HCM-ers: Introduce yourself or just say hi

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for Lisa Lucier, Moderator @lisalucier

Hello, @sankarpinaki -- wanted to add my welcome to Mayo Clinic Connect. I believe perhaps the rest of your post may have been missing after "hi"? Interested to hear the rest of your message.

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Thank you very much. I have decided to go there but some time in the month of October. The place is far away from where I live and expensive too. Please continue giving suggestion to me. Once again thank you.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hello, @sankarpinaki -- wanted to add my welcome to Mayo Clinic Connect. I believe perhaps the rest of your post may have been missing after "hi"? Interested to hear the rest of your message.

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As fellow patients, we are not qualified to tell you whether your medications are appropriate. You really need to consult with a physician well versed in HCM. I believe that there is a HCM Center in India. This hospital has expertise in HCM. They have a designated HCM Center there named after Barry Maron who is a pioneer of HCM medicine in the U.S. Maybe you could travel there:
https://kalrahospital.com

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Profile picture for jillie @jillie

Hi All, So happy to find you! I'm from Tucson and have been diagnosed locally with asthma for 15 years. I was always very physically active (swam 1 mi/ day) and couldn't understand why in the last few years my SOB kept getting worse and my inhalers provided no relief. At the same time I was a 6 yr caregiver for my late hubby and so whenever I complained about increasing SOB, my Tucson cardiologists wrote it off as caregiver/ death of spouse stress and anxiety. You know: Learn biofeedback. Meditate. Relax. Breathe deeply. Think happy thoughts.
I just went to Mayo Scottsdale for my annual physical and my PCP there had ordered every test known to man when she noticed that I was SOB from just changing into my gown. Echocardiogram findings are HOCM. I drove the 3 hrs back to Tucson in semi-shock. Next week I have lots of appointments, including my 1st bonafide cardiologist consult at Mayo and of course my wrap-up with my PCP. I've been actively researching HCM online and it certainly fits all of my symptoms.
I have seen 2 terrible cardiologists in the past in Tucson (who basically blew me off) and so I want to definitely continue at Mayo. But I have no clue how to live in Tucson and be treated at Scottsdale---it's a 3 hr drive. I have no family here.
Anyway, maybe TMI but I'm so happy to have found you! Thanks for being here!

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Many of us travel to see HCM experts in other places. I travel all the way from Los Angeles to Rochester, MN to be seen at Mayo Clinic. I also have a local cardiologist who consults with my Mayo cardiologist about my treatment. In a perfect world, they will work together to help you get the best care.

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Hi All, So happy to find you! I'm from Tucson and have been diagnosed locally with asthma for 15 years. I was always very physically active (swam 1 mi/ day) and couldn't understand why in the last few years my SOB kept getting worse and my inhalers provided no relief. At the same time I was a 6 yr caregiver for my late hubby and so whenever I complained about increasing SOB, my Tucson cardiologists wrote it off as caregiver/ death of spouse stress and anxiety. You know: Learn biofeedback. Meditate. Relax. Breathe deeply. Think happy thoughts.
I just went to Mayo Scottsdale for my annual physical and my PCP there had ordered every test known to man when she noticed that I was SOB from just changing into my gown. Echocardiogram findings are HOCM. I drove the 3 hrs back to Tucson in semi-shock. Next week I have lots of appointments, including my 1st bonafide cardiologist consult at Mayo and of course my wrap-up with my PCP. I've been actively researching HCM online and it certainly fits all of my symptoms.
I have seen 2 terrible cardiologists in the past in Tucson (who basically blew me off) and so I want to definitely continue at Mayo. But I have no clue how to live in Tucson and be treated at Scottsdale---it's a 3 hr drive. I have no family here.
Anyway, maybe TMI but I'm so happy to have found you! Thanks for being here!

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@sankarpinaki -- You might also check out our Mental Health group, here: http://mayocl.in/2cUfR1j.

A couple specific threads you may want to look at and participate in are:

- http://mayocl.in/2HKZGAr (anxiety, panic and depression disorders)

- http://mayocl.in/2owy6y5 (anxiety, panic)

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hello, @sankarpinaki -- wanted to add my welcome to Mayo Clinic Connect. I believe perhaps the rest of your post may have been missing after "hi"? Interested to hear the rest of your message.

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Mam I am diagnosed with asymmetrical hcm on2017and I am 45yrs old. I am totally frightened because I feel a pain in my chest most of the time and even feel pain while speaking loud. I am a school teacher and find it difficult to do my job. I am on bisoprolol5mg,ecosprin10+7my doc advised me to take monotrate25mg to get rid of
pain but I didn't started it yet. Is it safe to take. I am. also taking sertaline 200mg twice and clonazepam.5 to overcome anxiety. My chest pain has made me. totally panicky. Can you please help me. I am from jalpaiguri West Bengal India a semiremote place and docs are not specialized in hcm rather they are more comfortable in treating CAD.

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Hello, @sankarpinaki -- wanted to add my welcome to Mayo Clinic Connect. I believe perhaps the rest of your post may have been missing after "hi"? Interested to hear the rest of your message.

REPLY
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