Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

I would wake up at 2:30 in the morning with what felt like an electrical circuit racing around my heart. It would go away once I was up. I went to the ER at the local hospital and they would check me out and not see anything. I wore a Holter monitor and nothing. I read one of the posts here that described perfectly what I was going through and that was the vagus nerve acting up. Now, I take a deep breath into my abdomen and hold it and the symptoms fade away and I go back to sleep.

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https://pubmed.ncbi.nlm.nih.gov/40458324/
I am not learned on HF of any kind, but the citation above suggests you might respond well to 'cardio-rehab', which some hospitals offer.

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Thank you for welcoming me to this group. Ive delt with AFIB for quite some time but after my third ablation at Rochester I’m truly enjoying life without all of the numerous issues related to AFIB . I was at my wits end and so greatfull for Dr Kapa and staff at Mayo.
However after going back to “normal” I became aware of shortness of breath I wasn’t used to I was unaware of because of the AFIB symptoms. I’ve been diagnosed with Heart Failure with Preserved Ejection Fraction. ((HFpEF). I believe The drug Farxiga is having a positive effect and I believe I’m getting better but to what end I’m not certain of. I’m curious if others are experiencing anything similar and hoping you all are benefiting from services at this wonderful facility. Bob

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Profile picture for Leeman25 @leeman25

@kjhunt
I had Afib which lasted 10-12 hours, pounding, until I had an Ablation. Do you have access to an Electro-Cardiologist?

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@leeman25 I’m sure my family doctor can set me up. Seeing him next week.

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Profile picture for kjhunt @kjhunt

Hello all. Have had aFib most of my life. 57 yo now. It’s gotten worst. Lots of episodes. Am wondering if this condition, if anyone has had to take leave from work or use health insurance to be away from work to deal with getting better. Plus I think it’s work related stress that brings on my episodes. The medications really knock me on my ass.

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@kjhunt
I had Afib which lasted 10-12 hours, pounding, until I had an Ablation. Do you have access to an Electro-Cardiologist?

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Profile picture for jovi45 @jovi45

I have hypothyroid I take synthroid I also have has arrithmas for several years . My heart missed a beat and then went very fat to catch up.I have hospilzed with suspected TIA 3 times and have has EKG and several heart test which were all normal. I have had several holter tests none of them showed A/FIB
I wear a Fitbit watch which detected A/FIB AT 5am, It wakened me up. My cardiologist put me Eliquis 5mg twice daily and Bisoprolol 5 MG Valsartan 20 MG l was able to trace the A/Fib associated mainly with drinking wine and caffeine .I stopped drinking wine ,all caffeine tea & chocolate all spiced foods also ginger garlic & Tumirin and all hot peppers. According to my watch I don’t appear to have any more episodes of A/FIB Since. I have severe high spikes associated with walking at the mall, making dinner. My HR Goes spikes to over 125 when I am walking or grocery shopping. Is this unusual?

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@jovi45 Those spikes are natural in all likelihood. As you stand from sitting, your heart must work harder to get blood from further below your heart back up to your lungs. You will spike just standing from seated. Then, if you begin to move around, maybe use your arms also, there is more 'work' being done, and your heart rate will climb further. This is both desirable and normal....it helps you to function those ways. What would worry you is if your 'spike' goes past 135 or so, maybe over 145, just walking casually or even when seated and calm. There is only a possibly disordered heart that would need a rise in HR to the 140's and higher to let you walk to the kitchen. Or a heart in arrhythmia, such as in the case of POTS (postural orthostatic tachycardia syndrome), or maybe in atrial fibrillation (AF). I don't see how you can have an arrhythmia with an HR around 125 when you are moving about. I could be wrong, and I'm also not medically trained. The thing to do, when you have symptoms, or see that your HR is above 125 when just doing normal stuff, is to take a Kardia or Fitbit reading, and then look at its graphical representation, the one that looks like a real ECG. Either device 'should' be able to upload the file to an app where you can see what the squiggles look like. Any arrhythmia will either be too fast, or there will be a nasty mess to look at, including no P wave and the highest peaks don't have the same distance...they're spaced out randomly. That would be AF.

