Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@gloaming

Hi there. I was a competitive runner, snowshoer, and did a lot of hard cycling. I was in the Canadian Armed Forces for 30 years, always fit, well-looked after for dental hygiene and general health, always vaccinated before deployments oversees. I developed atrial fibrillation (AF) suddenly near the end of a 10 km maintenance run. Long story short, I had all the usual tests, none turned up anything. The last diagnostic left in the list was an overnight sleep lab ( a polysomnography with a gazillion leads and machines blinking at me all night. Fortunately, I slept well for about six hours). Or....so I thought. The result that was fed to me ten days later was that I have severe sleep apnea. Who knew?!

Is your arrhythmia determined yet? Chances are that it is either PVCs (premature ventricular contractions(, PACs (premature atrial contractions), or AF. It might also be SVT, or supra-ventricular tachycardia, but the tachyarrhythmias are still in sinus rhythm...they're just quite a bit faster than necessary, often well above 130 BPM even at rest. A Holter monitor worn for several days, or a loop recorder, or maybe even an ECG while your heart is acting up one day, will determine which of those it is.

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I appreciate all the information and sites that you have posted. This one really hit home for me. I have had all the tests, too, and nothing is popping out other than being told my heart beats too fast. I had the sleep apnea test two days ago. I will not get the results for a couple of weeks. Please tell me how solving the apnea problem has helped you with the heart issues.
Thanks,
Dana

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@rapiddescent

Female, age 67. Married 41 years (to the same guy) a daughter, 39, and son 35. Avid runner, lap swimmer, weight lifter. Pescatarian. Sober alcoholic. 5'-5" tall, 127 lbs. Recent health issues have me confounded, high cholesterol, irregular heartbeat, slow resting heartbeat. I'm somewhat frustrated when my lifestyle isn't effectively protecting me from these issues. Landed here during random internet research.

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Welcome! I've been learning a lot from this group. I am turning 81 in January and have lived a similar active life. I let my three mile a day habit lapse when I moved to a desert house in southern Utah. I thought the five or six mile hikes were a good replacement. Then I stopped the hikes -- too hot, too early, etc. I thought my weekly pilates, yoga, and aerial yoga was enough. I developed all your same health concerns. I had a bunch of tests on a bunch of machines. Then meds prescribed and taken. I was still lethargic and fuzzy headed. I am now feeling better because we acquired an Aussiedoodle puppy -- a wild woman dog who requires a two to three mile walk on the desert every morning. I think I have found my cure...back to that daily workout to start the day. That probably isn't your answer, but thought you should know you aren't alone in the frustration of living actively, eating healthily and not getting rewarded as well as you should be. But, then again, I look at other 80 year olds and count my blessings.

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I have AFib and have made a list of “do nots” to keep the palpitations at bay. If I have missed a point I would appreciate hearing from you. I am booked for an ablation in 6 to 8 months.
-keep head propped up in bed
-no caffeine
-no alcohol
-stay on beta blocker - sotolol
-stay on blood thinner - Xarelto
- no strenuous exercise
- continue be tested by cardiologist

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@rapiddescent

Female, age 67. Married 41 years (to the same guy) a daughter, 39, and son 35. Avid runner, lap swimmer, weight lifter. Pescatarian. Sober alcoholic. 5'-5" tall, 127 lbs. Recent health issues have me confounded, high cholesterol, irregular heartbeat, slow resting heartbeat. I'm somewhat frustrated when my lifestyle isn't effectively protecting me from these issues. Landed here during random internet research.

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Hi there. I was a competitive runner, snowshoer, and did a lot of hard cycling. I was in the Canadian Armed Forces for 30 years, always fit, well-looked after for dental hygiene and general health, always vaccinated before deployments oversees. I developed atrial fibrillation (AF) suddenly near the end of a 10 km maintenance run. Long story short, I had all the usual tests, none turned up anything. The last diagnostic left in the list was an overnight sleep lab ( a polysomnography with a gazillion leads and machines blinking at me all night. Fortunately, I slept well for about six hours). Or....so I thought. The result that was fed to me ten days later was that I have severe sleep apnea. Who knew?!

Is your arrhythmia determined yet? Chances are that it is either PVCs (premature ventricular contractions(, PACs (premature atrial contractions), or AF. It might also be SVT, or supra-ventricular tachycardia, but the tachyarrhythmias are still in sinus rhythm...they're just quite a bit faster than necessary, often well above 130 BPM even at rest. A Holter monitor worn for several days, or a loop recorder, or maybe even an ECG while your heart is acting up one day, will determine which of those it is.

REPLY

Female, age 67. Married 41 years (to the same guy) a daughter, 39, and son 35. Avid runner, lap swimmer, weight lifter. Pescatarian. Sober alcoholic. 5'-5" tall, 127 lbs. Recent health issues have me confounded, high cholesterol, irregular heartbeat, slow resting heartbeat. I'm somewhat frustrated when my lifestyle isn't effectively protecting me from these issues. Landed here during random internet research.

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@bextruelove

I consistently have a HR when sleeping/lying down of 40 bmp, and occasionally, even 30 bpm. I have PVCs and have had SVCs, as well. I'm on Flecainide to help with the arrhythmia. My EC said that it's probably normal for my resting heart rate to drop and wasn't very concerned. I dunno. Have been hospitalized twice for my HR when it was 220. My usual resting HR is around 62. Feel confused as well.

