Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@afibguy

Hello all. I have been "lurking" here for a while now. Here is my story. I am a 68 year old male in pretty good health. I lift weights, ride my bike, and walk daily. In the summer of 2020, I started experiencing "thumping" in my chest and felt tired all of the time. In October 2020, I was diagnosed with persistent atrial fibrillation. I got an EP and he put me on flecainide for rhythm control and did a cardioversion. I went into NSR, but it only lasted for about a week. Since I was not too symptomatic at that time, my EP dc'd the flecainide and started metoprolol for rate control. He later added diltiazem. I did OK for a while, but I hated the meds. They made me feel almost as bad as the afib. In May of 2021 I went to the hospital to start dofetilide (Tikosyn). I went into NSR after the second dose. I remained in NSR for about a year, but then I started having increasingly frequent break through afib episodes. These episodes were pretty intense, and I was very symptomatic (strong palpitations, shortness of breath, anxiety, etc). So, I had a radio frequency ablation done in June of 2022. The ablation really helped the afib a lot, although I had some SVEs and frequent PVCs afterwards. The SVEs started calming down over the summer until I had abdominal surgery in October for a hernia repair with general anesthesia. Two days after the surgery, I started having frequent PACs along with the PVCs. I started magnesium taurate in December and it has almost totally eliminated the PVCs, and the PACs eventually went away. In January, I met with my EP and complained about feeling generally spacey and low energy with a persistent, mild headachy feeling. I had experienced this for some time, but always attributed it to the afib. But since this feeling persisted after my rhythms were relatively OK, I was thinking it was medication side effects. My EP agreed and had me hold 2 doses of dofetilide to see it that helped. After holding the second dose, I went into afib, but converted to NSR after resuming the dofetilide. Next, I tried holding the diltiazem and after 2 days, I felt better, but then the PACs and SVEs came back with a vengeance (I have a Kardia). So now I remain on dofetilide, metoprolol, and diltiazem. I am doing well rhythmically, but still have the spacey, crappy feeling that I think is medication related. My EP said that he would do a second ablation if I want to get off of the meds. I don't want to do anything this summer, because I want to enjoy the season. He said he could do another radio frequency ablation this fall or if I wanted to wait, the pulse field ablation would be available this spring. I have some decisions to make. Sorry for the lengthy diatribe. I appreciate this site.

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I meant to say the pulse field ablation will be available next spring.

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Hello all. I have been "lurking" here for a while now. Here is my story. I am a 68 year old male in pretty good health. I lift weights, ride my bike, and walk daily. In the summer of 2020, I started experiencing "thumping" in my chest and felt tired all of the time. In October 2020, I was diagnosed with persistent atrial fibrillation. I got an EP and he put me on flecainide for rhythm control and did a cardioversion. I went into NSR, but it only lasted for about a week. Since I was not too symptomatic at that time, my EP dc'd the flecainide and started metoprolol for rate control. He later added diltiazem. I did OK for a while, but I hated the meds. They made me feel almost as bad as the afib. In May of 2021 I went to the hospital to start dofetilide (Tikosyn). I went into NSR after the second dose. I remained in NSR for about a year, but then I started having increasingly frequent break through afib episodes. These episodes were pretty intense, and I was very symptomatic (strong palpitations, shortness of breath, anxiety, etc). So, I had a radio frequency ablation done in June of 2022. The ablation really helped the afib a lot, although I had some SVEs and frequent PVCs afterwards. The SVEs started calming down over the summer until I had abdominal surgery in October for a hernia repair with general anesthesia. Two days after the surgery, I started having frequent PACs along with the PVCs. I started magnesium taurate in December and it has almost totally eliminated the PVCs, and the PACs eventually went away. In January, I met with my EP and complained about feeling generally spacey and low energy with a persistent, mild headachy feeling. I had experienced this for some time, but always attributed it to the afib. But since this feeling persisted after my rhythms were relatively OK, I was thinking it was medication side effects. My EP agreed and had me hold 2 doses of dofetilide to see it that helped. After holding the second dose, I went into afib, but converted to NSR after resuming the dofetilide. Next, I tried holding the diltiazem and after 2 days, I felt better, but then the PACs and SVEs came back with a vengeance (I have a Kardia). So now I remain on dofetilide, metoprolol, and diltiazem. I am doing well rhythmically, but still have the spacey, crappy feeling that I think is medication related. My EP said that he would do a second ablation if I want to get off of the meds. I don't want to do anything this summer, because I want to enjoy the season. He said he could do another radio frequency ablation this fall or if I wanted to wait, the pulse field ablation would be available this spring. I have some decisions to make. Sorry for the lengthy diatribe. I appreciate this site.

