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zjandre (@zjandre)

Implantable neurostimulator for chronic pain

Spine Health | Last Active: 4 days ago | Replies (329)

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@goldielocks

I continue to suffer with severe nerve pain from my buttocks to my toes. I can’t tolerate sitting, standing or anything inbetween. The calf muscles continue to move all the time and they hurt. I was told that this stimulator should have never been suggested since I already had previous nerve damage. Apparently my body is hypersensitive and nothing can be done. The nerves need time to recover and that can take up to two years if they recover at all. I am sensitive to medications and there is not one that I can take to help. I was also told that the stimulator can help patients during the trial, because its like a party for your nerves feeling relief that they have not felt for so long but when the perm implant is put in you never get the same response. One thing to keep in mind is that the trial is always done with the lead wire but your doctor might suggest the paddle. I believe my outcome would have been successful had they used the paddle. My life has changed forever. I live alone. I cannot go back to work. I really don’t know what will happen to me now. No way to support myself, no one to help. I am in pain 24 hours a day. I cannot do anything that I did before the stimulator. It was suggested that I go to the Mayo chronic pain center to help me learn ways to live with this pain but I do not have the money to stay in the hotel for three weeks, pay for the program as insurance does not cover all of it and other living expense for the three week long program. It would be nice if Mayo had an indigent care program in place to help patients that would benefit from the treatment center but cannot afford it. I still wonder how can devices like these be approved if there is no way to help the patient if the procedure fails. Shame on the FDC for approving this kind of treatment with so little testing. Shame on the companies that sit and watch their stock increase, NEVRO. Shame on the doctors that continue to play GOD, knowing the damage that they have caused patients should prevent them from doing the procedure on other patients. Nerve pain is so terrible that we will try anything to find relief. Maybe patients should be informed with all facts before jumping into anything a doctor suggests will provide relief. Search a little harder, look at more studies that have been done, listen to other complaints. I know I have to live minute to minute. What kind of life is worth living with this kind of pain? I do want to wish those of you starting out on your new journey the best of luck.

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Replies to "I continue to suffer with severe nerve pain from my buttocks to my toes. I can't..."

I had severe pain in the toes of my right foot from nerve damage from 2 surgeries. One in 2016 and the other in 2018. I They claimed I got 50% relief from the Boston Scientific (Medtronic) device about 18 months ago. I then had the permanent one implanted. I Only got about 25% relief and I didn't like the parathesia so I had it removed 2 months later.
I had since came down with a pretty severe back pain, I was told by the Dr. That he can target bother area's , back and foot. Tomorrow, I'm going to have another pain doctor try a 5 day trial with the SCS made by Abbott, formerly, St. Jude. I have personally talked to 3 prior patients. Two who had severe foot pain and one leg pain. All three got significant relief with the Abbott device and they all highly recommend I try it. There is no parathesia with Abbott and you don't have to recharge the battery. I am told by the rep that the battery is guaranteed for 5 years and some if on the low setting can last up to 10 years before needing replacement. I am 74 years old. I'm praying for a successful trial.

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