rufus444
@smiles444
@smiles444
Posts: 10
Joined: Aug 23, 2017
Has anyone been diagnosed with Abdominal Wall Pain
Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett’s test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?
Liked by graceandpeace
growly
@growly
@growly
Posts: 10
Joined: Sep 21, 2018
4 years now,I've lived with it everyday. Had all the diagnostics you listed. The only thing that helped a little was the injections. 6 of them one morning. All in my lower abdomen. It was a cocktail. Beupivicain,Cannalog, and something else. (Please excuse the spelling). But those are just a bandaid.Im currently switching doctors. So fingers crossed. I can take some pain. Broke my back 3 times, both shoulders twice, etc. But the pain from this, everyday is unreal. If I didn't have kids, I wouldn't be here anymore. Good luck, and please keep us posted. I'll do likewise.
4 years now,I've lived with it everyday. Had all the diagnostics you listed. The only thing that helped a little was the injections. 6 of them one morning. All in my lower abdomen. It was a cocktail. Beupivicain,Cannalog, and something else. (Please excuse the spelling). But those are just a bandaid.Im currently switching doctors. So fingers crossed. I can take some pain. Broke my back 3 times, both shoulders twice, etc. But the pain from this, everyday is unreal. If I didn't have kids, I wouldn't be here anymore. Good luck, and please keep us posted. I'll do likewise.
With all the reading and research I've done, it's clear to me that medical care in the U.S. is useless in treating chronic pain. (How do we even find each other here, since we're posting under "DIGESTIVE HEALTH"?!) I've had 12 physicians and 2 P.A.s near home brusoff presumably because all scans, tests, etc. were negative. MDs won't believe the pain, so we're labeled as drug seekers! Outside the U.S., there are a number of documented successful treatments (all of which we've been denied in the U.S.) Here all they do is hand me a prescription..24 in 2 years…none for neuropathy. I had to diagnose abdominal wall pain myself (later substantiated by University of Washington pain physicians BTW) but I'm still a patient to be ignored, with 5 more MDs who brushed me off. Why do we have to visualize suicide as the only possible way out?
oceanone
@oceanone
@oceanone
Posts: 25
Joined: Mar 15, 2018
Yes, I had the same thing happen to me. I would wake up in the middle of night with tremendous pain and ended up going to the ER several times. They took CT scans and blood tests, but everything came back normal. I can take pain and I am not a nervous hypochondriat. Ended up going to a gastroentologist, who came to the conclusion, that I had IBS, after some endostropies. But I still wake up at night with terrible pain and I do not know,
what causes it. I have sometimes put some hot or warm water bottle on it and it seems to help. But is that the answer? And I wake up two or three times.
Doctors seem not be worried, but I am, since I never had problems before. Could eat and drink anything. Travelled internationally a lot, and never even
had an upset stomach. Of course used common sense, when eating some things unknown to me. Now I skip dinner often, because I am afraid of that terrible pain! Does anybody had that problem?
I take ducalex and stool softeners and also a probiotic VSL 3 every day, to make sure, that I do not get constipated.
Should I seek more medical advise?
Try stopping the probiotic for a while..
Try stopping the probiotic for a while..
Just to say as a little reminder–Abdominal cutaneous nerve entrapment syndrome is NOT a digestive ailment
I too have been treated for ab wall pain. Have had right upper ab pain going on 5 years and have had every test possible. All negative. The pain dr performed trigger point injections to no avail. My next course of action is a MRI of the thoracic spine to see if the pain is being generated from the spine. Can I ask how your pain feels? Stabbing? Aching? Burning? For now I am on Tramadol and gabapentin for pain control; however they come withy their own side effects and after 5 years have become less effective in pain control. I've researched everything I can think of so hearing what someone else has done is helpful.
Hello I am so glad I found this group of people sharing their stories. Over 4 months ago I started having this horrific pain It has stopped me from eating and I have been given sooo many different drugs that didn't even begin to touch the pain It truly does feel like a rooter-reuter along with a burning fire that shoots right up my throat and to the point the food i eat sometimes comes up that far.
