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HCM-ers: Introduce yourself or just say hi
Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.
I invite you to follow the group. Simply click the follow icon 
on the group landing page.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.
Why not start by introducing yourself here?
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HugInterested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
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Joyce, I forgot to mention I am in Wisconsin.
Hi. I'm Joyce and was just diagnosed with HCM at 71. I have hypertension, high cholesterol, pre-diabetic. I am also overweight which I know for general health is necessary. I lost 60 and gained back 30. I need to lose 40 pounds. I have a diagnosis of binge eating which is actually a medical diagnosis.
I'm looking forward to discussions and information on HCM.
Hi, sorry to hear about your nephews health. Hypertrophic cardiomyopathy association. Lisa Salberg chief executive officer and founder.(973)983-7429 Denville New Jersey. 4HCM.org ; support@4hcm.org;
Facebook: @4HCM.org ; Instagram 4HCMwarriors
It’s a 501(c) (3) Organization
66 Ford Rd. Suite 216 B
Danville, New Jersey 07834
Objective. Provide information & support to patients ,families&medical community regarding HCM. Your nephew is in our prayers
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2 ReactionsHello-I am looking for a HCM support group for my nephew in his early 20’s that has been struggling with depression more and more lately. He is not on hospice yet, but medications are the last and only thing for him to extend his life after his 5 open heart surgeries.
Is there an online group that can be recommended?
Thank you!
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1 ReactionI'm from Wisconsin as well
Hi,
I have DCM. I know it isn't the same, but we don't have a forum. So is it safe for me to be in this one? I have so many questions
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1 ReactionHi, I have also HCM Apical, I would like to be in contact with you.
That's good to know that the surgery makes such a big difference. That seems to be the common sentiment.
I had a icd implanted in may of 2021 then a septal myectomy in October of 2021 cause every month I was getting shocked and it would send me into afib, and it’s unpleasant, since the surgery what a difference no shocks and no shortness of breath, dr shaff and his team at the Mayo did a awesome job
Hi! Jake G. here. A diagnosis of HOCM was confirmed in May of this year and I had an ICD implanted on July 20, 2022 so this is all still very new to me. I've had varying degrees of success with cardiologists but have finally found an HCM specialist at University of Texas Health and Science Center San Antonio. I'm in the process of switching cardiologists to the specialist. As near as I can understand it, the decision to insert an ICD was due to an apical aneurysm in my left ventricle and some ventricular tachycardia which apparently put me at higher risk of SCD. Other than chest pain and some occasional bouts with shortness of breath, my symptoms are thankfully mild. From what I've read here and another forum, some people have a myriad of symptoms and I can't imagine how stressful that is for those folks, both mentally and physically.
I'm sure I will have a lot of questions along the way, but I'll start with just one: I read a lot of people that have an ICD and then some time later have a septal myectomy. Enough so that I wonder if a septal myectomy is an eventuality with everyone with HOCM. I guess it makes sense given that there's no way to reverse HOCM but am I correct in assuming that a septal myectomy is likely in my future? Thank you in advance for your response(s).