Has anyone outrun a seizure

Posted by tonyde @tonyde, May 9 6:18pm

Has anyone tried running away from a seizure? I know it's a crazy question; no one can outrun a seizure. However, I've recently started coming out of a seizure with the sense I was trying to escape from the seizure.

I had a seizure in the car 2 days ago and have a memory of my wanting to open the door and run, obviously, I had no control over my actions.

It's important to note I have little, if any, memory of what happens during a seizure. I have no way of knowing if that was really a thought during a seizure or if I came out of it wishing I could have.

Anyone have a similar experience?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

tonyde | @tonyde | May 22 5:29pm

In reply to @santosha "Hi @tonyde Though I am on AED medication, I also try to manage my triggers and..." + (show)

I was diagnosed with frontal lobe seizures. I avoid the "E" word, it's another way to help me stay positive. A seizure is an incident and not a disease. An incident is a short-term issue that goes away. Epilepsy is a disease that has no cure, it can only be controlled.

tonyde | @tonyde | May 27 2:27pm

In reply to @santosha "@jakedduck1 I believe I have forgotten to add this link; it is an interview with Dr...." + (show)

Very interesting, thank you. I have an appointment with a specialist this week for possible brain mapping. I may be able to gain more control over my seizures by knowing the functions of the area of my brain causing the seizures. Half of the battle is believing that whatever you're doing is working.

Chris Gautier | @santosha | May 27 3:38pm

My pleasure, @tonyde !
Knowing better where your seizures start (left or right side of the frontal lobe) will certainly be helpful in applying the Andrews-Reiter approach.
Good appointment!
Chris (@santosha)

Leonard | @jakedduck1 | May 27 6:35pm

In reply to @tonyde "Very interesting, thank you. I have an appointment with a specialist this week for possible brain..." + (show)

@tonyde
Are you considering surgery?
Jake

tonyde | @tonyde | May 28 10:10am

In reply to @jakedduck1 "@tonyde Are you considering surgery? Jake" + (show)

Not considering surgery at this time, possible never. Mapping identifies the areas of the brain where the seizure starts and that will help my dcotor find the right medication and/or treatment plan.

I've been watching some videos and realize I may also be able to help myself. I notice speaking can be difficult just before or in the early stage of a seizure. Should my seizures begin in the section of the brain controlling speech, then maybe the trigger is my frustration with being unable to organize my words. However, if it's another section of the brain then the real tigger is what I did 5 or 10 minutes earlier.

That may help be control my seizures or maybe believing it does will be the real help. I need to stay positive. I refuse to allow myself to see my situation as helpless.

tonyde | @tonyde | 4 days ago

In reply to @jakedduck1 "closetmonster93 I have only had one aura. It was a déjà vu episode and it didn't..." + (show)

Someone is with me most of the time and can help me get to a safe area. There are times when I was able to get to a safe area under my own power or fall to my knees and try to crawl before the seizure hits. Then there are the middle of the night seizure where I find myself on the floor.