The Holter can only record what really happens when it is on you recording. If you take off the leads and turn it in, and driving home you have a short run of AF, that's a miss. Your Fitbit may have been wrong, but it may have been right. You should have a record still on it of that detection. See if you can find it, upload it to the app, and look at it. Show it to your doctor.

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Profile picture for jovi45 @jovi45

I want to follow this group as I have AFib

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I have hypothyroid I take synthroid I also have has arrithmas for several years . My heart missed a beat and then went very fat to catch up.I have hospilzed with suspected TIA 3 times and have has EKG and several heart test which were all normal. I have had several holter tests none of them showed A/FIB
I wear a Fitbit watch which detected A/FIB AT 5am, It wakened me up. My cardiologist put me Eliquis 5mg twice daily and Bisoprolol 5 MG Valsartan 20 MG l was able to trace the A/Fib associated mainly with drinking wine and caffeine .I stopped drinking wine ,all caffeine tea & chocolate all spiced foods also ginger garlic & Tumirin and all hot peppers. According to my watch I don’t appear to have any more episodes of A/FIB Since. I have severe high spikes associated with walking at the mall, making dinner. My HR Goes spikes to over 125 when I am walking or grocery shopping. Is this unusual?

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I want to follow this group as I have AFib

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Profile picture for clementyne @clementyne

Hi
I just found out I have fast and slow heart rates daily. All because I switched from Samsung to Apple, and my Apple watch has been telling me my heart rate is under 50 and over 100. I have had a few irregular EKGs in the past, but when they were redone, I had a perfect sinus rhythm. I even had one of those life screenings, because my husband is a heart patient and I wanted to get ahead of the game, and it came back that I had an extra heartbeat, but when I took the report to my PCP they did an EKG, and it was normal.
After my watch started notifying me of different heart rates, I started taking my blood pressure daily, and it was normal, but it would also pick up these different heart rates.
I made an appointment with my husband's cardiologist and she had me wear a Holter monitor for 5 days. I just had my ECO done, and now I wait for the results. The technician did mention a PVC or an arrhythmia, but I have absolutely NO symptoms at all. I don't feel anything. The tech asked me if I felt flutters, dizziness, or pounding, and I have never had any symptoms.
I am a breast cancer survivor and had 35 weeks of daily radiation, which can cause heart problems later. I don't see the Dr until May 15th, so I just have to wonder what the heck it is, and is it something serious? I am guessing if they found something that needed immediate attention they would contact me, or at least I hope so.

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@clementyne We'll all have to await the results. Guessing isn't going to be more than a waste of anxious energy in my opinion. If it is an arrhythmia, it can be managed, but it depends on which arrhythmia and what is to be done for it. You'll have to be patient.

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Hi
I just found out I have fast and slow heart rates daily. All because I switched from Samsung to Apple, and my Apple watch has been telling me my heart rate is under 50 and over 100. I have had a few irregular EKGs in the past, but when they were redone, I had a perfect sinus rhythm. I even had one of those life screenings, because my husband is a heart patient and I wanted to get ahead of the game, and it came back that I had an extra heartbeat, but when I took the report to my PCP they did an EKG, and it was normal.
After my watch started notifying me of different heart rates, I started taking my blood pressure daily, and it was normal, but it would also pick up these different heart rates.
I made an appointment with my husband's cardiologist and she had me wear a Holter monitor for 5 days. I just had my ECO done, and now I wait for the results. The technician did mention a PVC or an arrhythmia, but I have absolutely NO symptoms at all. I don't feel anything. The tech asked me if I felt flutters, dizziness, or pounding, and I have never had any symptoms.
I am a breast cancer survivor and had 35 weeks of daily radiation, which can cause heart problems later. I don't see the Dr until May 15th, so I just have to wonder what the heck it is, and is it something serious? I am guessing if they found something that needed immediate attention they would contact me, or at least I hope so.

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