HCM-ers: Introduce yourself or just say hi
Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.
I invite you to follow the group. Simply click the follow icon
on the group landing page.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.
Why not start by introducing yourself here?
Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
Connect

Hang in there Janice. It takes time to heal and get back to your old self. Once you start feeling better hopefully the clouds will start to lift.
If you would like you can read my experiences after my own myectomy 10 years ago at http://www.Cynthiassummeradventure.blogspot.com. Start from the beginning and read
@rushtonrocks, my old blog might help you with your planning as well.
Good luck to all.
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1 Reaction@janicepike, Feeling down after surgery is really common. I encourage you to start a new topic dedicated to this topic in the HCM group. There are a few among the group who have stories to share. Here's how to start a new discussion topic:
1. Go to the HCM group page https://connect.mayoclinic.org/group/hypertrophic-cardiomyopathy-hcm/
2. Click START A DISCUSSION
3. Add a title. For example "Post myectomy depression" or "Feeling blue after successful surgery" (Use your preferred words)
4. Write the message and click CREATE DISCUSSION.
Thanks. I just need to get outsde, and be able to do the things I love. Gardening in the spring, is my goal. Strengthen my sterum, and stay motivated.
Funny that you should mention "give me cushion to plan flight back" because at Mayo, heart surgery patients get a heart cushion. We use a picture of the cushion as the picture for Heart Health group. Many have told stories about their cushion and how important it was post surgery.
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1 Reaction@rushtonrocks do you know about the Mayo Clinic Concierge Services? They can assist you with questions related to lodging, transportation, local businesses and attractions. I believe that booking through Mayo Clinic can help if you have to change flights. Something to ask them about for sure.
You find more info here about all things related to travelling to Mayo in MN: http://www.mayoclinic.org/patient-visitor-guide/minnesota/travel-lodging-maps
Hi there @janicepike, congrats on a successful surgery and for getting past the narcotics! You've body has been through a major event and is going to need time to get back up to it's usual paces, mentally and physically. I saw my father go through the same thing you're going through and saw that he was out of sorts also for awhile, but he improved quickly once he got back to his usual routine. Maybe taking up a new hobby would help take your mind off things. Go easy on yourself, you deserve it!
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1 ReactionThanks for the info! I hope to get my airline and hotel soon for the March 6th septal myectomy. Trying to figure out how long to recover before flying back. It sounds like most folks are discharged by day 5. I am hoping if I take an extra day or two that will give me cushion to plan flight back to Billings, MT.
Thanks Ron! I certainly am not going through what you did. Just a septal myectomy which is daunting enough for me. I am waiting on my itinerary from Mayo so I can work out my plans. I fortunately have family that will help me out when I get back to Billings with my recovery. Thanks for your positive information. Pace
I was able to function rather well on the 5th day. That's is when i was discharged. I am 4 weeks out of a Apical myectomy. Feeling very well.
4 weeks of apical myectomy. Healing well, but I sure am having dome down in the dumps days. Been.off all narcotics for over 2 weeks.