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TerryViazanko
@terryviazanko

Posts: 10
Joined: Oct 11, 2012

HCOM midcavity with apical aneurysm

Posted by @terryviazanko, Jun 23, 2017

I’m looking to discuss with others midcavity obstruction with apical aneurysm. Anybody out there?

REPLY

Hi @terryviazanko,

I’m tagging fellow Connect members @eelnaloblob18 @cynaburst @mistymopps3 @lynnkay1956 @PatMattos @Sensation @ronaldpetrovich @23273333 to bring them into this discussion about apical HCM.

Hey Terry – As you know, this is really rare. Maybe there is someone else out there who has experienced both and apical aneurysm and obstructive HCM. Terry is particularly interested in speaking with someone who has had a myectomy who also has an apical aneurysm.

@cynaburst

Hey Terry – As you know, this is really rare. Maybe there is someone else out there who has experienced both and apical aneurysm and obstructive HCM. Terry is particularly interested in speaking with someone who has had a myectomy who also has an apical aneurysm.

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Thanks Cynthia!

@cynaburst

Hey Terry – As you know, this is really rare. Maybe there is someone else out there who has experienced both and apical aneurysm and obstructive HCM. Terry is particularly interested in speaking with someone who has had a myectomy who also has an apical aneurysm.

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I don’t know if this adds anything, but here is a link that might provide some more information.

Liked by TerryViazanko

I have Apical HCM but mine is Non Obstructive and I’ve never had an Aneurysm sorry I can’t be of more help.

@cynaburst

Hey Terry – As you know, this is really rare. Maybe there is someone else out there who has experienced both and apical aneurysm and obstructive HCM. Terry is particularly interested in speaking with someone who has had a myectomy who also has an apical aneurysm.

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Thank you! Great info.

I have mid-cavity obstruction, apical HCM and an aneurysm and would be glad to share experiences with you.

Hi @wyoguy,

Thank you so much for offering to share your experiences. This is exactly what Mayo Clinic Connect is all about: meeting others with similar experiences, sharing your journey, and learning from and supporting each other.

Have you had the opportunity to view some of the other discussion about apical HCM, on Connect? Here are a few that might interest you:
https://connect.mayoclinic.org/discussion/hcm-ers-introduce-yourself-or-just-say-hi/
https://connect.mayoclinic.org/discussion/apical-cardiomyopathy/
https://connect.mayoclinic.org/webinar/hypertrophic-cardiomyopathy-and-the-surgical-treatment-apical-myectomy/

I’m also tagging @77dhowell @vivian88 @mistymopps3 @lynnkay1956 @PatMattos @23273333 to bring them into this discussion about apical HCM and possibly share their insights as well.

@wyoguy, how are you managing your condition, presently?

I had a VT storm in early Feb. Then, I had an oblation done at Mayo in July. Things have been better, but also a lot worse! I have fevers which they think is due to the heart rubbing against the sac around the heart causing irritation. This is keeping on a cycle of sorts. Or, maybe I am overdoing? At any rate, if there is something I can help someone with, I would be glad to do so.

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