Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Hi all, I just joined the group. I had double open-heart bypass surgery last year followed by a stent because of a difficult replacement of a third one. I am now having an irregular heartbeat with PVCs and a low heartbeat. Question is, has anyone had this problem after having these surgeries and if anyone found that some of the meds they have put you on has caused this problem. I have done some research on this and found that Metoprolol can cause this to happen. Has it happened to you?

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HI, everyone in the Group! I am Kamlesh ,73 years Male from India. I was first diagnosed Sick Sinus Syndrome way back in July 1983 and since than on Medtronic Single chamber Pacemaker. In between I had 5 Redo and, abandoned during 2005 Redo. My 2nd Lead was found raptured after 2022 Redo and battery otherwise projected to last till 2029 is draining. My other parameters and health normal.

I ams scheduled for2nd Lead Extraction which is challenging as dwelling over 22 years. Any exp ,suggestion,welcome

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Gloaming, as a followup to my last post, let me add how much I do appreciate all the valuable information you’ve provided to all of us over time. It’s a huge time investment to provide detailed responses to posts out here so thank you. Best wishes for your good health and your wife’s that you mentioned in another post. Zebra

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Profile picture for gloaming @gloaming

@californiazebra Yes, and it's the same with prostate cancer. The patient is highly more likely to die in a road accident, falling down stairs, or from a bad case of food poisoning than they are to die from prostate cancer. AF is the same. It's hellish for some, quite tolerable for others, and some don't find out they have AF until someone with training looks at them wide-eyed and asks, 'Do you have AF? You're fibrillating right now.' Who knew!?

Once again, though, the sober reality is that uncontrolled/unmanaged AF will cause degradation in heart structure and in heart function over many months or a few years. So, unless someone just doesn't care, it's best dealt with sooner rather than later because the success rates of the various 'remedies' (there is no 'cure' for AF, just palliative management, and this includes ablations) falls as the complexity and advancement of the disorder progresses.

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@gloaming
Hoping to get an ablation soon. Despite the fact that I’ve had at least 150 long afib episodes in the past 5 years, my second opinion EP says if he can find a safe path to my heart (rare venous anomaly) there is a 90% chance he can stop my vagal and PV afib in one ablation. Let’s hope there is a safe path and one and done plays out. I’m one of those very symptomatic people with a multitude of afib triggers.

The first EP told me 2-3 ablations and maybe that will do it, but it will keep coming back and you’ll need more ablations in a couple years. Who would sign up for that (especially since I have trouble with anesthesia)? And he had no plans to do any mapping despite me showing him an MRI report indicating I have a rare venous anomaly as an incidental finding. Definitely get a second opinion.

As for afib not being deadly, that always feels a little misleading to me. If afib can cause a stroke and a stroke can kill you then in my book afib can kill you. If someone fell off a cliff and died, you wouldn’t say the fall didn’t kill her, it was the landing that killed her. You get my point. If a=b and b=c then a=c. Maybe it’s more accurate to say you likely won’t die from managed afib but you very likely could die as a result of unmanaged afib.

In any case, I do think we’re lucky to have solutions. I do agree on treating it. When I had that last TIA with aphasia (could only speak and text gibberish and was alone at night) that was pretty scary and when it started I assumed it was a major stroke starting and this was either curtains or disability. Luckily it stopped in a few minutes but it had some lingering effects. It did light a fire under me to deal with the afib though so something good csme out if it! Best of luck to all! ❤️

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Profile picture for Zebra @californiazebra

@jenrev
That’s a funny story. 😂

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@californiazebra Yes, and it's the same with prostate cancer. The patient is highly more likely to die in a road accident, falling down stairs, or from a bad case of food poisoning than they are to die from prostate cancer. AF is the same. It's hellish for some, quite tolerable for others, and some don't find out they have AF until someone with training looks at them wide-eyed and asks, 'Do you have AF? You're fibrillating right now.' Who knew!?

Once again, though, the sober reality is that uncontrolled/unmanaged AF will cause degradation in heart structure and in heart function over many months or a few years. So, unless someone just doesn't care, it's best dealt with sooner rather than later because the success rates of the various 'remedies' (there is no 'cure' for AF, just palliative management, and this includes ablations) falls as the complexity and advancement of the disorder progresses.

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Profile picture for jenrev @jenrev

@gloaming This is a wonderful explanation/reassurance for a person newly-diagnosed with a-fib. I have had this condition for 30 years + with several ablations and the whole menu of medications, plus a Maze procedure. I am still here, still treating the condition as it changes over time.
@munchkinsmum I will tell you a true story of the day I had my first a-fib episode at age 35. I ended up the hospital, and although my rhythm had corrected itself I was still disoriented and scared. The cardiologist on call came into my hospital room and took my by the hand. I will never forget this. He said, "Look at me." I looked him in the face, and he said, "You are going to die....(and here he inserted a comically long pause)...OF SOMETHING ELSE." I gasped, then laughed. He knew he needed to get my attention, and he had it! And the message is absolutely true. Yes, I will eventually die, but not from a-fib! He became my cardiologist for two decades. And his message has kept me from being desolate and afraid many, many times over the years when my arrhythmias acted up and I didn't feel good. Learn about treatments, trust your doctors, get support, and move on with life. 😉

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@jenrev
That’s a funny story. 😂

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Profile picture for gloaming @gloaming

@munchkinsmum It will not kill you. Period. AF is not a lethal disorder. It can cause deterioration in your heart if it is left unmanaged for long, like years, but it IS NOT A DEATH SENTENCE! So, calmly, and with every reassurance I can give you, I a patient having had AF and having been successfully ablated, you can take a deep breath and figure out how you're going to deal with this annoyance.

