1. < COPD: Chronic obstructive pulmonary disease
Profile picture for guinivere

Has anyone used Trelegy?

Posted by guinivere @guinivere, Oct 24, 2024

I have been on Advair HFA for a long time, over 10 years. My COPD per tests today is stable, but I have wondered if I should switch to something different. I did not know the doctor I saw today but I had had a PFT test, shared my thoughts about being so long on Advair & she right off the bat suggested Trelogy. A once a day discus inhaler, bye bye to Advair & Incruse! Now that I have switched, I am anxious, primarily because I didn't get to discuss this with her. OR my doctor! I am going to try to contact him tomorrow but meanwhile would like to hear from anyone re Trelogy &/or Advair.

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

Profile picture for linda86
linda86 | @linda86 | Aug 29 12:05pm

I called it my miracle drug. I was in the hospital 5 times and rehab for a month and a half in 2019. I have been in the hospital one time for 2 nights since I went on Trelegy. I think it might be time to try a new one but it has really helped me.

REPLY
Profile picture for johnnydale52
johnnydale52 | @johnnydale52 | Aug 30 11:42am

I just started using it about 2 weeks ago. Not sure how it’s working, I’m having respiratory issues now but not sure if it’s related to the Trillegy

REPLY
Profile picture for hicopd
hicopd | @hicopd | Aug 30 12:00pm

@johnnydale52 — if your O2 drops below 88% when you sleep, you qualify for a prescription for O2 and should definitely use it! I’ve been sleeping with O2 for nearly a decade and feel it really helps! I sleep through the night and wake rested. I have a quiet concentrator and keep it in room furthest from the bedroom and use long tubing to pipe the O2 from there to my nose with a Salter SOFT cannula. I’m convinced sleeping with O2 is keeping my brain & heart healthy.

REPLY
1 reply
Profile picture for johnnydale52
johnnydale52 | @johnnydale52 | Aug 31 6:49am
In reply to @hicopd "@johnnydale52 — if your O2 drops below 88% when you sleep, you qualify for a prescription..." + (show)
Profile picture for hicopd @hicopd

@johnnydale52 — if your O2 drops below 88% when you sleep, you qualify for a prescription for O2 and should definitely use it! I’ve been sleeping with O2 for nearly a decade and feel it really helps! I sleep through the night and wake rested. I have a quiet concentrator and keep it in room furthest from the bedroom and use long tubing to pipe the O2 from there to my nose with a Salter SOFT cannula. I’m convinced sleeping with O2 is keeping my brain & heart healthy.

Jump to this post

Hi, thanks for the info. I spent all day in the ER, I have Covid and Pneumonia! My SpO2 dropped to 85 for a few minutes but went up. I will keep monitoring, especially at night ( often awake). Sometimes I feel short of breath but my O2 is in the mid 90’s.

REPLY
Profile picture for hicopd
hicopd | @hicopd | Aug 31 12:37pm

You can only get reliable reading of O2 levels when sleeping with a recording pulse oximeter taped to your finger with alarm off. Your doctor can order it and it can be home in your own bed. Our O2 levels can drop once we are sleeping as most of us breathe more shallowly.

If you are awake, your reading is likely higher. Since I started sleeping with O2, my sleep has really improved. I strongly urge you to ask your doctor about a home overnight O2 study.

REPLY
1 reply
Profile picture for johnnydale52
johnnydale52 | @johnnydale52 | Aug 31 11:01pm
In reply to @hicopd "You can only get reliable reading of O2 levels when sleeping with a recording pulse oximeter..." + (show)
Profile picture for hicopd @hicopd

You can only get reliable reading of O2 levels when sleeping with a recording pulse oximeter taped to your finger with alarm off. Your doctor can order it and it can be home in your own bed. Our O2 levels can drop once we are sleeping as most of us breathe more shallowly.

If you are awake, your reading is likely higher. Since I started sleeping with O2, my sleep has really improved. I strongly urge you to ask your doctor about a home overnight O2 study.

Jump to this post

Thanks for the info, I will keep that in mind.
Johnny

REPLY
Profile picture for mpurnell53
mpurnell53 | @mpurnell53 | Sep 1 10:43am

I have chronic COPD and use Trelegy daily in the am. It helps me and I have had absolutely no issues with it. I have been on a few different steroids over the years. Sometimes it is good to switch things up. I wouldn't worry about taking it. Hope this helps ease your mind. Best wishes to you.

REPLY
Profile picture for crystalena
crystalena | @crystalena | Sep 1 12:19pm
In reply to @johnnydale52 "I’m newly diagnosed and get very anxious when my O2 gets low. Occasionally, wake up at..." + (show)
Profile picture for johnnydale52 @johnnydale52

I’m newly diagnosed and get very anxious when my O2 gets low. Occasionally, wake up at night with chest pain(emphysema) and use pursed lips technique to clear, then it’s hard to get back to sleep.

Jump to this post

Do you use oxygen at night?

REPLY
Profile picture for alexi6
alexi6 | @alexi6 | Sep 2 12:47pm
In reply to @guinivere "Thanks for this. I have pretty much decided to stick with my Advair. I have been..." + (show)
Profile picture for guinivere @guinivere

Thanks for this. I have pretty much decided to stick with my Advair. I have been it for over 10 years & I don't see any reason to discontinue it. Thanks for your input.

Jump to this post

I was on advair disc for years then went on symbicort. I've been back on advair for over a year because my advantage plan wouldn't cover symbicort. I'm on anthem now and they will cover both. I believe symbicort worked better for me, so I'm planning to go back on it

REPLY
View MoreView Less
Please sign in or register to post a reply.