Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@janets

The Nepal trip sounds like a lot to take on with Afib, medications, and a recent hip replacement. I would suggest that you use a device (e.g., Apple Watch) that monitors your heart rate, detects Afib, oxygen levels, etc. so that you know what is going on when you are training. And of course, get clearance from your cardiologist. In the past, I had a lot of difficulty running when I was put on a beta blocker for PVCs. What would concern me more is that you may not be within reach of medical care if you have a problem when you are trekking in Nepal.

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Thanks for this. Funny you should mention a device for monitoring those things - I literally was looking into those when your message arrived, for the exact reasons you stated.
Not worried at all about the hip - it's doing well. I had a knee replacement some years back and have done 2 Nepal trips with it without a problem so am confident I can assess its readiness by next October.
My cardiologist tends to give me about 5 minutes of his time and just doesn't seem to understand that not everyone wants to live a sedentary lifestyle. When I saw him for hip surgery clearance and mentioned a future trekking trip he said I should take up swimming instead because of the hip and didn't even mention my heart! I really would like to find a cardiologist who has experience with this type of activity.
You make an excellent point about remoteness, but that is a factor for everyone doing these trips - there is always the risk of a problem (altitude sickness, injury, etc) and turning back or even helicopter rescues are quite common. I guess my risk would be somewhat higher due to AFib. From what I've read I might need a slower schedule in order to acclimatize going up; we are always very particular about that but would need to be even more so.
Sorry but I'm not familiar with PVC.

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@otiswinston

Hi. My name is Doug. I'm 70 years of age and was diagnosed with AFib a year ago. I'm on Eliquis, Bisoprolol and Flecainide and these seem to control my condition very well. I am usually very active although not much in the past year to to hip problems, but after a hip replacement 4 months ago I am just getting back on my feet. I'm hoping to do another multi week trekking trip in Nepal which would include altitudes up to 5,000 metres (16,000 feet). My last Nepal trip was in 2019 and I handled the heavy exertion and altitude quite well after training hard, but that was pre-Afib. However the new meds have slowed my heart rate considerably and I'm not sure how realistic this is. I'm thinking with my "pump" running at a lower speed it could be pretty difficult doing this sort of trip again. Would welcome any thoughts from others.

Jump to this post

The Nepal trip sounds like a lot to take on with Afib, medications, and a recent hip replacement. I would suggest that you use a device (e.g., Apple Watch) that monitors your heart rate, detects Afib, oxygen levels, etc. so that you know what is going on when you are training. And of course, get clearance from your cardiologist. In the past, I had a lot of difficulty running when I was put on a beta blocker for PVCs. What would concern me more is that you may not be within reach of medical care if you have a problem when you are trekking in Nepal.

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@windyshores

Honestly? Can you take up hiking at sea level altitudes?! Do you have tachycardia or shortness of breath or chest pain with your afib? Is it continuous?

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I do hike at sea level too but it doesn't hold a candle to the Himalayas. I actually don't know if I have tachycardia but I don't have any chest pain and so far no shortness of breath. My Afib seems to be well controlled with my meds so far and the only time I notice it is if I have a bit of alcohol.

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@otiswinston

Hi. My name is Doug. I'm 70 years of age and was diagnosed with AFib a year ago. I'm on Eliquis, Bisoprolol and Flecainide and these seem to control my condition very well. I am usually very active although not much in the past year to to hip problems, but after a hip replacement 4 months ago I am just getting back on my feet. I'm hoping to do another multi week trekking trip in Nepal which would include altitudes up to 5,000 metres (16,000 feet). My last Nepal trip was in 2019 and I handled the heavy exertion and altitude quite well after training hard, but that was pre-Afib. However the new meds have slowed my heart rate considerably and I'm not sure how realistic this is. I'm thinking with my "pump" running at a lower speed it could be pretty difficult doing this sort of trip again. Would welcome any thoughts from others.

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Honestly? Can you take up hiking at sea level altitudes?! Do you have tachycardia or shortness of breath or chest pain with your afib? Is it continuous?

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Hi. My name is Doug. I'm 70 years of age and was diagnosed with AFib a year ago. I'm on Eliquis, Bisoprolol and Flecainide and these seem to control my condition very well. I am usually very active although not much in the past year to to hip problems, but after a hip replacement 4 months ago I am just getting back on my feet. I'm hoping to do another multi week trekking trip in Nepal which would include altitudes up to 5,000 metres (16,000 feet). My last Nepal trip was in 2019 and I handled the heavy exertion and altitude quite well after training hard, but that was pre-Afib. However the new meds have slowed my heart rate considerably and I'm not sure how realistic this is. I'm thinking with my "pump" running at a lower speed it could be pretty difficult doing this sort of trip again. Would welcome any thoughts from others.

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@mayangel

Hi. I am a 72 year old woman who has had two cardio versions and one heart ablation. I was started on Tykosyn in December of last year. I understand about the importance of taking it on time however I realized I missed my morning dose when I went to take my evening dose. I missed another dose completely about two months ago. Do I need to inform my doctor of this?

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I am on dofetilide (Tikosyn) and I have accidentally missed a dose before. Don't try to make up the missed dose. Just take your next dose at the usual time. If you did not experience any effects of missing the dose, I would not worry about informing your physician. Just my opinion. It's up to you. I have a pill box that allows me to set up my meds for the week. I find this really helpful since I take a few different meds, some in the morning and some in the evening.

