HCM-ers: Introduce yourself or just say hi

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Somehow, lost my post in mid-sentence. The point was this: a stress test requires abstaining from beta blocker for 24 hours. Since my morning and evening Toprol literally saves me every time taken, will it be safe to go onto a treadmill without it?

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Profile picture for timdines @timdines

The first thing is to talk with your primary doctor and get a referral to an interventional cardiologist. They may do an ultrasound of your heart called an echocardiogram. In the meantime, if caffeine bothers you then stay away from it. Reducing, sugar and caffeine will make a world of difference in how you feel.

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I went to my doctor that I seen in the past for a new patient visit last week showed him my mother's health history. He ordered the echo based on heart murmur and leaky valve he possibly heard. I did my annual visit may 28 with old clinic and nurse practitioner never mentioned hearing the 2 years i seen them. They also see my mom for her health issue and knew the cardiologist recommended her children get checked. It seems ridiculous insurance wants you to have a symptom before you can be checked.

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Profile picture for sall @sall

Hi, my mother was told in 2013 that her heart condition is hereditary. Hypertrophic cardiomyopathy, I had mentioned it in the past to primary physician but I had no symptoms. But I now am going for echo next Monday. I am healthy but over weight, actively working at nursing home as Restorative Aide and CNA. Until reading today I really didn't understand the diagnosis as I care for my mother's health issues. Never looked up the diagnosis in detail of was explained. She is 79 years old. Her symptoms have been treated as they came but no one said it was hereditary until 2013. Took her to hospital for bronchitis, where when they were treating her for the bronchitis she had trouble and then is when she started with Afib, animation and dual chamber pacemaker. I am just wanting to prevent issues while I can by getting checked for HCM. I have to admit after reading it makes me nervous but the only things that seems to effect me to much caffeine and cough/ allergy medicines.

Jump to this post

The first thing is to talk with your primary doctor and get a referral to an interventional cardiologist. They may do an ultrasound of your heart called an echocardiogram. In the meantime, if caffeine bothers you then stay away from it. Reducing, sugar and caffeine will make a world of difference in how you feel.

REPLY

Hi, my mother was told in 2013 that her heart condition is hereditary. Hypertrophic cardiomyopathy, I had mentioned it in the past to primary physician but I had no symptoms. But I now am going for echo next Monday. I am healthy but over weight, actively working at nursing home as Restorative Aide and CNA. Until reading today I really didn't understand the diagnosis as I care for my mother's health issues. Never looked up the diagnosis in detail of was explained. She is 79 years old. Her symptoms have been treated as they came but no one said it was hereditary until 2013. Took her to hospital for bronchitis, where when they were treating her for the bronchitis she had trouble and then is when she started with Afib, animation and dual chamber pacemaker. I am just wanting to prevent issues while I can by getting checked for HCM. I have to admit after reading it makes me nervous but the only things that seems to effect me to much caffeine and cough/ allergy medicines.

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Profile picture for bpickartz @bpickartz

Dr. Said did my surgery last August. It was a success and I enjoyed him and his team.

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Thank you for your response.

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Profile picture for rondar @rondar

Hi! I had a myectomy on July 12, 2016 by dr Sameh Said. Did anyone else have him as their myectomy surgeon?

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Dr. Said did my surgery last August. It was a success and I enjoyed him and his team.

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Profile picture for sheim @sheim

I am under the impression that my upcoming Septal Myectomy will be covered by Medicare but in the packet I received from Mayo they say to check with your insurance to see if you need pre approved. I called Medicare and all I got was since I have original Medicare I can go anywhere. For those who have already had this surgery were any of you on Medicare?

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My Medicare and supplemental insurance covered everything.

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Hi! I had a myectomy on July 12, 2016 by dr Sameh Said. Did anyone else have him as their myectomy surgeon?

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Hello, my name is Tim. I had septal myectomy surgery in Rochester, MN on 1/4/2013. I have no idea why I was drawn to this site but I am here now. I have read and replied to a couple of posts. I just want anyone that is worried about having this surgery to know that life afterward is awesome. I am happy to talk with anyone at any time.

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Looking for a surgeon for myectomy in Phoenix Arizona. Any recommendations?

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