HCM Fatigue and Poor Sleep - What Can I Do?

I’m using the cpap machine since January and I can’t believe what a difference it’s made. I sleep so well, wake up rested and it doesn’t take me hours in the mornings to gain strength and oxygen.
I didn’t know I had a sleep problem but now I wouldn’t sleep without it.

@stayhealthy2 I am concerned about your post! What "indicator" was the doctor looking for in your brother and son? An indicator is a mutant gene which may or may not have been discovered among the known HCM genes (mine has not been identified yet). Testing negative means just that - they do not have the mutation on the specific genes which have been identified to date. I am sorry that your dad died of a massive heart attack, so sad for you and your family. The husband of a friend did so, too, and it was during the autopsy that it was discovered he had HCM. Genetic testing was done and the husband's brother and one of his 3 children have the mutated gene; as does one of my friend's two sons. YES! every blood relative needs to be under the care of a HCM cardiologist specialist, grandchildren included. Everyone is susceptible until the mutant gene can be found and verified one way or the other in each person. I never knew anyone in my family to have it either when I was diagnosed, looking back, I know I inherited it from my dad who had the symptoms of HCM. There are "suspicious" heart issues for both his mother and siblings. My son and teenaged grandson get echoes, the grandson every two years because he is still growing. Please read https://mcpress.mayoclinic.org/healthy-heart/hypertrophic-cardiomyopathy-which-screenings-do-i-need-and-how-often/ and https://www.mayoclinic.org/departments-centers/hypertrophic-cardiomyopathy-clinic/overview/ovc-20442502. You may wish to do an intake with the Hypertrophic Cardiomyopathy Association (4HCM.org), a nonprofit that helps people navigate this disease. If at all possible, please associate yourself and family with a COE (Center of Excellence) for HCM where everyone will receive the best and most updated care. You posted your discussion over a month ago, what steps have you taken so far?

@walkinggirl
In response to your reply—I am under the care at the HCM Clinic at Centennial Heart in Nashville. My son and brother were tested and found to be negative for whatever indicates their likelihood of having the same problem in the future. So I was told my son’s children did not need to be tested. My brother has no children.

@stayhealthy2 My question is What Was Tested? If it was for the particular HCM gene causing your condition and they were not found to have it, then they are OK. If they were checked with echoes, until the gene is found/not found, the echoes should be repeated for changes periodically. By the way, FYI, Centennial in Nashville is not listed as a designated Center of Excellence (COE) for Hypertrophic Cardiomyopathy (HCM) by the Hypertrophic Cardiomyopathy Association (HCMA). Please do everything you can to protect your loved ones.

@lakehappy so glad it worked for you. Did you have a sleep study done to determine that you needed the CPAP?

@peggynurse I was scheduled but then hospitalized. The machine and trainer showed up at my home 2 days after my release.
Everyday I felt a bit better. Really cut down on the crippling fatigue

@lakehappy so glad you are daily feeling better. You must’ve been diagnosed with sleep apnea?