Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@doclarrea

Hi. I’m happy to be here. I’m a 68 year old retired RN. I have been diagnosed with PSVT (paroxysmal Supra ventricular tachycardia) 6 months ago. I am on propane one 150 three times a day and bisoprolol 2.5 mg daily. I joined because I am considering an ablation to terminate the pills.

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Is there anything in particular you would like some help with, or to know, doclarrea? Welcome to the forum.

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Sajjad, I had a Pacemaker/ Defibrillator installed 2015 and it's shocked 16 times. I've had 7 ablations and recently an A V Nobe ablation. You may need an ablation in the future. Don't be scared to have it done, many people have great results.

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I have defibrillator installed in My chest last four month it fired twice very scary experience.
Anyone similar experience and good advice will be appreciated what to do in my situation.
I am 52 years old it's been hard going since I been diagnosed to have heardretre ventricular tachycardia irregular heart beat.
I will really really someone had similar experiences to guide me through.
Kind Regards
Sajjad Ahmad

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Hi. I’m happy to be here. I’m a 68 year old retired RN. I have been diagnosed with PSVT (paroxysmal Supra ventricular tachycardia) 6 months ago. I am on propane one 150 three times a day and bisoprolol 2.5 mg daily. I joined because I am considering an ablation to terminate the pills.

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@jamesgallenstein

Thank you gloaming. I had my Pacemaker tweaked today after fainting at home, I feel better already.

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Excellent, James. It is so reassuring when something simple makes all the difference.

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@gloaming

IF you don't feel well....generally...you may need a diagnostic run on your pacemaker. Their settings sometimes need tweaking, and maybe that's where you are. Consult your cardiologist or electrophysiologist.

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Thank you gloaming. I had my Pacemaker tweaked today after fainting at home, I feel better already.

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I plan to talk to cardiologist - have been waiting for them to contact me about the results but will not wait much longer, will be calling them!

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@carculmer

Hi, new here. Have had AFib for years and last summer fleccainide stopped working and was put on amiodorone and told I needed an ablation. On a list for probably February. Had a “routine” echo two weeks ago that showed mild pulmonary artery hypertension. This is scary- dr has not gotten back to me yet about this. I’m wondering if the amiodorone is causing this??? (Also had a cat scan the same day and no results from that yet)

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Maybe. Maybe something else that is going on that amiodarone can't affect or has no 'encouraging' effect. Something that was already there, undetected, or would have appeared about now without the amiodarone....if you follow. There's no way to know unless they had purposefully assessed your PVH before prescribing the amio.

Obviously, with you now on amio, and with some mild PVH, your cardiologist/pulmonologist is going to keep a close eye, possibly requiring a monthly or bi-monthly assessment...or should.

Why not call and ask? If it were me, I'd be fully on top of what is coming down the pipe, be it prescribed or idiopathic.

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I just googled, which you can do, the side effects of amiodorone. Usually I copy them and post here, but the list was too long. When donkeys fly, I would swallow one.

I deal with my health problems by trying to get to root cause and eliminate. For afib, I had to give up coffee, coffee ice cream, anything with caffeine. For your hypertension, I would eliminate or greatly decrease meat and cheese, and processed foods.

Better than icky meds and scary treatments.

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Hi, new here. Have had AFib for years and last summer fleccainide stopped working and was put on amiodorone and told I needed an ablation. On a list for probably February. Had a “routine” echo two weeks ago that showed mild pulmonary artery hypertension. This is scary- dr has not gotten back to me yet about this. I’m wondering if the amiodorone is causing this??? (Also had a cat scan the same day and no results from that yet)

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