Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Thanks for offering g this group.
My name us Susan. I was an RN for 40 years. Now retired. And now experiencing a bit of a dilemma..... My severe osteoarthritis in spine, knees, wrists... Well controlled with Aleve...at the same time as developing AFib....and being restricted from aleve. Yikes. Feel like I aged 20 years in a month.
Curious what others do, cause I sure know there are many more out there. Thanks to all of you for all your input❤

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@sup7401

Thank you for this site. Appreciate others info. Here is my problem... Have had an irregular heartbeat since pulled out of girls basketball in college. Pvc, svt... Nothing more. Worked 40 years as an RN. Had children. No probs till age 70. Increased palpitations, tachycardia, breathless... Fatigue.
Words you don't want to hear the doctor say during the first 3 minutes of a stress test ..." Shut it down, that's AFib"
A zyo patch turned up several more short episodes. Happy to be put on Eliquis...well except for the high price! My problem is I have severe osteoarthritis, and have lived on Aleve for 20 years... Manages the pain in back and knees fine. Now due to eliquis, I cannot take nsaids. Tylenol does nothing... I feel stuck...help.

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Sorry to hear this; at 78, just started arthritis in both thumbs ( a gardener’s and a sailor’s curse). W/ pacemaker, can take only Tylenol. I feel your pain. Opposable thumbs are fabulous when they’re pain-free and reliable!

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Thankyou for taking the time to reply. I had lost most of my hair prior to medications,then was put on immune suppresent and now heart medication. really appreciate it and i hope you are doing well cheers

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@sup7401

Thank you for this site. Appreciate others info. Here is my problem... Have had an irregular heartbeat since pulled out of girls basketball in college. Pvc, svt... Nothing more. Worked 40 years as an RN. Had children. No probs till age 70. Increased palpitations, tachycardia, breathless... Fatigue.
Words you don't want to hear the doctor say during the first 3 minutes of a stress test ..." Shut it down, that's AFib"
A zyo patch turned up several more short episodes. Happy to be put on Eliquis...well except for the high price! My problem is I have severe osteoarthritis, and have lived on Aleve for 20 years... Manages the pain in back and knees fine. Now due to eliquis, I cannot take nsaids. Tylenol does nothing... I feel stuck...help.

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I completely sympathize with your dilemma. I am in the same situation with Eliquis and NSAIDS. I was also diagnosed with Afib at age 70. Other than having PACs and PVCs off and on throughout my adult life, I have been healthy, have had a good diet and exercised regularly. I did develop degenerative disc disease due to arthritis, which was diagnosed a couple of years before the Afib, after I had pain from my neck down my arm as well as sciatica. NSAIDs always helped control my pain and Tylenol did nothing. (I have also been in physical therapy, had steroid injections in my back, and many other trials of things to control the pain). After being put on Eliquis I had to stop the NSAIDs and it has been very difficult. My cardiologist told me that I could take a low dose a couple of time a week, and I do occasionally but it makes me nervous. One suggestion a PA made was to have the Watchman implanted in my heart. You can stop Eliquis about 6 months after the implant. It sounds appealing but I am very hesitant to have surgery now after having a failed ablation. Maybe someone has experience with this situation and can offer other thoughts.

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@sup7401

Thank you for this site. Appreciate others info. Here is my problem... Have had an irregular heartbeat since pulled out of girls basketball in college. Pvc, svt... Nothing more. Worked 40 years as an RN. Had children. No probs till age 70. Increased palpitations, tachycardia, breathless... Fatigue.
Words you don't want to hear the doctor say during the first 3 minutes of a stress test ..." Shut it down, that's AFib"
A zyo patch turned up several more short episodes. Happy to be put on Eliquis...well except for the high price! My problem is I have severe osteoarthritis, and have lived on Aleve for 20 years... Manages the pain in back and knees fine. Now due to eliquis, I cannot take nsaids. Tylenol does nothing... I feel stuck...help.

