Has anyone had an enlarged spleen?

Hi @b52770 I’m sure this is a time of anxiety for you and your husband with his recent discovery of his enlarged spleen. It looks like he’s also waiting for a biopsy from an area discovered on his PET scan?

As @kjoed53 mentioned in their reply to you, people with PV can develop an enlarged spleen. That’s not uncommon with any blood condition. The spleen filters your blood, so when you have polycythemia vera, the excess cells tend to collect in that organ.
With his spleen measuring 28 cm (11+ inches) your husband must feel pretty uncomfortable from pressure and pain with bending over, eating or breathing because it’s taking up space in the abdominal area. Medications such as Jakafi, which is also used to treat the symptoms of PV, can help reduce spleen size. So your husband’s doctor may suggest a medication change. Or, sometimes removal of the spleen is also recommended to help ease the discomfort.

Is the lesion that was discovered on his PET scan on his spleen or other organ? Is there a biopsy on the schedule soon?

Hi @b52770 I’m sure this is a time of anxiety for you and your husband with his recent discovery of his enlarged spleen. It looks like he’s also waiting for a biopsy from an area discovered on his PET scan?

As @kjoed53 mentioned in their reply to you, people with PV can develop an enlarged spleen. That’s not uncommon with any blood condition. The spleen filters your blood, so when you have polycythemia vera, the excess cells tend to collect in that organ.
With his spleen measuring 28 cm (11+ inches) your husband must feel pretty uncomfortable from pressure and pain with bending over, eating or breathing because it’s taking up space in the abdominal area. Medications such as Jakafi, which is also used to treat the symptoms of PV, can help reduce spleen size. So your husband’s doctor may suggest a medication change. Or, sometimes removal of the spleen is also recommended to help ease the discomfort.

Is the lesion that was discovered on his PET scan on his spleen or other organ? Is there a biopsy on the schedule soon?

@loribmt there is a lesion on his right hip bone and one on his L2 . We are waiting for the hospital to schedule the biopsy. This will be done at the hip lesion.

@b52770 Well, I certainly wish only good news for your husband. Personally, I’d rather just know what I’m dealing with so I can face it head on. The waiting is the worst isn’t it? Will you please keep me updated?