HCM-ers: Introduce yourself or just say hi

Good afternoon all. I am a 45 yr old male who was diagnosed about 2 years ago with HCM. Things have progressed to the point that I am having/need the surgery. Have to admit I am a bit terrified, but know I am in Great hands at Mayo. I have also had a couple major surgeries for some unrelated issues, so I have a general sense of the hospital experience.

I have had a history of back problems, and from reading this board, seems like this is a common struggle post surgery. I am thinking I need to go out and buy a recliner to sleep in when I return home....any advice from those who have gone through the recovery process? I have sleep apnea, and do use a CPAP, but have never been able to sleep flat on my back, so I am trying to get something worked out before the procedure.

This all became real this past week, so I am reeling a bit and sure will have additional questions....so thanks in advance for your help.

Cheers

Thank you everyone for your comments. I really appreciate your stories and experiences with this decease.
It is much easier to make a decision being prepared. I have already read a lot of posts on this subject but still feel hungry for more. I am from Illinois and my current symptom progressing makes me thinking how to arrange the appointment with Mayo.
Should I ask my local cardiologist for referral or I can do it on my own? What are the prons and cons for both?
What is an approximate wait time from scheduling until appointment? As I understand I need to see the Mayo's cardiologist first & go through some tests. If he recommends myectomy can I choose a surgeon?

Good afternoon all. I am a 45 yr old male who was diagnosed about 2 years ago with HCM. Things have progressed to the point that I am having/need the surgery. Have to admit I am a bit terrified, but know I am in Great hands at Mayo. I have also had a couple major surgeries for some unrelated issues, so I have a general sense of the hospital experience.

I have had a history of back problems, and from reading this board, seems like this is a common struggle post surgery. I am thinking I need to go out and buy a recliner to sleep in when I return home....any advice from those who have gone through the recovery process? I have sleep apnea, and do use a CPAP, but have never been able to sleep flat on my back, so I am trying to get something worked out before the procedure.

This all became real this past week, so I am reeling a bit and sure will have additional questions....so thanks in advance for your help.

Cheers

Good afternoon all. I am a 45 yr old male who was diagnosed about 2 years ago with HCM. Things have progressed to the point that I am having/need the surgery. Have to admit I am a bit terrified, but know I am in Great hands at Mayo. I have also had a couple major surgeries for some unrelated issues, so I have a general sense of the hospital experience.

I have had a history of back problems, and from reading this board, seems like this is a common struggle post surgery. I am thinking I need to go out and buy a recliner to sleep in when I return home....any advice from those who have gone through the recovery process? I have sleep apnea, and do use a CPAP, but have never been able to sleep flat on my back, so I am trying to get something worked out before the procedure.

This all became real this past week, so I am reeling a bit and sure will have additional questions....so thanks in advance for your help.

Cheers

Good afternoon all. I am a 45 yr old male who was diagnosed about 2 years ago with HCM. Things have progressed to the point that I am having/need the surgery. Have to admit I am a bit terrified, but know I am in Great hands at Mayo. I have also had a couple major surgeries for some unrelated issues, so I have a general sense of the hospital experience.

I have had a history of back problems, and from reading this board, seems like this is a common struggle post surgery. I am thinking I need to go out and buy a recliner to sleep in when I return home....any advice from those who have gone through the recovery process? I have sleep apnea, and do use a CPAP, but have never been able to sleep flat on my back, so I am trying to get something worked out before the procedure.

This all became real this past week, so I am reeling a bit and sure will have additional questions....so thanks in advance for your help.

Cheers

Good afternoon all. I am a 45 yr old male who was diagnosed about 2 years ago with HCM. Things have progressed to the point that I am having/need the surgery. Have to admit I am a bit terrified, but know I am in Great hands at Mayo. I have also had a couple major surgeries for some unrelated issues, so I have a general sense of the hospital experience.

I have had a history of back problems, and from reading this board, seems like this is a common struggle post surgery. I am thinking I need to go out and buy a recliner to sleep in when I return home....any advice from those who have gone through the recovery process? I have sleep apnea, and do use a CPAP, but have never been able to sleep flat on my back, so I am trying to get something worked out before the procedure.

This all became real this past week, so I am reeling a bit and sure will have additional questions....so thanks in advance for your help.

Cheers

Hello @traceysmith,

Welcome to Connect. We are so glad to have you join us...and such a young grandma too!

I'd like to introduce you to @cynaburst @lynnkay1956 @PatMattos @Sensation @rmcmillan @catiemorris @wandikarnadi @barbararickard @lisa7 @lucindag @23273333 @margie11 @fishinglady @uptodate68 @lisa7 @quinn @mistymopps3 @bibi12 @woodywood @lisab62 @debcrawford @vivian88 @vialox @janicepike and others in this discussion.

@jigglejaws94 @mogirl92 could you share your insights about the loop recorder?

@traceysmith, do you feel that your heart is beating too fast or too slow? Have you told your doctors about the sinus rhythm and your recent symptoms?

Hi all... I'm in the uk. And my docters took over 20years to tell me what was wrong. I've been blackin out from the age of 16.... I'm now 39 and was told I had hcm. 3 years ago... every time I had a hcm event I called 999 want to hospital and all looked ok.. I would be in hospital for 1-3 days and then sent home with the all clear. But I'm here :). I have 4 kids and 2 grandchildren. All my kids have been gene tested and all have came bk as clear. Sometimes I do not believe it, all 4 are well..... so my grandchildren will be safe... but any way no more about me.. hi all..... 🙂

Hello @traceysmith,

Welcome to Connect. We are so glad to have you join us...and such a young grandma too!

I'd like to introduce you to @cynaburst @lynnkay1956 @PatMattos @Sensation @rmcmillan @catiemorris @wandikarnadi @barbararickard @lisa7 @lucindag @23273333 @margie11 @fishinglady @uptodate68 @lisa7 @quinn @mistymopps3 @bibi12 @woodywood @lisab62 @debcrawford @vivian88 @vialox @janicepike and others in this discussion.

@jigglejaws94 @mogirl92 could you share your insights about the loop recorder?

@traceysmith, do you feel that your heart is beating too fast or too slow? Have you told your doctors about the sinus rhythm and your recent symptoms?