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@aczanc

Do you know the best doctor for atrial fibrillation and high blood pressure management?

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No not unless you live in Manhattan Kansas then that would be Dr Thapa with
Stormount Vail

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@wornout

Good Morning,
Last month my wife who has been very fortunate to have had good health all of her 76 years. Last month she complained of strange sensations in her chest and arms ( a tingling sensation) I took her to the ER and with the test they performed they found a glitch in EKG. We were able to see the Cardiologist in two weeks where he scheduled both an Echo and Stress test. Both of those test came back as good. I asked him to do a Halter Monitor 24 hr. Test. That came back showing that SVT was present, in the last couple of weeks she has had to deal with extreme anxiety / panic attacks. We do have appt. With an electrophysiology professional next month. The real issue is finding professionals to treat the anxiety / panic attacks.
I’m willing to take her wherever to get treatment.

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Look at next post it’s not typed out to well it was 3am when I answered it I’m sorry but I was hoping to be helpful hopefully you can read a little between the lines I’ll wait till I am a little more awake next time maybe then it will make sense to someone 😂😂🙏

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Do you know the best doctor for atrial fibrillation and high blood pressure management?

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Take her to a local mental council f office she not mentally I’ll but they can maybe give her a medication to help with her anxiety and panic attacks these are caused by stress
They will help her if she asks for help and three is nothing wrong with asking for help for something
I’m sorry she is going threw this and get the help she needs sending love ❤️ to you both let me know how things go my friend

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Good Morning,
Last month my wife who has been very fortunate to have had good health all of her 76 years. Last month she complained of strange sensations in her chest and arms ( a tingling sensation) I took her to the ER and with the test they performed they found a glitch in EKG. We were able to see the Cardiologist in two weeks where he scheduled both an Echo and Stress test. Both of those test came back as good. I asked him to do a Halter Monitor 24 hr. Test. That came back showing that SVT was present, in the last couple of weeks she has had to deal with extreme anxiety / panic attacks. We do have appt. With an electrophysiology professional next month. The real issue is finding professionals to treat the anxiety / panic attacks.
I’m willing to take her wherever to get treatment.

REPLY

Oh wow I’m sorry to hear that now you have to wait longer
I always call mine or send a message to see that they do mine I’ve had that happen to before
Just to be sure it gets done about 2/3 days after I see them
I’m going to see my sister tomorrow she has Crones and it’s so sad I’ve been watching her slowly die over the years she’s been real sick Thad 6 months and she’s young she just 50 years old it makes me cry after seeing her she’s just wasting away
She’s down to about 80/90 pounds it’s a very nasty illness bi joined Mayo Clinic group for crones to see if I could get any information that could help her there’s no cure for her she will die from it breaks my heart ♥️
I love her so much well it’s like 2:30 am keep in touch hun let me know what happening I will do the same it’s nice to have you to chat with message me any time you want to or need talk to someone ❤️🙏😎

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@danab

Hi Deborah, just checking in, were you able to get scene about you blood pressure problems? Were you successful in getting that cardio appointment?

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Hi I went to my nurse practitioner, and she forgot to sent a request to see the cardio dr. So hopefully she will do that.

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I have an appointment in may so I will see how that goes have a great day my friend ❤️😎

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