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Has anyone used Trelegy?

Posted by guinivere @guinivere, Oct 24, 2024

I have been on Advair HFA for a long time, over 10 years. My COPD per tests today is stable, but I have wondered if I should switch to something different. I did not know the doctor I saw today but I had had a PFT test, shared my thoughts about being so long on Advair & she right off the bat suggested Trelogy. A once a day discus inhaler, bye bye to Advair & Incruse! Now that I have switched, I am anxious, primarily because I didn't get to discuss this with her. OR my doctor! I am going to try to contact him tomorrow but meanwhile would like to hear from anyone re Trelogy &/or Advair.

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lizjlb | @lizjlb | Nov 20 7:00pm
In reply to @kmacky "I used trelegy - 2nd day my shortness of breath was GONE! I’m 73 and have..." + (show)
Profile picture for kmacky @kmacky

I used trelegy - 2nd day my shortness of breath was GONE! I’m 73 and have been inhalers my whole life since I was a toddler. I have to say this is the very first one that ever actually worked and improved my breathing. However, on about day 12, I started experiencing thrush on the roof of my mouth, with extreme painful sores and swelling, even though I practiced a rigid routine of rinsing my mouth and brushing my teeth as soon as I took my 1 puff daily.
I was so disappointed and had to discontinue. Hoping my pulmonologist will help me find something else in next weeks appointment.

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@kmacky. was it 100 or 200?

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lizjlb | @lizjlb | Nov 20 7:04pm
In reply to @rickjudy2012 "I’ve been using Trelegy Ellipta 100mcg for several years. The “rescue” inhalers were not helpful at..." + (show)
Profile picture for rickjudy2012 @rickjudy2012

I’ve been using Trelegy Ellipta 100mcg for several years. The “rescue” inhalers were not helpful at all.
Historically, excessive phlegm & coughing has not been an issue. I just stay short of breath with the least exertion, although, at rest, my oximeter reads 92-93 without supplemental oxygen. With the lease exertion, I have to have my M9 cylinder on 4liters/minute (wide open) just to walk 60’ to the car, then sit a minute until my heart rate goes down to 105 or thereabouts before I attempt to drive.
I’d like to know whether Trelegy Ellipta 200 mcg would provide any improvement.

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@rickjudy2012 not sure but 200 is only fda approved for Ashma not copd but I know a lot of docs put their patients on it.

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lizjlb | @lizjlb | Nov 20 7:08pm
In reply to @km6 "I was on trelegy for years, I was just put on breztri. I keep having to..." + (show)
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I was on trelegy for years, I was just put on breztri. I keep having to go back on prednisone, which is causing me other issues. It's too soon to tell if it's going to help or if I will go back on trelegy

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@km6 why?

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rickjudy2012 | @rickjudy2012 | Nov 20 8:02pm
In reply to @lizjlb "@rickjudy2012 not sure but 200 is only fda approved for Ashma not copd but I know..." + (show)
Profile picture for lizjlb @lizjlb

@rickjudy2012 not sure but 200 is only fda approved for Ashma not copd but I know a lot of docs put their patients on it.

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@lizjlb that’s what I had been told as well, but it seems some emphysema patients claim it’s helped them. It’s interesting to try to learn learn more.

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suzyq61 | @suzyq61 | Nov 21 2:18pm
In reply to @kmacky "I used trelegy - 2nd day my shortness of breath was GONE! I’m 73 and have..." + (show)
Profile picture for kmacky @kmacky

I used trelegy - 2nd day my shortness of breath was GONE! I’m 73 and have been inhalers my whole life since I was a toddler. I have to say this is the very first one that ever actually worked and improved my breathing. However, on about day 12, I started experiencing thrush on the roof of my mouth, with extreme painful sores and swelling, even though I practiced a rigid routine of rinsing my mouth and brushing my teeth as soon as I took my 1 puff daily.
I was so disappointed and had to discontinue. Hoping my pulmonologist will help me find something else in next weeks appointment.

Jump to this post

@kmacky trelegy wasn’t working so my doctor put me on breztri was much better. There are so many inhalers out there you just gotta find what what’s for you. I just started being out of breath not sure if my lungs are getting worse

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copdinny | @copdinny | Nov 22 10:23am
In reply to @km6 "I was on trelegy for years, I was just put on breztri. I keep having to..." + (show)
Profile picture for km6 @km6

I was on trelegy for years, I was just put on breztri. I keep having to go back on prednisone, which is causing me other issues. It's too soon to tell if it's going to help or if I will go back on trelegy

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@km6 I was on Trelegy for a long time -- until, several months ago, I had trouble inhaling the full dose. My doc switched me to Breztri, but I had a bad (flush) reaction to it. So now I'm on a combination of Spiriva Respimat and Advair.

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sizwhatitiz2 | @sizwhatitiz2 | 6 days ago
In reply to @foxhuff2 "@hazely I am on Trelegy 200 as well and some days I feel like I cannot..." + (show)
Profile picture for foxhuff2 @foxhuff2

@hazely I am on Trelegy 200 as well and some days I feel like I cannot catch my breath at all. I did speak to my doctor about it and he told me to keep trying with it. 🤦‍♀️Not much help and it scares me. Having this disease scares me and I know I will get worse as I get older. I am 74 now. Thanks for listening!

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@foxhuff2
Hi, I have been on Trelegy 200 for about five years now. I find sometimes before taking it that my O2 is at 98 or 99. So, I guess you can say it’s working for me.
I do still have shortness of breath, but that may me due to a heart valve issue I have.

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foxhuff2 | @foxhuff2 | 6 days ago
In reply to @sizwhatitiz2 "@foxhuff2 Hi, I have been on Trelegy 200 for about five years now. I find sometimes..." + (show)
Profile picture for sizwhatitiz2 @sizwhatitiz2

@foxhuff2
Hi, I have been on Trelegy 200 for about five years now. I find sometimes before taking it that my O2 is at 98 or 99. So, I guess you can say it’s working for me.
I do still have shortness of breath, but that may me due to a heart valve issue I have.

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@sizwhatitiz2 Hi, Thank you for the info. I will keep trying it. It may be too soon to tell. I am sorry to hear of your heart issue. Take care 🙂

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linda86 | @linda86 | 4 days ago

I call Trelegy a wonder drug. I have used it for years. My emphysema is getting worse and so I am now I have a medicine I use in a nebulizer. I used to have to go to the ER several times a year. Since 2019 I have only been in hospital one time only. I credit Trilogy for that.

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