contraction. SVT, your formal diagnosis, is not a PAC, or rather the other way around...a PAC is not within the greater arrhythmia set that is SVT. People describe what they feel, and helpful listening physicians reply that it's palpitations. It's never a diagnosis, just a way of feeding back that they're listening and understand the sensations involved. PACs really are a pause followed by two catch-up beats that come close together, and one of them is a doozy, often felt as the big one. It's unsettling, but every heart alive this moment has one, six, twenty each day. They're normal. They can climb in number and present an unreasonable, even a morbid, 'burden', typically several thousand each day where the cardiologist would want you to see an electrophysiologist. Also, PACs tend to be forerunners of eventual atrial fibrillation, and AF and SVT are in the same drawer.

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Profile picture for randy32 @randy32

@gloaming thanks for sharing this insight. Very affirming. I do have an overnight sleep study in the hospital scheduled in the next two weeks, that sounds very much like what you're describing. I do not have hypertension. What type of testing will they do for ischemia?

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@randy32 They do echocardiogram, angiogram, what in British Columbia, where I live, is called a MIBI test: https://www.islandhealth.ca/sites/default/files/2018-11/mibi-scan-patient-info.pdf
Also called a stress test with contrasting dye. I have had two. Also Doppler ultrasound of the carotid arteries. All of these show pinch points or excess deposition of stenosing plaque that limits the amount of oxygenated blood that can get through/past them. If they reduce the flow sufficiently to cause obvious and relevant symptoms, they call the effect 'ischemia'.

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Hi
Yesterday I had a sensation of my heart dropping in my chest. It lasted for a little while, it was very noticeable and I’ve never had this happen before. I have supra ventricular tachycardia. I get episodes of syncope (lightheadedness or near fainting) every now and then. And I get a rapid heart rate and sometimes a flutter, or I skip a beat from time to time. Most of the time I don’t notice it. I’ve been seeing a cardiologist for several years (but right now I’m waiting for my new one. I don’t see him until July). I’ve worn heart monitors, and I’ve had EKGs and echocardiograms, but I’ve never had this strong sensation in my heart dropping in my chest before. (I even wonder if my heart stopped), Tomorrow I see a doctor.

REPLY
Profile picture for gloaming @gloaming

@randy32 You may already have been formally diagnosed for ischemia, but if not, this would be a next step. Also, formally diagnosed for obstructive/central sleep apnea (the best, if you can afford it, is a night spent in a sleep lab where you get hooked up with a gillion leads (you look like a gorgon when they've finished applying them all), and they let you fall asleep in a bed. Some labs make you come back next night and they titrate you for pressure/volume to improve your air flow using a PAP machine. In my case, they awaken you at 0200 and ask you to don a mask and they'll titrate you until waking time at 0600....IF.....they see obvious apnea in the first half of the night.

Endurance athletes often develop AF later in life. I am one such person. But it wasn't my endurance sports, although we both know intuitively, as do physicians, that our 'hobby' probably didn't do us any good as time went on. No, it was those two silent killers, OSA and hypertension, who are kissin' cousins. When you open the closet and see the one, the other has shrunk back into the shadow and is attempting to rearrange clothing....if you know what I mean.

You ask for a treatment plan. Tests for ischemia and sleep apnea come to the fore. And that means a visit to your friendly neighbhourhood cardiologist.

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@gloaming thanks for sharing this insight. Very affirming. I do have an overnight sleep study in the hospital scheduled in the next two weeks, that sounds very much like what you're describing. I do not have hypertension. What type of testing will they do for ischemia?

REPLY
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