Has anyone outrun a seizure

Posted by tonyde @tonyde, May 9 6:18pm

Has anyone tried running away from a seizure? I know it's a crazy question; no one can outrun a seizure. However, I've recently started coming out of a seizure with the sense I was trying to escape from the seizure.

I had a seizure in the car 2 days ago and have a memory of my wanting to open the door and run, obviously, I had no control over my actions.

It's important to note I have little, if any, memory of what happens during a seizure. I have no way of knowing if that was really a thought during a seizure or if I came out of it wishing I could have.

Anyone have a similar experience?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Hi @jakedduck1
I've done some research and learned that patients with generalized seizures can indeed experience prodromes.
Perhaps you've had these warning signs but, since this concept is new to you, you haven't recognized them yet. I experienced the same situation—once I learned about prodromes, I began paying closer attention to my body's subtle signals. For me, they function as a kind of seizure sensitivity or pre-aura. This might be worth discussing with your doctor at your next appointment.
Here are some links on the Andrews-Reiter approach that you might find helpful:
https://www.andrewsreiter.com/
https://epilepsyconference.com/aboutar.html
https://pubmed.ncbi.nlm.nih.gov/22056814/


https://www.youtube.com/watch?
I hope this also works for you!
Chris (@santosha)

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@santosha

@tonyde
@dannoyes
@closetmonster93
@jakedduck1
Good Morning to All of You,
Well before being diagnosed with epilepsy (left temporal lobe epilepsy with mesial sclerosis), I had learned that when an aura started, I could interrupt it many times by stopping what I was doing. Example: when I was reading a book or just working on my computer, when an aura started, I would stop immediately those activities and get up and walk, and could many times interrupt it. Much later, after the diagnosis of my epilepsy, I learned to focus my attention on my left hand when an aura was starting. This activates my right temporal lobe (which is normal) to take control. By this, I could many times interrupt my aura or simple partial seizures. After interrupting my aura, I focus on the middle of my brain, between the two hemispheres, where no seizures can occur. All that was taught to me by Dr. Donna Andrews, from the Andrews-Reiter approach.
With the practice of yoga, I have been learning to identify my prodromes, which are early warning symptoms or sensations that occur before an actual seizure. When I have prodromes, I take it easy on myself, rest and practice the focus on the middle of my brain.
But when my seizures evolve from simple partial (auras) to complex partial, there is little that I can do. I can, in some circumstances, shout "seizure" or appear in my husband's home office with my blank stare (he already knows well this blank stare of mine) when he is around at home. After that, I cannot remember a thing anymore.
For those whose seizures start straight away with a generalized seizure, those experiences I share are not applicable. I understand this is your situation @jakedduck1, correct?
With the years in my epilepsy journey, I have observed that my auras have become shorter in time and sometimes are unperceived. I have thus focused more and more on identifying my prodromes.
For those interested, I can share some links regarding the Andrews-Reiter approach.
Take care!
Chris (@santosha)

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I was recently watching a TV show, one scene had flashing lights bouncing all across the screen. I had an aura of a seizure, went into another room, closed my eyes, cleared my mind and rested. I don't know if that avoided a seizure but your comments are encouraging. Thank you

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@santosha

Hi @jakedduck1
I've done some research and learned that patients with generalized seizures can indeed experience prodromes.
Perhaps you've had these warning signs but, since this concept is new to you, you haven't recognized them yet. I experienced the same situation—once I learned about prodromes, I began paying closer attention to my body's subtle signals. For me, they function as a kind of seizure sensitivity or pre-aura. This might be worth discussing with your doctor at your next appointment.
Here are some links on the Andrews-Reiter approach that you might find helpful:
https://www.andrewsreiter.com/
https://epilepsyconference.com/aboutar.html
https://pubmed.ncbi.nlm.nih.gov/22056814/


https://www.youtube.com/watch?
I hope this also works for you!
Chris (@santosha)

Jump to this post

@jakedduck1
I believe I have forgotten to add this link; it is an interview with Dr. Donna Andrews.


Chris

REPLY
@santosha

@jakedduck1
I believe I have forgotten to add this link; it is an interview with Dr. Donna Andrews.


