HCM-ers: Introduce yourself or just say hi

Hello,. I made my own.appointment with a Dr. Schaff, the surgeon. I was advised by my endro to see my cardiologist, because my thyroid condition was up to the max level. I happen to run across a mayo webinar, of my Icd, doctor/ genetic testing, and Dr.Schaff. I then called and made an appointment for a surgery consult. Whala!!! . Hade the surgery January 9th, of this year. A miraculous recovery, and no looking back. So thankful that I am not shy about advocating for myself. Energy level had tripled, my whole outlook is better. One of the key factors in my decision to go ahead with the surgery was insurance was great, and I was still healthy enough to withstand a major surgery.

PS I'm having a colonoscopy on the 11th of this month to see what's going on there.Fitchizumi

Hi, Seen my local cardiologist he keeps saying I'm fine. Got a copy of his info about me after my January visit. It's "there's a dynamic left ventricular outflow obstruction" she definitely has hypertrophic cardiomyopathy with asymmetric septal hypertrophy. My husband and I decided we're going to get hooked up with someone from a center of excellence. In November I go to Lehigh Valley Hospital PA to see a specialist in HCM.my local cardiologist probably will not enjoy this but that's the way it is. I asked him two months ago if he knew a center of excellence he said I don't know what you mean. Then I asked if He ever had to send a patient ,for examples ,a my ectomy.he said two to Abington Hospital in is 31 year career. Hopefully he will except our decision to see a specialist and he will work with him. My cardiologist said I'm not ready for any kind of invasive treatment This past Friday I had PVCs extremely strong .the nurse practitioner finally got to me and thought it was caused by a combination of my G.I. problems ,possible drop in potassium. Thank you for asking, I think if everybody in the group and keep everyone in my prayers. I'll let everyone know what the specialist says thanks again.

Hi @fitchizumi,

I hope you are keeping well. Have you been to the cardiologist for a follow-up?

I am a patient of HOCM.
I am from Pakistan Islamabad.

@zargul:

Below is all of the information necessary for communicating with the International Patients department of Mayo Clinic Rochester, MN.

You should contact them via email at: Intl.mcr@mayo.edu

or telephone or FAX:

507-284-8884
507-538-7802 (Fax)
Office hours: 7 a.m. to 5 p.m. (Central time) Monday through Friday

If you contact them in writing, you should also include this information:

-the patient’s name as it appears on the passport (last, first, middle)
-patient’s gender
-patient’s address
-patient’s date of birth
-direct patient telephone number
-direct patient fax number
-patient’s email address (if available)

-a brief explanation of the current medical problem (in English) – (In this instance, you can just tell them that you are seeking a complete workup for Hypertrophic Cardiomyopathy, including septal reduction for obstructive HCM. When you ask for the cost estimate, make sure that they include amounts for both testing and myectomy and/or ablation. They will not know which one you are best suited for until after you have undergone testing and examination.)

-the preferred date of appointment
-whether the patient will need an interpreter, and if so, what language

This link has any further information you need.
http://www.mayoclinic.org/departments-centers/international/appointments?_ga=2.214253719.1680916319.1503113066-939790657.1471053992@
Wishing you all the best. Mayo is one of the best places in the world for HCM treatment. you won't be sorry.

Madem.
I am eager to know about cost estimate of alcohol septal ablation. So that i come to Rochester, with adequate financing .

Hi @zargul - I received your private message and see your inquiry above. Though I do not yet know who you should contact, I am working on getting you a contact. You would do very well to travel to Mayo Clinic in Rochester if you are able. They are one of the best places in the world for treatment of HCM.

Hello @zargul,

Welcome to Connect. Thank you for introducing yourself to this group.

If you would like to make an appointment at Mayo Clinic, please call one of our appointment offices. You can also request an appointment online.
The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments

International patients can request an appointment at any Mayo Clinic location online, here: http://www.mayoclinic.org/departments-centers/international/appointments
A representative from one of Mayo's international appointment offices will respond to your request within three business days.

For information about billing and insurance, you can go online, http://www.mayoclinic.org/departments-centers/international/financial-services
Or call International Finance at 507-284-5063
507-538-7878 (fax)

I'm also tagging one of our Mentors, @cynaburst, as she may be able to provide some insight about the procedures.

I am a patient of HOCM. I want carry out my treatment at mayo clinic menisota US. I am from Pakistan and serving as officer in Government organization . My Government is ready to bear my finances but they require cost estimate for Septal myemectomy and Septal alcohol ablation.
Pliz provide me the same in both cases.