Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for boopea @boopea

Hello! I’m Boopea, 75 female, married for 55 years (I got lucky!) with 2 kids and 3 grands.
Lucky to live by an ocean and am a retired ECE. Recently been diagnosed with A-fib after having to have a cardiac conversion three months ago. Have been suspicious for some time after having a couple of TIA’s and this proved it. Now on meds and keeping steady, though not really bouncing back as fast as I’d hoped. Waiting for an echo but also planning a cruise with our daughter. Excited but a little nervous about holding her back…
Very nice to meet you all and I’m pleased to find a place I can connect with folk sharing similar conditions.

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@boopea Hello, Boopea. Welcome to you. I agree with hopeseeker22 and urge you to begin a process of discovery on your own behalf. I have had two ablations for AF, diagnosed paroxysmal in June 2017. I am now coming up to three years free of AF due to the completion of what is called a 'pulmonary vein isolation' via catheter ablation. I began intense self-teaching pretty much immediately that I was diagnosed, and have kept up. AF is treatable, but not beatable. It's a progressive disorder, but its progress gets very fast and potentially damaging to the heart the longer it is left untreated. If your meds keep you free from AF, that's a really great place to be. I hope it continues for you, but I also hope you understand that it may not continue to work. If you find yourself slipping a bit into more AF, please read up on catheter ablations, whether radio frequency energy or pulsed field energy. Both have good results in the right hands....so the electrophysiologist is a very important part of your eventual success. Best wishes to you.

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You seem lovely and happy! Good for you. Please just at least Google “Maze Procedure” before any final decisions. Be well!

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Hello! I’m Boopea, 75 female, married for 55 years (I got lucky!) with 2 kids and 3 grands.
Lucky to live by an ocean and am a retired ECE. Recently been diagnosed with A-fib after having to have a cardiac conversion three months ago. Have been suspicious for some time after having a couple of TIA’s and this proved it. Now on meds and keeping steady, though not really bouncing back as fast as I’d hoped. Waiting for an echo but also planning a cruise with our daughter. Excited but a little nervous about holding her back…
Very nice to meet you all and I’m pleased to find a place I can connect with folk sharing similar conditions.

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Profile picture for carlybull1 @carlybull1

They did every test there is I think.
It was finally a Holter Monitor.

Good Luck

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Thanks!

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Hello and nice to meet you. 7 mo ago I was passing out regularly. In and out of the hospital a few times and nothing.
Finally hooked me up to a Holter Monitor over night.
28 second Pause.
Still get light headed on occasion.
Has anyone experienced short term memory since receiving the pace maker?
If it possible that passing g out so often and lack of blood to the brain could cause this.
I had no issue before this.

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Hello and nice to meet you. 7 mo ago I was passing out regularly. In and out of the hospital a few times and nothing.
Finally hooked me up to a Holter Monitor over night.
28 second Pause.
Still get light headed on occasion.

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Profile picture for carlybull1 @carlybull1

Yes! Was starting to think I had Dementia or Alzhiemers.

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What did you do?

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Hi everyone. My name is Emily. I survived 3 cardiac arrests after turning 22 and was diagnosed with Long QT Syndrome. I’m currently enrolled in a study at the University of Rochester studying this problem. I have a Medtronic ICD implant and take Metoprolol to help manage my condition. Anyone else have Long QT?

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Profile picture for dalebout123 @dalebout123

What is the test for Sick Sinus Syndrome?

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They did every test there is I think.
It was finally a Holter Monitor.

Good Luck

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Profile picture for dalebout123 @dalebout123

What is the test for Sick Sinus Syndrome?

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After many tests, it was finally a holter monitor overnight.
Caught a 28 second pause.

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