Has anyone had a blood patch for their migraines?

Posted by mikayla @mikaylar, Nov 1, 2025

Neurologist is trying to determine if I have a leak in my spine causing my constant headache and dizziness for 6 yrs/2 mos. I have had 6 blood patches over the years. Has anyone else dealt with this?

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Profile picture for sarajohns @sarajohns

@mikaylar- Keep on them to get seen ! It's amazing how long it takes to get in to see a doctor now days. If someone referred you to a neurologist you could see if they could mark it as urgent since it has been going on so long. That helped for me ! Good luck

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Thanks Sara. I now have all 4 MRIs rescheduled because the hospital that did them screwed them up.

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I have had 6 and might be having another. It would be for a CSF leak. Can anyone tell me that it ha worked for them. My first ond many years ago worked after 5 weeks, but the headache came back in 2 years. I am talking a constant, nagging headache all day/all the time with dizziness. Help!

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Profile picture for mikayla @mikaylar

I have had 6 and might be having another. It would be for a CSF leak. Can anyone tell me that it ha worked for them. My first ond many years ago worked after 5 weeks, but the headache came back in 2 years. I am talking a constant, nagging headache all day/all the time with dizziness. Help!

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@mikaylar I have similar, have you been able to figure this out. I am investigating IJV from vascular eagles or other venous congestion. My ENT is at Jefferson, Cognetti.

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Profile picture for penny333 @penny333

@mikaylar I have similar, have you been able to figure this out. I am investigating IJV from vascular eagles or other venous congestion. My ENT is at Jefferson, Cognetti.

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Penny, I am having a mylogram on August 6 & a blood patch on August 20 at Jeff.

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Profile picture for mikayla @mikaylar

I have had 6 and might be having another. It would be for a CSF leak. Can anyone tell me that it ha worked for them. My first ond many years ago worked after 5 weeks, but the headache came back in 2 years. I am talking a constant, nagging headache all day/all the time with dizziness. Help!

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@mikaylar My husband had to have a blood patch after they did a spinal tap. I came into his room and was told he had just gotten up to go to the restroom. Absolute no-no after a spinal tap. I was furious. Sure enough, he started having dizziness and a blinding headache. The doctor discharged him saying he had the flu. This was years ago, so no connection to Covid. I told him there was no way that was the problem. No one would listen. After he was home less than 24 hours, the doctor called apologizing. He said he would make it right. I told him he would never touch my husband again. We then went back for the blood patch. That doctor listened and knew what was wrong right away. It definitely worked for him, but the, we knew the source. I sure hope you get help. Has anyone looked into possible Meniere's Disease ?

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Profile picture for nannybb @nannybb

@mikaylar My husband had to have a blood patch after they did a spinal tap. I came into his room and was told he had just gotten up to go to the restroom. Absolute no-no after a spinal tap. I was furious. Sure enough, he started having dizziness and a blinding headache. The doctor discharged him saying he had the flu. This was years ago, so no connection to Covid. I told him there was no way that was the problem. No one would listen. After he was home less than 24 hours, the doctor called apologizing. He said he would make it right. I told him he would never touch my husband again. We then went back for the blood patch. That doctor listened and knew what was wrong right away. It definitely worked for him, but the, we knew the source. I sure hope you get help. Has anyone looked into possible Meniere's Disease ?

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I have had 6 blood patches before, all to try to help this headache.

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Profile picture for mikayla @mikaylar

I have had 6 blood patches before, all to try to help this headache.

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@mikaylar That is way over the top. Did you have spinal surgery at any point in time? I know my husband's brain began to shrink (?) down into his skull because he had less and less fluid in his brain. I watched what he went through. He was miserable. I feel so bad for you. What type of doctor is treating you? Is it always the same doctor? 💕

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Profile picture for nannybb @nannybb

@mikaylar That is way over the top. Did you have spinal surgery at any point in time? I know my husband's brain began to shrink (?) down into his skull because he had less and less fluid in his brain. I watched what he went through. He was miserable. I feel so bad for you. What type of doctor is treating you? Is it always the same doctor? 💕

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I am at Jefferson Headache Center in Philly, No, this will be the 4th new doctor. One was at Penn in Philly. This is a new technique.

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Profile picture for nannybb @nannybb

@mikaylar That is way over the top. Did you have spinal surgery at any point in time? I know my husband's brain began to shrink (?) down into his skull because he had less and less fluid in his brain. I watched what he went through. He was miserable. I feel so bad for you. What type of doctor is treating you? Is it always the same doctor? 💕

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BTW: someone on this site has had 9 blood patches

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many people with suspected or confirmed Cerebrospinal Fluid Leak have needed multiple epidural blood patches over the years because some leaks are very difficult to locate, may only partially seal, or can reopen after temporary improvement, so your experience of dealing with constant headaches, dizziness and repeated blood patches for years is something others with chronic CSF leaks do unfortunately report, especially when symptoms include positional headaches, pressure sensations, neck pain, tinnitus, brain fog or feeling worse upright and somewhat better lying down, and many patients also describe long delays in diagnosis because spinal fluid leaks are often mistaken for chronic migraines or other neurological conditions before more specialised imaging or targeted treatment is pursued.

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