Chris

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@santosha
Thank you for sharing
Jake

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@tonyde

I was recently watching a TV show, one scene had flashing lights bouncing all across the screen. I had an aura of a seizure, went into another room, closed my eyes, cleared my mind and rested. I don't know if that avoided a seizure but your comments are encouraging. Thank you

Jump to this post

This is great news, @tonyde! When you encounter flashing lights (a known trigger for certain types of epilepsy), do you typically experience only an aura, or does it progress to a complex partial seizure or even to tonic-clonic seizure? If the latter, you've likely prevented a more severe seizure by moving to another room, closing your eyes, and resting.
If you have a chance, I recommend watching one of the videos I shared with @jakedduck1 called "Stopping Seizures Before They Occur." It features someone with epilepsy who follows the Andrews-Reiter approach. Flashing lights are also one of his seizure triggers, and in the video, he explains his strategies for managing this trigger to prevent seizures.
Have a restful evening and night!
Chris (@santosha)

REPLY
@santosha

Hi @jakedduck1
I've done some research and learned that patients with generalized seizures can indeed experience prodromes.
Perhaps you've had these warning signs but, since this concept is new to you, you haven't recognized them yet. I experienced the same situation—once I learned about prodromes, I began paying closer attention to my body's subtle signals. For me, they function as a kind of seizure sensitivity or pre-aura. This might be worth discussing with your doctor at your next appointment.
Here are some links on the Andrews-Reiter approach that you might find helpful:
https://www.andrewsreiter.com/
https://epilepsyconference.com/aboutar.html
https://pubmed.ncbi.nlm.nih.gov/22056814/


https://www.youtube.com/watch?
I hope this also works for you!
Chris (@santosha)

Jump to this post

I'm pleased you brought up learning to recognize your impending seizure signals. I read an article about it 6 months ago and have been able to recognize a signal on a few occasions early enough to get to a safe place, close my eyes and relax. Some of my seizures are minor and others are well, not so minor.

I've convinced myself that recognizing signals enables me to control my seizures. It doesn't matter if I'm right or wrong about being able to control my seizures. What is important it helps me stay positive and that's half the battle.

REPLY
@santosha

This is great news, @tonyde! When you encounter flashing lights (a known trigger for certain types of epilepsy), do you typically experience only an aura, or does it progress to a complex partial seizure or even to tonic-clonic seizure? If the latter, you've likely prevented a more severe seizure by moving to another room, closing your eyes, and resting.
If you have a chance, I recommend watching one of the videos I shared with @jakedduck1 called "Stopping Seizures Before They Occur." It features someone with epilepsy who follows the Andrews-Reiter approach. Flashing lights are also one of his seizure triggers, and in the video, he explains his strategies for managing this trigger to prevent seizures.
Have a restful evening and night!
Chris (@santosha)

Jump to this post

Flashing lights are painful for me, especially police vehicles. I've had some issues with flashing lights, no tonic-clonic seizure. I close my eyes, turn away and leave the room whenever there are flashing lights.

I had an incident during a 2 hour EEG done by a technician. My eyes were closed, I was relaxed, almost asleep, then the flashing lights started and ran for half minute or so. My eyes felt like they were vibrating, then my cheeks, electric sparks were going up and down my arms and my leg was felt like it was bouncing against the wall. That's all I remember.

My neurologist reviewed the report and referred me for brain mapping. He said, "You're taking a lot of seizure medications and shouldn't be having these types of issues".

REPLY

Hi @tonyde
Though I am on AED medication, I also try to manage my triggers and avoid them. I do not rely solely on the medication itself.
Flashing lights are a typical trigger in some types of epilepsy, and it seems that it is your case. I read that flashing lights are a trigger in some forms of Focal Epilepsy, particularly those originating in the occipital lobe. I'm curious to know what kind of epilepsy you have, if you feel comfortable sharing it with us.
Have a nice day!
Chris (@santosha)

REPLY
@santosha

Hi @tonyde
Though I am on AED medication, I also try to manage my triggers and avoid them. I do not rely solely on the medication itself.
Flashing lights are a typical trigger in some types of epilepsy, and it seems that it is your case. I read that flashing lights are a trigger in some forms of Focal Epilepsy, particularly those originating in the occipital lobe. I'm curious to know what kind of epilepsy you have, if you feel comfortable sharing it with us.
Have a nice day!
Chris (@santosha)

Jump to this post

Hi @tonyde again
Reading some older posts, I remembered you have a seizure dog, something I would very much like to have one day when moving into a house.
Just an idea: wouldn't your seizure dog be able to help you better identify your prodromes? From my readings, I have learned that seizure dogs can sense seizures coming some hours before they occur. It looks like dogs can sense our prodromes much easier and faster than we humans 🙂
Chris (@santosha)

REPLY
@santosha

This is great news, @tonyde! When you encounter flashing lights (a known trigger for certain types of epilepsy), do you typically experience only an aura, or does it progress to a complex partial seizure or even to tonic-clonic seizure? If the latter, you've likely prevented a more severe seizure by moving to another room, closing your eyes, and resting.
If you have a chance, I recommend watching one of the videos I shared with @jakedduck1 called "Stopping Seizures Before They Occur." It features someone with epilepsy who follows the Andrews-Reiter approach. Flashing lights are also one of his seizure triggers, and in the video, he explains his strategies for managing this trigger to prevent seizures.
Have a restful evening and night!
Chris (@santosha)

Jump to this post

REPLY
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