Has anyone had breast cancer with negative mamograms and no lesions?
In January 2024, I had a hip X-ray due to a fall. The ER doctor said I had a lesion on my hip bone. Eventually, a biopsy was done, and I was diagnosed with ER+PR+HER2- breast cancer. My lesions were too numerous to count, but none were in the breast. I am currently on Ibrance and Letrozole and am "stable". It just seems strange to have breast cancer, but it's not in my breasts. Has this happened to anyone else?
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I've had a cousin & good friend both diagnosed with breast cancer, one found in neck & one found in stomach - they both had PET scans & MRIs to find the origin in their breasts as they were told it's origin was in breast and spread through lymphatic system or blood. The MRI was given to help find what the mammogram didn't show. I'm glad yours is stable!!!
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3 ReactionsI had a cough that developed in the spring of '22. It wasn't unusual due to allergies so I went to my doctor and a chest X-ray showed a very small nodule on the right side and thought it was pneumonia. A month later and short of breath I went to the ER which I'm lead to the diagnosis of stage 4 breast cancer in my right lung, pleura, lymph nodes, sternum and ribs. I was a mess. I had pleural fluid and a drain. My first treatment took all of it away within 3 months. I'm on my second line now, and still doing great.
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11 ReactionsYes I had negative mammograms and ultrasounds, turns out after 6 months of trying to locate my primary cancer I had metastatic breast cancer. The cells had transferred to my abdomen where it spread to a mass tumour. I am now on IBrance and letrozole and I had 9 organs removed.
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8 ReactionsIn January 2020, my ob/gyn read my mammogram from the month before. It showed nothing.
But since my older sister had breast cancer ten years before and aunts on both sides of the family has breast cancer, she ordered an MRI for July. It was then that my cancer journey began with a diagnosis of DCIS. Now until I die, every year, I will have a mammogram followed by an MRI six months later.
The protocol is that you can’t get an MRI without a mammogram first.
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3 Reactions@pinkjjj
I’m sorry, I was answering another comment but see it listed on your thread. I am so sorry!
My understanding is that breast cancer can be found in other organs.
@beyourownadvocate
We are “sisters”, my DCIS did not show on mammogram either or ultrasound, no calcifications. I had a slight nipple discharge, (no family hx) so they ordered the MRI which showed the DCIS. You have a great provider, they were diligent and it paid off. I have my first screens after treatment in Feb, pretty nervous about them. I did have a small foci of invasive cancer imbedded in the DCIS. Lumpectomy, radiation and anastrozole.
How about you?
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3 Reactions@ruffianfan55
Same.
I had a hematoma inside my breast from tissue being removed. Long story, it resulted in cellulitis. It truly caused a lot of problems in treatment.
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1 Reaction@beyourownadvocate
So sorry, that sounds awful! I hope that everything eventually resolved. 💚
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2 Reactions@beyourownadvocate Thank you and I wish I knew that sooner. Yes, I had cancer in my right breast but it was only seen in my left and the docs did not want to do a double mastectomy. I pushed and had the double and they came back to me a week later to say they found cancer in my previously stated “cancer free” breast.
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7 Reactions@stephlb That’s awful. I’m so sorry. Best to you.
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2 Reactions