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Has anyone else been diagnosed with vestibular hypofunction

Posted by blessedsista24 @blessedsista24, Jan 8, 2025

I had noticed while walking in an aisle that I would start walking sideways to my right and then I would get really unbalanced so I'll let it go on for a while and then I was at work and about passed out and I could not walk by myself so I went to the doctor she referred me to all kind of specialist and to come to find out they can always find out that it is something called vestibular hypofunction and also I have neuropathy and my feet and legs but is really aggravating because I can't go into a big store without being so overwhelmed with all the people walking around me it makes me really dizzy and it it's just aggravating and tiring does anyone else have this problem it's been going on for 16 months I can't drive I can't walk without a cane.

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jimsmith12 | @jimsmith12 | Jan 9, 2025

Hi..I have the same problems.Bilateral Vestibular Hypofunction. It is hard to do anything. I also have stage 4 lung cancer. I rehab but it doesn’t do much. Dr. Says I have to retrain my brain. I have lost weight. Always dizzy and unbalanced. I take lorazepam for anxiety. I take oxycodone for pain. I live alone but have good support. I’m sorry this is probably not helping much..

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blessedsista24 | @blessedsista24 | Jan 9, 2025
In reply to @jimsmith12 "Hi..I have the same problems.Bilateral Vestibular Hypofunction. It is hard to do anything. I also have..." + (show)
Profile picture for jimsmith12 @jimsmith12

Hi..I have the same problems.Bilateral Vestibular Hypofunction. It is hard to do anything. I also have stage 4 lung cancer. I rehab but it doesn’t do much. Dr. Says I have to retrain my brain. I have lost weight. Always dizzy and unbalanced. I take lorazepam for anxiety. I take oxycodone for pain. I live alone but have good support. I’m sorry this is probably not helping much..

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Thanks ❤️
Yeah that's what they tell me retrain the brain.
Sorry you are going through stage 4 lung cancer. Praying for you 🙏.

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vondawelsh56 | @vondawelsh56 | Sep 25 10:27am

Ive been dianosed with vestibular hypofunction and 3PD. I have dizziness all the time, vision problems and ear fullness. Does this sound like the same thing any of you have . Ive been to several doctors and the tell me different things.

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ritacous40 | @ritacous40 | Sep 27 1:38pm
In reply to @vondawelsh56 "Ive been dianosed with vestibular hypofunction and 3PD. I have dizziness all the time, vision problems..." + (show)
Profile picture for vondawelsh56 @vondawelsh56

Ive been dianosed with vestibular hypofunction and 3PD. I have dizziness all the time, vision problems and ear fullness. Does this sound like the same thing any of you have . Ive been to several doctors and the tell me different things.

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@vondawelsh56 I have suffered from Vestibular neurities off and on for years but am free now. I asked my neurologist why I till feel unstable and he explained that although I no longer have the symptoms the brain continues to think I do! There seems not to be a cure for this irritating and disturbing hangover. However, this is only obvious when I walk and have no other symptons as you describe. They sound dreadful and obviously there seems not to be a cure. You have my sympathy

RitaCousins19

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