Has anyone been diagnosed with Abdominal Wall Pain

Posted by rufus444 @smiles444, Dec 15, 2017

Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett’s test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?

@juliepm

With all the reading and research I've done, it's clear to me that medical care in the U.S. is useless in treating chronic pain. (How do we even find each other here, since we're posting under "DIGESTIVE HEALTH"?!) I've had 12 physicians and 2 P.A.s near home brusoff presumably because all scans, tests, etc. were negative. MDs won't believe the pain, so we're labeled as drug seekers! Outside the U.S., there are a number of documented successful treatments (all of which we've been denied in the U.S.) Here all they do is hand me a prescription..24 in 2 years…none for neuropathy. I had to diagnose abdominal wall pain myself (later substantiated by University of Washington pain physicians BTW) but I'm still a patient to be ignored, with 5 more MDs who brushed me off. Why do we have to visualize suicide as the only possible way out?

Jump to this post

Good question? i keep telling the doctors there is no way i can live with this level 0f pain the rest of my life i totally have been brushed off by soo many doctors I cant even count Now they brought in a shrink saying that it might help my pain management

REPLY
@aesmayo01

I am currently at Mayo Clinic Rochester MN. I have had severe (worse than childbirth pain) for 23 yr after I had gallbladder out. I was diagnosed based on symptoms not testing and by this was reconfirmed by dozens of ER visits over the years. Pain began in center or upper abdomen and always radiated to the back. I had to take Morphine or Dilaudid it was the only thing reducing my pain below 7. Last 2 years huge increase in stress plus more fat than usual resulted in episodes up to twice a wk for nearly a yr.

Moved 7 mo ago and the original doc who dx me with chronic pancreatitis 17 yr ago decided it wastnt because I have not lost tons of weight or been hospitalized. Meanwhile I got a prescription for percocet that reduces pain enough I usually dont end up at ER.

I came to Mayo to find out if I had chronic pancreatitis or not. I was told my wonderful GI doc here that it is abdominal wall pain and I am getting a shot for it Monday. I dont know if ultrasound will be used. She also said she can prescribe pain meds if the shots dont work. I do not have chronic pancreatitis or an ulcer.

Jump to this post

He my name is Sherry, I’ve been hvin sever pain under and around rib cage,plus stomach hurts to bad to wear jeans it’s sore… I hv GERD.. it hurt so bad under left rib cage I cldnt move for about 10 minutes.. it’s very sore still hurts…I’ve had gallbladder removed..any suggestions??

REPLY
@acid2come

He my name is Sherry, I’ve been hvin sever pain under and around rib cage,plus stomach hurts to bad to wear jeans it’s sore… I hv GERD.. it hurt so bad under left rib cage I cldnt move for about 10 minutes.. it’s very sore still hurts…I’ve had gallbladder removed..any suggestions??

Jump to this post

Hi Sherry, Even if you have had your gallbladder removed your liver could still make gallbladder stones, that then get stuck in the liver
ducts. This recently happened to a friend of mine. He had really bad pain now and then for several years, then it got very bad, and he went to the ER, where they did CTs etc, and found the gallstones. They scheduled surgery and removed them. He is fine now. So maybe that is something to check out…

REPLY
@lucie2

Hi Sherry, Even if you have had your gallbladder removed your liver could still make gallbladder stones, that then get stuck in the liver
ducts. This recently happened to a friend of mine. He had really bad pain now and then for several years, then it got very bad, and he went to the ER, where they did CTs etc, and found the gallstones. They scheduled surgery and removed them. He is fine now. So maybe that is something to check out…

Jump to this post

Thank you so much I didn’t know that..

REPLY
@cocosmindy

Hello I am so glad I found this group of people sharing their stories. Over 4 months ago I started having this horrific pain It has stopped me from eating and I have been given sooo many different drugs that didn't even begin to touch the pain It truly does feel like a rooter-reuter along with a burning fire that shoots right up my throat and to the point the food i eat sometimes comes up that far.
I have been scoped everywhere and they say no acid reflux was found. The last place I have recently been is a Hospital in Baltimore and they feel it is nerve entrapment or damage and they have been giving me a drug that is to work as a nerve blocker.. I thought at first is was helping but now it seems the pain is winning even though I am still taking the drug protriptyline This is new approach for me So far possibly a bit of help but not convinced yet