Treatment for AF is only ever palliative. It is a permanent condition of the heart once you have a formal diagnosis. It is going to be treated most effectively via a catheter ablation. Meanwhile, your good doctor may want you to try metoprolol or equivalent to keep the heart's rate in check, and maybe an anti-arrhythmic drug (AAD) for the time being. Literally millions across the globe live quite well and contentedly doing only that. An ablation can come later, maybe when it's better timing for you. But do get the ablation before.....BEFORE...your heart progresses to more severe stages such as 'persistent' and 'long-standing persistent.' Ablations, the gold standard of care, must be done as early as possible because they fail more often the more advanced the disorder. Keep that in mind...no ablation necessary just yet, unless it is the best time for you. If now is the best time you'll ever have foreseeably, then maybe consult with an electrophysiologist (EP) soon. If you need to see how things unroll with your caregiving, you can probably afford to wait for several months....probably. Again, consult with a cardiologist and/or an EP, and get on their books as a patient and potential ablatee.

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@gloaming This is a wonderful explanation/reassurance for a person newly-diagnosed with a-fib. I have had this condition for 30 years + with several ablations and the whole menu of medications, plus a Maze procedure. I am still here, still treating the condition as it changes over time.
@munchkinsmum I will tell you a true story of the day I had my first a-fib episode at age 35. I ended up the hospital, and although my rhythm had corrected itself I was still disoriented and scared. The cardiologist on call came into my hospital room and took my by the hand. I will never forget this. He said, "Look at me." I looked him in the face, and he said, "You are going to die....(and here he inserted a comically long pause)...OF SOMETHING ELSE." I gasped, then laughed. He knew he needed to get my attention, and he had it! And the message is absolutely true. Yes, I will eventually die, but not from a-fib! He became my cardiologist for two decades. And his message has kept me from being desolate and afraid many, many times over the years when my arrhythmias acted up and I didn't feel good. Learn about treatments, trust your doctors, get support, and move on with life. 😉

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Profile picture for jrussfam @jrussfam

@jmarsh Hi. I had similar goings on. About 8 years of SVT. No drugs just amlodipine to bring down heart rate/blood pressure. Then I passed out right when one started as I got the drug. Hospital overnight observation for big lump on back of head. So no driving at that point. Ablation was only answer. It was scary waiting, got shingles from stress so another 3 week wait. EP created event, showed Afib and SVT. 6 weeks out, no issues at all but on Eliquis until EP clears me. On Holter monitor now looking for events of any kind. I have felt nothing. Happy it’s over no more SVT. And hopefully no Afib either. Oh , I have Factor V Liden blood issue evidently for my 79 years I wasn’t aware of is one reason he kept me on blood thinner til I get with a hematologist about that. Felt great in 2 days and on with my 79 yr old self. Just my situation, everyone had a different thought. Great info on this site.

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@jrussfam
Thank you for sharing. I see the cardiologist in a couple of weeks, just had the requisite echo yesterday and waiting on the results. We'll see what he says, and I may look to you for more details if a strong case for ablation is made.

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Profile picture for gloaming @gloaming

@jmarsh If you were to ask me what I think of your position on this, I would say I agree with you. Any intrusive intervention carries risk, as do drugs. If you are not taking anything, and you have infrequent AND self-resolving episodes of SVT, then the worst thing you face is those infrequent episodes that fix themselves in an hour or two. No big deal. Once you introduce drugs, there's often a cost, even if it's not immediately apparent. If you undergo an operation, even day surgery, there's a risk (they'll still use propofol at least, and that's not nothing).

Everybody has to determine for him/herself what they're prepared to endure. Discomfort, worry, sleep loss, ruminating, higher blood pressure, more frequent urination, palpitations, breathlessness, maybe some syncope, but also future events that are possible as a result of age-related changes and morphological changes that may come in time due to the strains on the heart. Basically, if you can abide what happens and how it feels at the time, if there's no lasting anxiety, and no other worrying symptoms, dangerous ones, then.....why not let 'er ride?

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@gloaming Thank you very much for your thoughtful comments. I see the cardiologist in a couple of weeks so will see what comes of that. As a PhD medical research scientist, I've developed the habit diving into PubMed at every step of the way. Although I am discriminating in my questions/comments, my primary care doesn't like it at all; his approach is "trust me."

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Profile picture for jmarsh @jmarsh

Just joined. I have infrequent bouts of SVT. This has been going on for decades. They always resolve on their own - except the last one a month ago where I went to the ER. Adenosine push stopped it immediately. And now, for the first time will be seeing a cardiologist. In preparation, I have an echo later today. I have no interest in ablation, mostly because these SVT episodes are very infrequent.

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@jmarsh Hi. I had similar goings on. About 8 years of SVT. No drugs just amlodipine to bring down heart rate/blood pressure. Then I passed out right when one started as I got the drug. Hospital overnight observation for big lump on back of head. So no driving at that point. Ablation was only answer. It was scary waiting, got shingles from stress so another 3 week wait. EP created event, showed Afib and SVT. 6 weeks out, no issues at all but on Eliquis until EP clears me. On Holter monitor now looking for events of any kind. I have felt nothing. Happy it’s over no more SVT. And hopefully no Afib either. Oh , I have Factor V Liden blood issue evidently for my 79 years I wasn’t aware of is one reason he kept me on blood thinner til I get with a hematologist about that. Felt great in 2 days and on with my 79 yr old self. Just my situation, everyone had a different thought. Great info on this site.

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