Mayo Clinic Connect
Has anyone heard of an artificial kidney being made?
Liked by sparker15
I am waiting for the bioartificial kidney because I had complications from one of the former transplant drugs, Prednisone. The whole experience was wonderful, but my bones could not handle the steroid.
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kathleenla, This is extremely interesting to me. I am 9 years post transplant, and have been off prednisone for 4 years. The doctors are monitoring my kidney, which is to be expected. My only bone issue is osteopoenia . Being female, post menopause, and post transplant are all of concern, however.
You have mentioned that you are back on dialysis.
This is new to me and I am curious. I look forward to hearing from you to learn more about your experience.
Are you on the transplant list concurrent with your wait for the artificial kidney?
Would you care to share some of what kind of encouraging information you received in your response from Dr Shuvo?
Yes, I am awaiting the bioartificial kidney. There is no waiting list because they estimate it will be ready about 2020 or so. They will contact everyone in their database. This miracle will be available to all patient who need it, through their medical facility.
I received a personal response from Dr. Shuvo. I am so happy I am beside myself. I am age 65 also post menopausal. Osteroposis to. I will later.
Liked by Rosemary, Volunteer Mentor, Ginger, Volunteer Mentor, kamama94
Rosemary, I apologize for the abrupt goodbye in my last response to you. I did not realize it was time to be disconnected from dialysis.
When Dr. Shuvo from UCSF responded to my email, he discussed where they are in the project and expect to begin clinical trials in 2020. Afterward they expect to be approved by the FDA and will provide this product to all those who need it. If you Google (the kidney project) it will contain ( Frequently Asked Questions). This is very informative.
I do not believe I mentioned that my medical problems began when I developed Type 1 Juveniles at age 9; I am 65 now. Kidney failure at age 40; first kidney transplant at 40. It lasted 14 years and failed at age 55 or so. The failure was due to the Type 1 Diabetes and anti rejection drugs. Since then, eight years ago, I have been on dialysis.
Please take care and write if you can.
Hi, Kathleenia, I accept your apology, and now I offer you mine.
Thank you for sharing the information. The advances in medical treatments is and for amazing. I am happy to live in this age of innovations. I hope and pray that the timing for FDA approval will come soon.
How are you feeling during this interim? And how are you being monitored now that your kidney has been rejected? I honestly do not know what this experience might be like for you. I appreciate learning from/with you.
There has been a flurry of activity in the Kidney and Bladder Group, where some members are discussing CKD diets. I want to share these with you, just in case you have something to share, or if you are looking for information. I am finding it extremely interesting. I have a feeling that you have a wealth of knowledge from your 14 year kidney history.
3rd stage kidney disease
Confused About Stage 3 CKD Diet
Hope to hear from you soon.
Yes. I believe they are developing or have developed an artificial kidney in San Francisco. I'd be interested in learning more as my nephrologist feels I never would be a candidate for the transplant list.
Liked by Rosemary, Volunteer Mentor
Going into clinical trials 2020 in SF….size of a tea cup, inserted into your back. Never need to remove…hoping to make it available to the masses ASAP! Same group just invented a pancreas….
Liked by Ginger, Volunteer Mentor, kamama94
Here's the link to the UCSF website that was shared in an earlier post.
The frequently asked questions page for patients is particularly informative https://pharm.ucsf.edu/kidney/device/faq
Fascinating and encouraging!
You had asked how I felt after the kidney rejection. It is a long story of ups and downs.
When my transplanted kidney relected, I went on dialysis.Six years later, I experienced extreme pain in my lower right side. My urologist thought it was a bladder problem brcause I was passing blood from my bladder. Turns out it was my old transplant disentegrating, I also had to consider having my bladder removed which would have been a HUGE mistake. They removed the decaying kidney and it truly knocked me off my feet. Now, six months later, I am okay. If someone with a transplant has severe pain,DO NOT assume it is the bladder.
I am content now,waiting for the bioartificial kidney. I am also living happy now with a husband who is wonderful.
Please take care and be happy.
Liked by kamama94
For the bioartificial kidney, created at UCSF, go to "kidney project". Select contact us, complete the form. This will be how they contact you when it will be ready. It will be available to all who need it and will be available at your medical facility. No antirejection meds required and best of all, no fluid restriction! I read the clinical trials will be 2019/2020.
I am planning to exercise and try to keep mysevlf in decent shape for the surgery. By the way, the bioartificial kidney is placed in a patient's lower front abdomen, just like a normal transplant, not your back.
They are also working on an artificial kidney at Vanderbilt
Yes, I believe it is Dr. Fissell.
Definitely. UCSF, Dr. Shuvo Roy, go to the website “kidney project”. It is supposed to be available to all who need it by 2020. No rejection drugs and no dietary restrictions! Drs. Roy & Fissell are miracle lworkers.
I watched it on "You Tube" I think . Very interesting..
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