rufus444
@smiles444
@smiles444
Posts: 10
Joined: Aug 23, 2017
Has anyone been diagnosed with Abdominal Wall Pain
Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett’s test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?
Liked by graceandpeace
4 years now,I've lived with it everyday. Had all the diagnostics you listed. The only thing that helped a little was the injections. 6 of them one morning. All in my lower abdomen. It was a cocktail. Beupivicain,Cannalog, and something else. (Please excuse the spelling). But those are just a bandaid.Im currently switching doctors. So fingers crossed. I can take some pain. Broke my back 3 times, both shoulders twice, etc. But the pain from this, everyday is unreal. If I didn't have kids, I wouldn't be here anymore. Good luck, and please keep us posted. I'll do likewise.
4 years now,I've lived with it everyday. Had all the diagnostics you listed. The only thing that helped a little was the injections. 6 of them one morning. All in my lower abdomen. It was a cocktail. Beupivicain,Cannalog, and something else. (Please excuse the spelling). But those are just a bandaid.Im currently switching doctors. So fingers crossed. I can take some pain. Broke my back 3 times, both shoulders twice, etc. But the pain from this, everyday is unreal. If I didn't have kids, I wouldn't be here anymore. Good luck, and please keep us posted. I'll do likewise.
With all the reading and research I've done, it's clear to me that medical care in the U.S. is useless in treating chronic pain. (How do we even find each other here, since we're posting under "DIGESTIVE HEALTH"?!) I've had 12 physicians and 2 P.A.s near home brusoff presumably because all scans, tests, etc. were negative. MDs won't believe the pain, so we're labeled as drug seekers! Outside the U.S., there are a number of documented successful treatments (all of which we've been denied in the U.S.) Here all they do is hand me a prescription..24 in 2 years…none for neuropathy. I had to diagnose abdominal wall pain myself (later substantiated by University of Washington pain physicians BTW) but I'm still a patient to be ignored, with 5 more MDs who brushed me off. Why do we have to visualize suicide as the only possible way out?
oceanone
@oceanone
@oceanone
Posts: 23
Joined: Mar 15, 2018
Yes, I had the same thing happen to me. I would wake up in the middle of night with tremendous pain and ended up going to the ER several times. They took CT scans and blood tests, but everything came back normal. I can take pain and I am not a nervous hypochondriat. Ended up going to a gastroentologist, who came to the conclusion, that I had IBS, after some endostropies. But I still wake up at night with terrible pain and I do not know,
what causes it. I have sometimes put some hot or warm water bottle on it and it seems to help. But is that the answer? And I wake up two or three times.
Doctors seem not be worried, but I am, since I never had problems before. Could eat and drink anything. Travelled internationally a lot, and never even
had an upset stomach. Of course used common sense, when eating some things unknown to me. Now I skip dinner often, because I am afraid of that terrible pain! Does anybody had that problem?
I take ducalex and stool softeners and also a probiotic VSL 3 every day, to make sure, that I do not get constipated.
Should I seek more medical advise?
Try stopping the probiotic for a while..
Try stopping the probiotic for a while..
Just to say as a little reminder–Abdominal cutaneous nerve entrapment syndrome is NOT a digestive ailment
@rbassett
richman54660, Thanks for the info. Mine is a very deep rooted pain and not caused by any scarring, It is hard to explain, but it's in my left abdomen and is relentless and never ends. I do have it somewhat manageable, but pain meds won't work for this and I will soon be off all of them in time. I just hope I can sleep without the meds. I have a hard time sleeping as it is now.