1. < Hypertrophic Cardiomyopathy (HCM)

HCOM midcavity with apical aneurysm

Posted by TerryViazanko @terryviazanko, Jun 23, 2017

I'm looking to discuss with others midcavity obstruction with apical aneurysm. Anybody out there?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Kanaaz Pereira, Connect Moderator | @kanaazpereira | Jun 24, 2017

Hi @terryviazanko,

I’m tagging fellow Connect members @eelnaloblob18 @cynaburst @mistymopps3 @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @23273333 to bring them into this discussion about apical HCM.

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Cynaburst, Alumna Mentor | @cynaburst | Jun 25, 2017

Hey Terry - As you know, this is really rare. Maybe there is someone else out there who has experienced both and apical aneurysm and obstructive HCM. Terry is particularly interested in speaking with someone who has had a myectomy who also has an apical aneurysm.

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3 replies
TerryViazanko | @terryviazanko | Jun 25, 2017
In reply to @cynaburst "Hey Terry - As you know, this is really rare. Maybe there is someone else out..." + (show)
@cynaburst

Hey Terry - As you know, this is really rare. Maybe there is someone else out there who has experienced both and apical aneurysm and obstructive HCM. Terry is particularly interested in speaking with someone who has had a myectomy who also has an apical aneurysm.

Jump to this post

Thanks Cynthia!

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Ron Petrovich | @ronaldpetrovich | Jun 26, 2017
In reply to @cynaburst "Hey Terry - As you know, this is really rare. Maybe there is someone else out..." + (show)
@cynaburst

Hey Terry - As you know, this is really rare. Maybe there is someone else out there who has experienced both and apical aneurysm and obstructive HCM. Terry is particularly interested in speaking with someone who has had a myectomy who also has an apical aneurysm.

Jump to this post

I don't know if this adds anything, but here is a link that might provide some more information. https://www.youtube.com/watch?v=hb4jxWh92iM

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Sensation | @Sensation | Jun 26, 2017

I have Apical HCM but mine is Non Obstructive and I've never had an Aneurysm sorry I can't be of more help.

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TerryViazanko | @terryviazanko | Jun 26, 2017
In reply to @cynaburst "Hey Terry - As you know, this is really rare. Maybe there is someone else out..." + (show)
@cynaburst

Hey Terry - As you know, this is really rare. Maybe there is someone else out there who has experienced both and apical aneurysm and obstructive HCM. Terry is particularly interested in speaking with someone who has had a myectomy who also has an apical aneurysm.

Jump to this post

Thank you! Great info.

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wyoguy | @wyoguy | Aug 6, 2017

I have mid-cavity obstruction, apical HCM and an aneurysm and would be glad to share experiences with you.

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wyoguy | @wyoguy | Aug 20, 2017

I had a VT storm in early Feb. Then, I had an oblation done at Mayo in July. Things have been better, but also a lot worse! I have fevers which they think is due to the heart rubbing against the sac around the heart causing irritation. This is keeping on a cycle of sorts. Or, maybe I am overdoing? At any rate, if there is something I can help someone with, I would be glad to do so.

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Aug 21, 2017

Hi @wyoguy,

Thank you so much for offering to share your experiences. This is exactly what Mayo Clinic Connect is all about: meeting others with similar experiences, sharing your journey, and learning from and supporting each other.

Have you had the opportunity to view some of the other discussion about apical HCM, on Connect? Here are a few that might interest you:
– https://connect.mayoclinic.org/discussion/hcm-ers-introduce-yourself-or-just-say-hi/
– https://connect.mayoclinic.org/discussion/apical-cardiomyopathy/
– https://connect.mayoclinic.org/webinar/hypertrophic-cardiomyopathy-and-the-surgical-treatment-apical-myectomy/

I'm also tagging @77dhowell @vivian88 @mistymopps3 @lynnkay1956 @PatMattos @23273333 to bring them into this discussion about apical HCM and possibly share their insights as well.

@wyoguy, how are you managing your condition, presently?

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