HCM-ers: Introduce yourself or just say hi

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for janicepike @janicepike

No, I had the same as in your condition. Dr. Schaff, did the surgery , for it. A bit over 6 months out. Feeling fantastic.

Jump to this post

What kind of surgery did you have?

REPLY
Profile picture for Choochoo @choochoo

My husband few this disease and was just diagnosed a few months ago. He is 67 and doc doesn't think it is very bad. His symptoms show he is having problems but tests show it's not bad. We are very frustrated. Our doc is very good.

Jump to this post

Thank you so much for following up and sharing, @77dhowell. I'd encourage you to take a look at the Transplant group too, on Connect: https://connect.mayoclinic.org/group/transplants/ where you will find a few discussions that might interest you.
How are you coping and managing your symptoms at present?

REPLY
Profile picture for Choochoo @choochoo

My husband few this disease and was just diagnosed a few months ago. He is 67 and doc doesn't think it is very bad. His symptoms show he is having problems but tests show it's not bad. We are very frustrated. Our doc is very good.

Jump to this post

Hello @choochoo,

Welcome to Connect. Thanks for joining; I'm so glad to see that you've connected with some of the members in this group.
Would you share a few more details about your husband? What symptoms is he experiencing?

REPLY

No, I had the same as in your condition. Dr. Schaff, did the surgery , for it. A bit over 6 months out. Feeling fantastic.

REPLY
Profile picture for janicepike @janicepike

I had surgery for the same thing you have. Hooe you can get the surgety

Jump to this post

You mean transplant?

REPLY

I had surgery for the same thing you have. Hooe you can get the surgety

REPLY
Profile picture for Choochoo @choochoo

Did your doc try alcohol abrasion before a heart transplant?

Jump to this post

No I have apictal type. My bottom of my heart is thick and it won't open up to let enough blood in. None of the typical treatments work for my heart.
My choices were heart Transplant or hospice.

REPLY

Did your doc try alcohol abrasion before a heart transplant?

REPLY
Profile picture for Choochoo @choochoo

My husband few this disease and was just diagnosed a few months ago. He is 67 and doc doesn't think it is very bad. His symptoms show he is having problems but tests show it's not bad. We are very frustrated. Our doc is very good.

Jump to this post

I am 57. My diagnoses did not look that bad either but my symptoms have continued to escalate and I am now on the heart transplant list.
The severity of the symptoms is what matters.

REPLY

My husband few this disease and was just diagnosed a few months ago. He is 67 and doc doesn't think it is very bad. His symptoms show he is having problems but tests show it's not bad. We are very frustrated. Our doc is very good.

REPLY
Please sign in or register to post a reply.