HCM-ers: Introduce yourself or just say hi

@zargul:

Below is all of the information necessary for communicating with the International Patients department of Mayo Clinic Rochester, MN.

You should contact them via email at: Intl.mcr@mayo.edu

or telephone or FAX:

507-284-8884
507-538-7802 (Fax)
Office hours: 7 a.m. to 5 p.m. (Central time) Monday through Friday

If you contact them in writing, you should also include this information:

-the patient’s name as it appears on the passport (last, first, middle)
-patient’s gender
-patient’s address
-patient’s date of birth
-direct patient telephone number
-direct patient fax number
-patient’s email address (if available)

-a brief explanation of the current medical problem (in English) – (In this instance, you can just tell them that you are seeking a complete workup for Hypertrophic Cardiomyopathy, including septal reduction for obstructive HCM. When you ask for the cost estimate, make sure that they include amounts for both testing and myectomy and/or ablation. They will not know which one you are best suited for until after you have undergone testing and examination.)

-the preferred date of appointment
-whether the patient will need an interpreter, and if so, what language

This link has any further information you need.
http://www.mayoclinic.org/departments-centers/international/appointments
Wishing you all the best. Mayo is one of the best places in the world for HCM treatment. you won't be sorry.

Madem.
I am eager to know about cost estimate of alcohol septal ablation. So that i come to Rochester, with adequate financing .

Hi @zargul - I received your private message and see your inquiry above. Though I do not yet know who you should contact, I am working on getting you a contact. You would do very well to travel to Mayo Clinic in Rochester if you are able. They are one of the best places in the world for treatment of HCM.

Hello @zargul,

Welcome to Connect. Thank you for introducing yourself to this group.

If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online.
The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments

International patients can request an appointment at any Mayo Clinic location online, here: http://www.mayoclinic.org/departments-centers/international/appointments
A representative from one of Mayo's international appointment offices will respond to your request within three business days.

For information about billing and insurance, you can go online, http://www.mayoclinic.org/departments-centers/international/financial-services
Or call International Finance at 507-284-5063
507-538-7878 (fax)

I'm also tagging one of our Mentors, @cynaburst, as she may be able to provide some insight about the procedures.

I am a patient of HOCM. I want carry out my treatment at mayo clinic menisota US. I am from Pakistan and serving as officer in Government organization . My Government is ready to bear my finances but they require cost estimate for Septal myemectomy and Septal alcohol ablation.
Pliz provide me the same in both cases.

I had the exact same procedure, in January 9, of this year. Feeling fantastic, and had a remarkable recovery.

Hi @joyful1,

The benefit of sharing in the community is that you can receive information and support from a knowledgeable group of people. Also, keep in mind that I'm not a medical professional, and cannot provide medical advice. Should you still wish to contact me, you can send me a private message. Simply click on my username, and then click "Send Private Message". I will do my best to address your concerns.

Hi Jeff. I also had a myectomy 11 years ago and am feeling much better even still. Have you noticed improvement yet? Where did you have your surgery done?

Hi Jeff, @seidel9432,

Welcome to Connect; thank you so much for joining us here.
How are you feeling after the myectomy? If you are comfortable, would you share your insights with us? What questions do you have for the Connect community?

Welcome to Connect, @ruettj, We're so glad you've joined us!

Jennifer, might I suggest that you also post your message in the Digestive Health group on Connect, https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/.
That way you will be able to meet other members with similar conditions, since we have a few active discussions about hemochromatosis in Digestive Health:
– https://connect.mayoclinic.org/discussion/looking-for-advice-i-am-37-years-old-for-the-last-two-years/

You could post your message in either of the above discussions, and the members in that group will be notified of your post. Or, you could start a new discussion.

@ruettj, if you are comfortable, would you share a few more details about the Porphyria you've mentioned? I like playing cards as well...I'm not sure about the exact name of the game, but I love "3-card poker". Do you have a favorite?