Jump to this post

Hi, have they done any biopsy of throat and down into esophagus?
I have GERD and have been on acid reflux medication for 12 yrs.. but about 6 months ago I started having acid coming up.It is even affecting my breathing.. test show spasms in larynx and esophagus.. but no meds for it.. I’ve been to a lot of doctors, ERS, specialist..had stupid remarks or diagnosis..
I went to a Gastroenterologist that l really like..He said we need to find out why I’m having spasms, what kind of acid it is.. if it’s stomach Or bile from liver..
TEST: 24 hr PH
Esophagus motility
EGD with biopsy
I don’t know if any of this helped you or not
But I hope so.. wish you all the best
It helps me to know I’m not alone and I’m not making it up..

REPLY
@acid2come

Hi, have they done any biopsy of throat and down into esophagus?
I have GERD and have been on acid reflux medication for 12 yrs.. but about 6 months ago I started having acid coming up.It is even affecting my breathing.. test show spasms in larynx and esophagus.. but no meds for it.. I’ve been to a lot of doctors, ERS, specialist..had stupid remarks or diagnosis..
I went to a Gastroenterologist that l really like..He said we need to find out why I’m having spasms, what kind of acid it is.. if it’s stomach Or bile from liver..
TEST: 24 hr PH
Esophagus motility
EGD with biopsy
I don’t know if any of this helped you or not
But I hope so.. wish you all the best
It helps me to know I’m not alone and I’m not making it up..

Jump to this post

Hi I have the same problem with acid coming back up.
What does your acid look like? Sometimes mine is orange and greasy looking and burns like crazy.
Other times when I end up throwing it up it’s green and darkish brown. That one don’t burn as much.

REPLY
@martft4

Hi I have the same problem with acid coming back up.
What does your acid look like? Sometimes mine is orange and greasy looking and burns like crazy.
Other times when I end up throwing it up it’s green and darkish brown. That one don’t burn as much.

Jump to this post

The orange kind is most likely bile. You should talk to a GI doc.

REPLY
@lucie2

The orange kind is most likely bile. You should talk to a GI doc.

Jump to this post

Thank you for answering
I have an appointment at Rochester Mayo on January 9th so am anxiously awaiting any kind of help they can give me.
We have a week blocked off for me to be there with my daughter taking 9 days off of work.
The last time I was there was for the pelvic floor therapy.
That was last January so now hoping they can do something for the acid I already take esomeprozole two times a day and now since the ranitidine has been recalled the gastro doc I see as my regular one put me on Pepcid once a day also.
And I take Maalox at night if I feel acid trying to come up while I’m sleeping.

REPLY

Hi – I’ve been dealing with this for a year. Abdominal and upper thoracic neck clavicle area. . thoracic outlet syndrome. ( not diagnosed) i can’t lift , push, pull my arms above chest level with pain in clavicle strain. on stomach. This pain all started with with working out. I think it has to to be a nerve issue/ stomach lining. So painful Any movement pushing up through my stomach. I use to be a trainer I had to let my 73 year old client go. because I can’t even pick up things. She shouldn’t be able to do more than me. I haven't exercised since July. I’ve been to emergency twice. Fo 6 days in the hospital the came up with nothing. Now saying it’s in my head go to CBT therapy. I’ve lost about 15 pounds instantly in July. I’ve been the internist GI, endocrinologist and neurological surgeon she’s ran test I go back to see her next.
I’m desperate to get well. I’d appreciate any information you give me. I don’t know where to go from here.

REPLY

How are you feeling? I’ve been living with most of your symptoms and have done all those test with no answers. I’m not sure where to go from here.

REPLY

Is it pelvic pain, stomach or intestinal pain? I wake up every three hours in bed and have to get up and to bathroom or walk around to get relief. Mayo couldn't figure it out and it's been like this for over two years as wake up every three hours. They say no GI problem.

REPLY
@christie6453

Hello. I have been diagnosed with this as well. My question is, what type of Dr. Does the ultrasound guided steroid injection or nerve block. I have been referred to an ob/ gyn who had never heard of such a thing and laughed in my face. I just want this pain to go away but don't know where to go. My Dr doesn't seem to know either.

Jump to this post

One doctor at the Mayo said I have restless back syndrome because I wake up every 3 hours. No such thing!

REPLY
Please sign in or register to post a reply.