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Heart Rhythm Conditions – Welcome to the group

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Feb 14, 2018

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

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richard54 | @richard54 | Apr 11 10:29am

Hello, I'm from Arkansas, and I was diagnosed with Afib mid March this year and currently on eliquist. Also have anemia and Kidneys were in stage 4 failure. Kidneys have recovered somewhat and Doc thinks will get back to my normal. Now am trying to figure out with condition to address first. other symptoms are shortness of breath when walking and exertion,

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gloaming | @gloaming | Apr 10 11:06am
In reply to @gloaming "@veronica0127 Thanks for chiming in. When I wrote that a few weeks back, it was three..." + (show)
Profile picture for gloaming @gloaming

@veronica0127 Thanks for chiming in. When I wrote that a few weeks back, it was three years after my second ablation. It's a long story, but my first failed drastically inside of six days and I had to be in the ICU and put on amiodarone. Second ablation seven months later worked, and I have been free of AF ever since. The three ablations back-to-back were about six weeks before the second ablation....none of them kept me in NSR for more than a short reprieve.

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@gloaming Oops, in that referenced post of mine, I keep saying 'ablations', but I meant 'cardioversions'. It was cardioversions that failed to convert me to NSR. The second of two ablations worked. Sorry for the mix-up.

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gloaming | @gloaming | Apr 10 11:04am

Yes, Dr. Paul Novak at Pulse Cardiology in Victoria, British Columbia. The procedures by all EPs on Vancouver Island are done at Royal Jubilee Hospital in Victoria's cath lab. Novak was the top candidate for cardiology by the Canadian Cardiology Association in 2002 (if I have my facts recollected correctly). So, even though I was in that unlucky 25% for the index ablation, I felt we both owed each other a second stab at it...so-to-speak. 😀

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labexperiment | @labexperiment | Apr 10 8:40am
In reply to @gloaming "@veronica0127 Thanks for chiming in. When I wrote that a few weeks back, it was three..." + (show)
Profile picture for gloaming @gloaming

@veronica0127 Thanks for chiming in. When I wrote that a few weeks back, it was three years after my second ablation. It's a long story, but my first failed drastically inside of six days and I had to be in the ICU and put on amiodarone. Second ablation seven months later worked, and I have been free of AF ever since. The three ablations back-to-back were about six weeks before the second ablation....none of them kept me in NSR for more than a short reprieve.

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@gloaming Did the same EP perform all your procedures?

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gloaming | @gloaming | Apr 9 1:11am
In reply to @veronica0127 "@gloaming Maybe an ablation might be better ? Get 2 opinion ask questions Best wishes" + (show)
Profile picture for veronica0127 @veronica0127

@gloaming
Maybe an ablation might be better ?
Get 2 opinion ask questions
Best wishes

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@veronica0127 Thanks for chiming in. When I wrote that a few weeks back, it was three years after my second ablation. It's a long story, but my first failed drastically inside of six days and I had to be in the ICU and put on amiodarone. Second ablation seven months later worked, and I have been free of AF ever since. The three ablations back-to-back were about six weeks before the second ablation....none of them kept me in NSR for more than a short reprieve.

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2 replies
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veronica0127 | @veronica0127 | Apr 8 4:25pm
In reply to @gloaming "@onesassygirl I had a cardioversion three days in a row at my local ER. None of..." + (show)
Profile picture for gloaming @gloaming

@onesassygirl I had a cardioversion three days in a row at my local ER. None of them worked to keep me in normal sinus rhythm longer than 16 hours, but I had them....three, back-to-back.

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@gloaming
Maybe an ablation might be better ?
Get 2 opinion ask questions
Best wishes

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1 reply
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veronica0127 | @veronica0127 | Apr 8 4:20pm
In reply to @oumike "Hello. I have AFiB (Brady); on Eliquis since 2014 with no problems with it and am..." + (show)
Profile picture for OUMike @oumike

Hello. I have AFiB (Brady); on Eliquis since 2014 with no problems with it and am experiencing more and longer AFiB incidents and have flutter on occassion. My EP recommends Pulsed Field Ablation. I will be getting a 2nd opinion on the pros/cons of PFA in April at Rochester.
Q: Would appreciate an overview from someone who has had this procedure and the time after it to recover, drive and exercise again. Thank you.
Blessings to all,
OUMike

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@oumike I just had a pulse ablation and watchman 3 weeks ago.
I feel ok take it easy follow instructions. One thing that did not tell me you will have higher heart rate afterward for 3 months. For the last 4 days when I walk around the house it goes up to 119 or when I walk a mile 115 it does go back to normal. I just feel a little tired no other symptoms. It is the new normal for now. Great getting second opinion. The procedure was great.
Let me know how it goes. Best wishes

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beakay | @beakay | Mar 20 9:53am
In reply to @texas7777 "I\'m 44 yr old. My problems started about 2 yr ago when I started getting dizzy..." + (show)
Profile picture for Buc7777 @texas7777

I\'m 44 yr old. My problems started about 2 yr ago when I started getting dizzy while driving (having to pull over and then completely stop driving for awhile. Tons of tests and very worried about a brain tumor (I\'ve had malignant melanoma cut out). First find (MRI) was a terrible sinus problem; 110% blocked :). 2nd find was about 8,000 PVC\'s/day. I have felt weird heart beats for 20 years, but... Got sinus surgery done and started taking Metoprolol Succinate(15 mg/d). Literally overnight, I woke up rested for the 1st time in about 10 years and 100% of my issues went away (except for still being able to feel my PVC\'s). I\'m now \"sinus clear\" and taking a 1/2 of toprolol/day. My heart doc is awesome, but I\'m lucky to have a cousin who\'s a cardio. at Duke. She\'s been reviewing everything (halter monitor, recommendations, etc.) and says (like my hometown cardio.) that all is well. That PVC\'s are not destructive, just a nuisance. I\'m in good shape (not running shape :), I\'ve never smoked/done drugs, but drink lots of coffee and a lil\' bit of Lone Star Beer! You have to drink Lone Star in Texas while BBQing... it\'s the law.

Luckily, for now, I don\'t have 1/100th of the issues that others are dealing with in regards to their heart; prayers go out to all of you. The joys of getting old...er!
WE PRESS ON...

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@texas7777 the only thing I have is kinda like yours that can’t find anything wrong I have passed out due to low b/p um just had heart cath heart is in good great shape and still have the same symptoms but now I have a subclavian steal blockage on right side but won’t do anything say have had it for long time. Just wish could resolve all my problems seem to relate to a condition but which one. I’m a DIEBETIC with A1c of 5.2 just in awe have nurapathy bad also

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