I have been scoped everywhere and they say no acid reflux was found. The last place I have recently been is a Hospital in Baltimore and they feel it is nerve entrapment or damage and they have been giving me a drug that is to work as a nerve blocker.. I thought at first is was helping but now it seems the pain is winning even though I am still taking the drug protriptyline This is new approach for me So far possibly a bit of help but not convinced yet
Liked by Kanaaz Pereira, Connect Moderator
With all the reading and research I've done, it's clear to me that medical care in the U.S. is useless in treating chronic pain. (How do we even find each other here, since we're posting under "DIGESTIVE HEALTH"?!) I've had 12 physicians and 2 P.A.s near home brusoff presumably because all scans, tests, etc. were negative. MDs won't believe the pain, so we're labeled as drug seekers! Outside the U.S., there are a number of documented successful treatments (all of which we've been denied in the U.S.) Here all they do is hand me a prescription..24 in 2 years…none for neuropathy. I had to diagnose abdominal wall pain myself (later substantiated by University of Washington pain physicians BTW) but I'm still a patient to be ignored, with 5 more MDs who brushed me off. Why do we have to visualize suicide as the only possible way out?
Good question? i keep telling the doctors there is no way i can live with this level 0f pain the rest of my life i totally have been brushed off by soo many doctors I cant even count Now they brought in a shrink saying that it might help my pain management
acid2come
@acid2come
@acid2come
Posts: 79
Joined: Dec 09, 2019
I am currently at Mayo Clinic Rochester MN. I have had severe (worse than childbirth pain) for 23 yr after I had gallbladder out. I was diagnosed based on symptoms not testing and by this was reconfirmed by dozens of ER visits over the years. Pain began in center or upper abdomen and always radiated to the back. I had to take Morphine or Dilaudid it was the only thing reducing my pain below 7. Last 2 years huge increase in stress plus more fat than usual resulted in episodes up to twice a wk for nearly a yr.
Moved 7 mo ago and the original doc who dx me with chronic pancreatitis 17 yr ago decided it wastnt because I have not lost tons of weight or been hospitalized. Meanwhile I got a prescription for percocet that reduces pain enough I usually dont end up at ER.
I came to Mayo to find out if I had chronic pancreatitis or not. I was told my wonderful GI doc here that it is abdominal wall pain and I am getting a shot for it Monday. I dont know if ultrasound will be used. She also said she can prescribe pain meds if the shots dont work. I do not have chronic pancreatitis or an ulcer.
He my name is Sherry, I’ve been hvin sever pain under and around rib cage,plus stomach hurts to bad to wear jeans it’s sore… I hv GERD.. it hurt so bad under left rib cage I cldnt move for about 10 minutes.. it’s very sore still hurts…I’ve had gallbladder removed..any suggestions??
Lucie
@lucie2
@lucie2
Posts: 13
Joined: Aug 15, 2017
He my name is Sherry, I’ve been hvin sever pain under and around rib cage,plus stomach hurts to bad to wear jeans it’s sore… I hv GERD.. it hurt so bad under left rib cage I cldnt move for about 10 minutes.. it’s very sore still hurts…I’ve had gallbladder removed..any suggestions??
Hi Sherry, Even if you have had your gallbladder removed your liver could still make gallbladder stones, that then get stuck in the liver
ducts. This recently happened to a friend of mine. He had really bad pain now and then for several years, then it got very bad, and he went to the ER, where they did CTs etc, and found the gallstones. They scheduled surgery and removed them. He is fine now. So maybe that is something to check out…
acid2come
@acid2come
@acid2come
Posts: 79
Joined: Dec 09, 2019
Hi Sherry, Even if you have had your gallbladder removed your liver could still make gallbladder stones, that then get stuck in the liver
ducts. This recently happened to a friend of mine. He had really bad pain now and then for several years, then it got very bad, and he went to the ER, where they did CTs etc, and found the gallstones. They scheduled surgery and removed them. He is fine now. So maybe that is something to check out…
Thank you so much I didn’t know that..
acid2come
@acid2come
@acid2come
Posts: 79
Joined: Dec 09, 2019
Hello I am so glad I found this group of people sharing their stories. Over 4 months ago I started having this horrific pain It has stopped me from eating and I have been given sooo many different drugs that didn't even begin to touch the pain It truly does feel like a rooter-reuter along with a burning fire that shoots right up my throat and to the point the food i eat sometimes comes up that far.
