HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon on the group landing page.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

fitchizumi | @fitchizumi | Jul 6, 2017

In reply to @jamienolson "Hello @fitchizumi, I would like to Welcome you to Mayo Clinic Connect. We are happy to..." + (show)

Dr. doesn't think verapamil 120 is the cause of my fatigue. They're going to do some bloodwork and check to see if I'm anemic! He said,heart is strong, HCM & Afib are my biggest problems. He doesn't think I'm ready for surgery yet. See him in two months.

Kanaaz Pereira, Connect Moderator | @kanaazpereira | Jul 5, 2017

In reply to @jamienolson "Hello @fitchizumi, I would like to Welcome you to Mayo Clinic Connect. We are happy to..." + (show)

Wishing you well, @fitchizumi. Please keep us updated after your appointment with the cardiologist tomorrow.

TerryViazanko | @terryviazanko | Jul 5, 2017

In reply to @terryviazanko "Thank you!!" + (show)

Sorry, so much going on in my life I'm taking care of 2 year old grandson. I have midventriculat obstruction with apical aneurysm.my gradient has improved since 480 mg of Verapamil but I'm exhausted and ache in all joints. I'm on blood thinner too. Probably need surgery. Will find out soon.

fitchizumi | @fitchizumi | Jul 5, 2017

In reply to @jamienolson "Hello @fitchizumi, I would like to Welcome you to Mayo Clinic Connect. We are happy to..." + (show)

Was on Metoprolol,can't take it I'm on the verapamil 120 now. Was 180mg. All that's left norpace. Still having extreme fatigue. The heart doctor tomorrow!

Margie11 | @margie11 | Jun 24, 2017

In reply to @margie11 "Hi Terry, good to see you found this group. Wonderful support here, and lots of information...." + (show)

I'm ok, thanks. I don't have HCM (I haven't had genetic testing done yet) but my 84 y/o father does, he underwent septal myectomy and triple bypass surgeries simultaneously 5 years ago on an emergency basis. My family had never heard about HCM at the time, and that made the entire situation very scary. I wish I knew about this forum, the knowledge and support here are wonderful. My father is doing well now and is still very active. I
follow this group so I can keep abreast of the latest info. From my experience and from what I've seen here, if you need to have surgery I would recommend a high volume center like Mayo. All the best to you!

Sensation | @Sensation | Jun 24, 2017

In reply to @margie11 "Hi Terry, good to see you found this group. Wonderful support here, and lots of information...." + (show)

I hope surgery works for you, since mine is non obstructive I don't think I have that option, besides I don't really wanna have surgery anyways, to risky I think. But with yours, since you have HCOM it's probably better than the alternative. Hope everything goes well.

TerryViazanko | @terryviazanko | Jun 23, 2017

In reply to @margie11 "Hi Terry, good to see you found this group. Wonderful support here, and lots of information...." + (show)

Thanks Margie! How are you doing?

Margie11 | @margie11 | Jun 23, 2017

Hi Terry, good to see you found this group. Wonderful support here, and lots of information. Wishing you have a smooth journey!

TerryViazanko | @terryviazanko | Jun 23, 2017

In reply to @PatMattos "Hi, Terry, welcome!" + (show)

Pat, we are leaving for up north. Thanks for welcoming me here! I miss our chats but I'm babysitting today and tomorrow and leave Sunday. Call any evening you have a few minutes. I hate nothing you as you work long hours!