Has anyone outrun a seizure
Has anyone tried running away from a seizure? I know it's a crazy question; no one can outrun a seizure. However, I've recently started coming out of a seizure with the sense I was trying to escape from the seizure.
I had a seizure in the car 2 days ago and have a memory of my wanting to open the door and run, obviously, I had no control over my actions.
It's important to note I have little, if any, memory of what happens during a seizure. I have no way of knowing if that was really a thought during a seizure or if I came out of it wishing I could have.
Anyone have a similar experience?
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Hi @jakedduck1
I've done some research and learned that patients with generalized seizures can indeed experience prodromes.
Perhaps you've had these warning signs but, since this concept is new to you, you haven't recognized them yet. I experienced the same situation—once I learned about prodromes, I began paying closer attention to my body's subtle signals. For me, they function as a kind of seizure sensitivity or pre-aura. This might be worth discussing with your doctor at your next appointment.
Here are some links on the Andrews-Reiter approach that you might find helpful:
https://www.andrewsreiter.com/
https://epilepsyconference.com/aboutar.html
https://pubmed.ncbi.nlm.nih.gov/22056814/
https://www.youtube.com/watch?
I hope this also works for you!
Chris (@santosha)
I was recently watching a TV show, one scene had flashing lights bouncing all across the screen. I had an aura of a seizure, went into another room, closed my eyes, cleared my mind and rested. I don't know if that avoided a seizure but your comments are encouraging. Thank you
@jakedduck1
I believe I have forgotten to add this link; it is an interview with Dr. Donna Andrews.
Chris
@santosha
Thank you for sharing
Jake
This is great news, @tonyde! When you encounter flashing lights (a known trigger for certain types of epilepsy), do you typically experience only an aura, or does it progress to a complex partial seizure or even to tonic-clonic seizure? If the latter, you've likely prevented a more severe seizure by moving to another room, closing your eyes, and resting.
If you have a chance, I recommend watching one of the videos I shared with @jakedduck1 called "Stopping Seizures Before They Occur." It features someone with epilepsy who follows the Andrews-Reiter approach. Flashing lights are also one of his seizure triggers, and in the video, he explains his strategies for managing this trigger to prevent seizures.
Have a restful evening and night!
Chris (@santosha)
I'm pleased you brought up learning to recognize your impending seizure signals. I read an article about it 6 months ago and have been able to recognize a signal on a few occasions early enough to get to a safe place, close my eyes and relax. Some of my seizures are minor and others are well, not so minor.
I've convinced myself that recognizing signals enables me to control my seizures. It doesn't matter if I'm right or wrong about being able to control my seizures. What is important it helps me stay positive and that's half the battle.
Flashing lights are painful for me, especially police vehicles. I've had some issues with flashing lights, no tonic-clonic seizure. I close my eyes, turn away and leave the room whenever there are flashing lights.
I had an incident during a 2 hour EEG done by a technician. My eyes were closed, I was relaxed, almost asleep, then the flashing lights started and ran for half minute or so. My eyes felt like they were vibrating, then my cheeks, electric sparks were going up and down my arms and my leg was felt like it was bouncing against the wall. That's all I remember.
My neurologist reviewed the report and referred me for brain mapping. He said, "You're taking a lot of seizure medications and shouldn't be having these types of issues".
Hi @tonyde
Though I am on AED medication, I also try to manage my triggers and avoid them. I do not rely solely on the medication itself.
Flashing lights are a typical trigger in some types of epilepsy, and it seems that it is your case. I read that flashing lights are a trigger in some forms of Focal Epilepsy, particularly those originating in the occipital lobe. I'm curious to know what kind of epilepsy you have, if you feel comfortable sharing it with us.
Have a nice day!
Chris (@santosha)
Hi @tonyde again
Reading some older posts, I remembered you have a seizure dog, something I would very much like to have one day when moving into a house.
Just an idea: wouldn't your seizure dog be able to help you better identify your prodromes? From my readings, I have learned that seizure dogs can sense seizures coming some hours before they occur. It looks like dogs can sense our prodromes much easier and faster than we humans 🙂
Chris (@santosha)
Hi @tonyde
I just came across this article and thought of your sensitivity to flashing lights.
https://www.myepilepsyteam.com/resources/can-too-much-screen-time-cause-seizures?utm_source=iterable&utm_medium=email&utm_campaign=epilepsy_roc&mht_token=BAhJIh1jaHJpc2p2Z2F1dGllckBnbWFpbC5jb20GOgZFVA%3D%3D--cefe946fd939c2ae2d7f8edb18f348f1c22cadf1eb508241b1105472185d88d5
Chris (@santosha)