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Hi. I am a 72 year old woman who has had two cardio versions and one heart ablation. I was started on Tykosyn in December of last year. I understand about the importance of taking it on time however I realized I missed my morning dose when I went to take my evening dose. I missed another dose completely about two months ago. Do I need to inform my doctor of this?

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Keep on keepin' on, ChayahAnne. It's worth it, from the sounds of your 'voice'.

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Hello everyone. My name is CjayahAnne. I'm new to tthe group. I'm 77 years old. I started having abormmal heart rythms sincce I was in my 30's. I was given Inderal 10mg 3 times a day. It seemed to help me. but I started having anxiety aand panic attacks constaantly worrrying about my heart. Even with this I had two son's and held ddown a job as a privaate duty nurse. In my 60's I had my firsst A-Fib attack I felt I was dying. I waas taken to the ER. they hooked me up to a monitor and did blood tests, ECG etc. After this experience I had more frequent attacks. Finally the caardio doc put me on Flecainide 50mg twice a day along with Inderal aboout 80mg a day plus Valium. Since then I've been in aand out of ER and sometimes admitted for abservation. I've had Echo's, Stress Tests. I do have a form of heart failure although ejection fract is within normal limits. I reached my 70's with alot of anxiety due to heart synptoms. I had tacy brady was bed ridden felt weak all the time aand scared. The Flec was not helping me aaand I develped tinngling in feet aand legs' neuropathy from the Flec. I haad nerve damage. Finally in December 2022 I had a pace maaker put in mychest. Everything went wrong the cardio doc puncrureed my lung. I was in the hospital seven weeks paart of that time flaat on my back with oxyen mask on around the clock. I'm home now but don't feel well still get A-Fib. Feel weak. I am working with a P T who comes to my home twice a week my legs are getting stronger but I live in feaaar. My paace maker area still aches worried that my body may be rejecting it. Still on Flec twice a day aand 80 mg Inderal. My feet are somewhat swollen which I never had before. I have a nuirse that comes to check on me twice a week. Also have a EKG everyweek in my home aand chest x-rays in tthe home. I never knew they could do chest x-rays in the home but they can. My BNP goes up aand down aaalso have labs in the home. I'm a firm beliveeer in God aaand wouldn't mind spending the rest of my life in the home with my husband and my family plus my little dog Ariel. I enjoy some televiision aand doing genealogy research. Also listening to audio books as I have a vision problem. Just pray to have less symtoms. Thank you. Sinceerrely your frieend ChayahAnne

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@afibguy

Hello all. I have been "lurking" here for a while now. Here is my story. I am a 68 year old male in pretty good health. I lift weights, ride my bike, and walk daily. In the summer of 2020, I started experiencing "thumping" in my chest and felt tired all of the time. In October 2020, I was diagnosed with persistent atrial fibrillation. I got an EP and he put me on flecainide for rhythm control and did a cardioversion. I went into NSR, but it only lasted for about a week. Since I was not too symptomatic at that time, my EP dc'd the flecainide and started metoprolol for rate control. He later added diltiazem. I did OK for a while, but I hated the meds. They made me feel almost as bad as the afib. In May of 2021 I went to the hospital to start dofetilide (Tikosyn). I went into NSR after the second dose. I remained in NSR for about a year, but then I started having increasingly frequent break through afib episodes. These episodes were pretty intense, and I was very symptomatic (strong palpitations, shortness of breath, anxiety, etc). So, I had a radio frequency ablation done in June of 2022. The ablation really helped the afib a lot, although I had some SVEs and frequent PVCs afterwards. The SVEs started calming down over the summer until I had abdominal surgery in October for a hernia repair with general anesthesia. Two days after the surgery, I started having frequent PACs along with the PVCs. I started magnesium taurate in December and it has almost totally eliminated the PVCs, and the PACs eventually went away. In January, I met with my EP and complained about feeling generally spacey and low energy with a persistent, mild headachy feeling. I had experienced this for some time, but always attributed it to the afib. But since this feeling persisted after my rhythms were relatively OK, I was thinking it was medication side effects. My EP agreed and had me hold 2 doses of dofetilide to see it that helped. After holding the second dose, I went into afib, but converted to NSR after resuming the dofetilide. Next, I tried holding the diltiazem and after 2 days, I felt better, but then the PACs and SVEs came back with a vengeance (I have a Kardia). So now I remain on dofetilide, metoprolol, and diltiazem. I am doing well rhythmically, but still have the spacey, crappy feeling that I think is medication related. My EP said that he would do a second ablation if I want to get off of the meds. I don't want to do anything this summer, because I want to enjoy the season. He said he could do another radio frequency ablation this fall or if I wanted to wait, the pulse field ablation would be available this spring. I have some decisions to make. Sorry for the lengthy diatribe. I appreciate this site.

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My experience for what it's worth: Healthy guy that exercises and eats smartly. Had mitral valve repair, ablation, and LAAC at 78, 11 months ago. No more AFIB (it can work permanently, hope so). Off of Eliquis after four months by wearing heart monitor for 30 days to check for AFIB. Daily, I now take only 12.5mg metoprolol, 81mg aspirin, and 29% of RDA magnesium (have read that magnesium and moderate exercise help to stay out of AFIB). Had a great surgeon at WakeMed in Raleigh, Dr. Boulton, who did all of the heart stuff. That was key of course.

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