HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon on the group landing page.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

rrowner2 | @rrowner2 | Apr 23, 2019

In reply to @rpoulo "I had an alcohol ablation on 2-12-19. Doing well." + (show)

Awesome! so happy that it worked for you. Take care

rpoulo | @rpoulo | Apr 23, 2019

I had an alcohol ablation on 2-12-19. Doing well.

Teresa, Volunteer Mentor | @hopeful33250 | Apr 23, 2019

Hello All:

I subscribe to an online copy of a magazine produced by the American Heart Association. There was an article written by a man with HCM which I found interesting and I thought you might as well. Here is the link:
http://heartinsight.heart.org/Spring-2019/Living-Differently/
Just wondering how your life is different as a result of your diagnosis?

jmiracle | @janemiracle | Apr 12, 2019

Hi . I am Dr Jane from India. My daughter is diagnoised with hypertropic cardiomyopathy.

Kanaaz Pereira, Connect Moderator | @kanaazpereira | Mar 6, 2019

Thanks so much for sharing your insights, @rrowner2

Hi @reenj62,

I moved your message to this discussion as I thought it would be easier for you to connect with other members who’ve talked about appointments at Mayo Clinic.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members.

I’m tagging @barbj @cynaburst @ronaldpetrovich @jshah as well, to see if they might have any additional thoughts to share.

rrowner2 | @rrowner2 | Mar 6, 2019

In reply to @reenj62 "Was just wondering how long it takes Mayo Clinic to get back to you to set..." + (show)

I also wondered because my husband waited 4 weeks but looking at the schedule we received I realized why. Numerous appointment scheduled over 4 days when they are dealing with 4 different departments and several hundred more patients it all made sense. So don’t give up, everything will work out well with appointments for you

reenj62 | @reenj62 | Mar 6, 2019

In reply to @rrowner2 "I also wondered because my husband waited 4 weeks but looking at the schedule we received..." + (show)

Thank you rrowner2. That makes sense! I will just continue to wait.

reenj62 | @reenj62 | Mar 6, 2019

Was just wondering how long it takes Mayo Clinic to get back to you to set appointment after my doctor forwarded all my info to them. It will be 2 weeks tomorrow.