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Eliquis and severe osteoarthritis -- it's a problem, for sure. I had relied on prescription NSAIDS for decades when I was diagnosed with Afib and prescribed Eliquis. I stopped taking the NSAID and was immobilized within weeks, finally started taking the NSAID because I reckon it is important for me to keep moving. I've done a a lot of reading about this. The ARISTOTLE study is scary but osteo docs say that if you are on Eliquis, then Celebrex 200 mg once a day with a PPI is the least bad option. I make sure to take it with food. And I re-evaluate my decision frequently -- I'm in the midst of one of those re-evaluations right now. Pretty sure there is no one-size-fits-all answer . . . wishing you well with your decision-making . . .

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@leannestork

Hi there.... as a child always had heart palpatations. Had my third dose of covid jab at age 51 ended up with 17,000 ectopic heart bangs/thuds a day. Medication isn't working so m heart surgeon isn't all that happy.
will see him towards the end of this year. Have other people noticed that if you have dessert it is a fire cracker for it. I mean i used to have this maybe once every few months for the last few years ... 52 now and a little nervous to go to my next heart apt. I am starting to wonder if it has had an effect on losing most of my hair as well bringing on alopecia. all grown back now , starting to lose it again...... just makes you wonder the ripple effect. I never liked the taste of coffee but i do have half a satchet of Aldi Mocha of a morning as this amount doesn't seem to affect my heart compared to a full satchet. Take Care everyone

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Hair lose can be a side effect of some anti-arrhythmia drugs. When I was first diagnosed with a-fib, I was given several different drugs trying to find one that would control it. I finally opted for for an ablation but before the ablation one of the drugs that I took was Amiodarone. I had taken it for a short time only to find my hair falling out. Fortunately when I told my cardiac electrophysiologist, he took me off the drug immediately and my hair stopped falling out. My sister had a friend who lost all his hair from taking Amiodarone. You might check the side effects of the medications you and ask your doctor about it.

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Hi I'm Yvonne and am 58. I had aspiration pneumonia with sepsis last summer and still finding 02 sats are all over. But the past few months, I've noticed that where my resting heart rate used to be 75 or 80, is now around 50.
I also noticed when my heart rate is low, my 02 sats are a good 98.
When my heart rate is having a normal day at 70 or 80 my 02 dips to 92.
My gp finally had me set up with a halter monitor yesterday. What causes a heart rate to fall to 50 for a few days, back to normal a few days and back down?
I've had an echo done and they said it was perfect. Anyone? The heart thing is new to me.

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Thank you for this site. Appreciate others info. Here is my problem... Have had an irregular heartbeat since pulled out of girls basketball in college. Pvc, svt... Nothing more. Worked 40 years as an RN. Had children. No probs till age 70. Increased palpitations, tachycardia, breathless... Fatigue.
Words you don't want to hear the doctor say during the first 3 minutes of a stress test ..." Shut it down, that's AFib"
A zyo patch turned up several more short episodes. Happy to be put on Eliquis...well except for the high price! My problem is I have severe osteoarthritis, and have lived on Aleve for 20 years... Manages the pain in back and knees fine. Now due to eliquis, I cannot take nsaids. Tylenol does nothing... I feel stuck...help.

REPLY

Hi there.... as a child always had heart palpatations. Had my third dose of covid jab at age 51 ended up with 17,000 ectopic heart bangs/thuds a day. Medication isn't working so m heart surgeon isn't all that happy.
will see him towards the end of this year. Have other people noticed that if you have dessert it is a fire cracker for it. I mean i used to have this maybe once every few months for the last few years ... 52 now and a little nervous to go to my next heart apt. I am starting to wonder if it has had an effect on losing most of my hair as well bringing on alopecia. all grown back now , starting to lose it again...... just makes you wonder the ripple effect. I never liked the taste of coffee but i do have half a satchet of Aldi Mocha of a morning as this amount doesn't seem to affect my heart compared to a full satchet. Take Care everyone

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Wishing you the best , I know you’ll be ok but of course anyone would be nervous .
I take Heart Calm triple magnesium to calm my pvcs .
http://www.vitalbiologics.com
Look into it .
I have Gastro Cardiac Syndrome, many gastric disorders.

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