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It's always a little anxiety-inducing to have something new crop up when it relates to your heart. My mother had and my sister has the racing heart issue. I just had an irregular heart beat, but never a real high heart rate. I was on Flecainide and Diltiazem for quite a while before my ablation. Recently, I was mostly concerned because my low heart rate had been in the mid 50s, then over the last couple days it's dropping into the low 40s. I'm keeping an eye on things. All the best to you!

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@gloaming

In a heart that is working nominally, properly, a low heart rate is generally...not absolutely, but generally...nothing to be alarmed about. Many of us have low HR when resting, especially when asleep (but not when in REM sleep where our bodies can twitch, rapid eye movement, and we can moan or groan or utter unintelligible words and our heart rates can rise into the low 100's). If you are on a beta-blocker or calcium channel blocker, and your heart rate is under 50 much of the time, it might be an indication that your prescription needs a rethink, or at least a gander by the prescribing authority to confirm that the dose is correct. Things change, a heart becomes more efficient, gets better, less irritated, and then the current dose of BB can be too much. But, apart from keeping a record of daily/waking HR and BP, and looking for a trend toward lower numbers, I wouldn't worry for a second if my HR were at or above 40, and I felt good.

NB- Do be a bit more careful rising out of chairs and from the table, getting out of the vehicle, and arising from a prone/supine position getting out of bed. Take extra care to breath deeply two/three times, scootch your bum left and right, get some blood pressure up, and then slowly rise. Have a bail-out plan if you find yourself seeing spots and feeling lightheaded; be prepared to fall backwards, trying to keep your butt low to improve the distance you must fall if fall you must. Try also to keep your chin tucked toward your chest in case you fall back and slam a bit. Don't want a brain concussion as well as a sore butt/back.

Congratulations on a successful mitral valve repair. I think your heart is feeling improved and happier, and it needs to pump less forcefully. Assuming you aren't on any medication that might slow the heart or reduce its stroke volume, which beta-blockers will do, just keep an eye and if it gets worse, call a cardiologist right away.

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Thank you for the response, it's very helpful. I was mostly concerned because my low heart rate had been in the mid 50s, then over the last couple days it's dropping into the low 40s. I'll keep an eye on things. It's always a little anxiety-inducing to have something new crop up when it relates to your heart.

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@gaelgreen

Hi everyone. I'm Gael, a 73 year old woman with a long history of irregular heartbeat, apparently due to aortiv valve regurgitation. I also have hypertension and am taking three medications for it. That said, I have not seen a cardiologist in over five years because my husband and I were caring for my bedbound mother. She died a year ago and then my dear husband died a month later. I am thinking of going to the Mayo clinic nearest me to get all of this checked out. The arrythmia causes me panic attacks and makes it nearly impossible to do the things I want and need to do in life. Does anyone have similar experience? Is there anything that can definitively be done to make life easier with this condition? Thank you for any perspective on this.
Gael

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I am 76. Had irregular heartbeat. Caused by caffeine as some people are extremely sensitive to it. If you are consuming ANY coffee, colas, chocolate, Mountain Dew etc. If you stop, it very well take care of it shortly.

Hypertension can be alleviated by diet. My guess is, you eat too much meat, cheese and other dairy. I take no meds for anything.

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@aard

Greetings all,
Thank you for this group!
I have a family history of atrial fibrillation, mother, father, 2 brothers, and a sister (that's all I know of). I had a cryoablation about 3 years ago and that controlled my a-fib for almost 2 years. When it popped up again, my cardiologists determined that it was because of a leaking mitral valve getting worse, which they have been monitoring for around 5 years. Last April I had a minimally invasive mitral valve repair (they went in between the ribs instead of a sternotomy, put in an annuloplasty ring to tighten the valve and added a couple chordae - it's amazing what they can do these days!). Surgery was successful. I have recently noticed, or think I notice occasional irregular heart beats - not a-fib - and recently am experiencing what I would call bradycardia, with a heart rate around 40 when I am lying down in bed. Wondering if it is something I should be concerned about.

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I consistently have a HR when sleeping/lying down of 40 bmp, and occasionally, even 30 bpm. I have PVCs and have had SVCs, as well. I'm on Flecainide to help with the arrhythmia. My EC said that it's probably normal for my resting heart rate to drop and wasn't very concerned. I dunno. Have been hospitalized twice for my HR when it was 220. My usual resting HR is around 62. Feel confused as well.

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@windyshores

@gaelgreen I also want to mention the book "The Afib Cure," by Day and Bunch. Although its focus is afib some of the suggestions might be helpful to you. Even before reading that book I did some of them: magnesium, low sodium V-8 for potassium, never reclining after eating, lying on my right side, tai chi for stress, breathing and exercise, daily walk and I use simethicone for GI gas. I continue to learn about my triggers. The book also covers "lifestyle factors" like weight, blood pressure, diabetes, diet and so on.

It sounds like your PVC's are so frequent that much of that is not relevant . In any case good luck with a cardiologist!

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Thank you again, Windy. I already do many of them, plus Transcendental Meditation twice a day, which really helps. Thank you for the good luck wishes with the cardiologist. I need them! I hope you are gearing up for a good weekend.

Gael

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