I have been scoped everywhere and they say no acid reflux was found. The last place I have recently been is a Hospital in Baltimore and they feel it is nerve entrapment or damage and they have been giving me a drug that is to work as a nerve blocker.. I thought at first is was helping but now it seems the pain is winning even though I am still taking the drug protriptyline This is new approach for me So far possibly a bit of help but not convinced yet
Hi, have they done any biopsy of throat and down into esophagus?
I have GERD and have been on acid reflux medication for 12 yrs.. but about 6 months ago I started having acid coming up.It is even affecting my breathing.. test show spasms in larynx and esophagus.. but no meds for it.. I’ve been to a lot of doctors, ERS, specialist..had stupid remarks or diagnosis..
I went to a Gastroenterologist that l really like..He said we need to find out why I’m having spasms, what kind of acid it is.. if it’s stomach Or bile from liver..
TEST: 24 hr PH
Esophagus motility
EGD with biopsy
I don’t know if any of this helped you or not
But I hope so.. wish you all the best
It helps me to know I’m not alone and I’m not making it up..
martft4
@martft4
@martft4
Posts: 37
Joined: Sep 10, 2019
Hi, have they done any biopsy of throat and down into esophagus?
I have GERD and have been on acid reflux medication for 12 yrs.. but about 6 months ago I started having acid coming up.It is even affecting my breathing.. test show spasms in larynx and esophagus.. but no meds for it.. I’ve been to a lot of doctors, ERS, specialist..had stupid remarks or diagnosis..
I went to a Gastroenterologist that l really like..He said we need to find out why I’m having spasms, what kind of acid it is.. if it’s stomach Or bile from liver..
TEST: 24 hr PH
Esophagus motility
EGD with biopsy
I don’t know if any of this helped you or not
But I hope so.. wish you all the best
It helps me to know I’m not alone and I’m not making it up..
Hi I have the same problem with acid coming back up.
What does your acid look like? Sometimes mine is orange and greasy looking and burns like crazy.
Other times when I end up throwing it up it’s green and darkish brown. That one don’t burn as much.
Lucie
@lucie2
@lucie2
Posts: 13
Joined: Aug 15, 2017
Hi I have the same problem with acid coming back up.
What does your acid look like? Sometimes mine is orange and greasy looking and burns like crazy.
Other times when I end up throwing it up it’s green and darkish brown. That one don’t burn as much.
The orange kind is most likely bile. You should talk to a GI doc.
martft4
@martft4
@martft4
Posts: 37
Joined: Sep 10, 2019
The orange kind is most likely bile. You should talk to a GI doc.
Thank you for answering
I have an appointment at Rochester Mayo on January 9th so am anxiously awaiting any kind of help they can give me.
We have a week blocked off for me to be there with my daughter taking 9 days off of work.
The last time I was there was for the pelvic floor therapy.
That was last January so now hoping they can do something for the acid I already take esomeprozole two times a day and now since the ranitidine has been recalled the gastro doc I see as my regular one put me on Pepcid once a day also.
And I take Maalox at night if I feel acid trying to come up while I’m sleeping.
Hi – I’ve been dealing with this for a year. Abdominal and upper thoracic neck clavicle area. . thoracic outlet syndrome. ( not diagnosed) i can’t lift , push, pull my arms above chest level with pain in clavicle strain. on stomach. This pain all started with with working out. I think it has to to be a nerve issue/ stomach lining. So painful Any movement pushing up through my stomach. I use to be a trainer I had to let my 73 year old client go. because I can’t even pick up things. She shouldn’t be able to do more than me. I haven't exercised since July. I’ve been to emergency twice. Fo 6 days in the hospital the came up with nothing. Now saying it’s in my head go to CBT therapy. I’ve lost about 15 pounds instantly in July. I’ve been the internist GI, endocrinologist and neurological surgeon she’s ran test I go back to see her next.
I’m desperate to get well. I’d appreciate any information you give me. I don’t know where to go from here.
@rbassett
richman54660, Thanks for the info. Mine is a very deep rooted pain and not caused by any scarring, It is hard to explain, but it's in my left abdomen and is relentless and never ends. I do have it somewhat manageable, but pain meds won't work for this and I will soon be off all of them in time. I just hope I can sleep without the meds. I have a hard time sleeping as it is now.