HCM-ers: Introduce yourself or just say hi

Hello my name is Paul, I was diagnosed with HCM in 2010, I watched my mother die who also had HCM she was 43. I currently have an ICD and I take nadolol to slow my heart down, was just diagnosed stage 3 heart failure and my mitral valve is also at stage three, I keep a good diet blending veggies and fruits is my breakfast, dinner and supper so I am only on one medication.

My husband had surgery last October and is doing amazingly well

Had surgery in 2009. So far so good. No afib. Still have a slight murmur. Checkups have been good once a year

Dennis

Awesome! so happy that it worked for you. Take care

I had an alcohol ablation on 2-12-19. Doing well.

Hello All:

I subscribe to an online copy of a magazine produced by the American Heart Association. There was an article written by a man with HCM which I found interesting and I thought you might as well. Here is the link:
http://heartinsight.heart.org/Spring-2019/Living-Differently/
Just wondering how your life is different as a result of your diagnosis?

Hi . I am Dr Jane from India. My daughter is diagnoised with hypertropic cardiomyopathy.

Thanks so much for sharing your insights, @rrowner2

Hi @reenj62,

I moved your message to this discussion as I thought it would be easier for you to connect with other members who’ve talked about appointments at Mayo Clinic.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members.

I’m tagging @barbj @cynaburst @ronaldpetrovich @jshah as well, to see if they might have any additional thoughts to share.

I also wondered because my husband waited 4 weeks but looking at the schedule we received I realized why. Numerous appointment scheduled over 4 days when they are dealing with 4 different departments and several hundred more patients it all made sense. So don’t give up, everything will work out well with appointments for you