Has anybody found relief for cramping of feet and legs?
I was diagnosed with peripheral neuropathy, idiopathic, about 2 1/2 years ago. I am 81 years old and have been,walking,exercising in a pool,doing weight training and doing alot of exercises recommended for neuropathy such as balance and feet movements. I have tingling sensations in feet ,calves and beginning in hands. Some decreased sensation in my legs. Sock syndrome feeling in my feet. No real pain. For awhile my feet and legs were cramping ,at night, no major issue.Would use therawork,magnesium cream,heat. All successful. Recently the cramping has increased in intensity and frequencies to include daytime as well as at night.I noticed my feet and legs were cold. Using a heating pad,or foot bath worked temporarily. Now it has become a daily and nighttime issue. My sleep is erratic. The pain more intense.
I would appreciate any suggestions even from medications. I did think about buying feet warmers . If anyone has had success with such please advise. Thanking you all for reading and hoping to get some suggestions!
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I take magnesium supplement
Magox 960 mg day.
Works for me.
Im 90 years old female and have hyponatremia
(Low salt)
G h.
I wish you good solutions and good health
Seems to me that you lack B12. It's also called cobalamin. Us elders get less B12 because we eat less animal protein. Mussels have 10 times as much as red meat. Cheap too. B12 besides making new blood cells also renews out nerves INSULATION. Lack of insulation ( myelin) makes out nerves short out like in an electric circuit. Alcohol stops B12 absorbsion in the small intestine. Its wall pores shut down, so B12 gets passed thru to the exit.
Take heaps of METHYL Cobalamin. That's the best of the 3 B12 s. Am 83 and run and do gym. No pain anywhere.
Good luck
James nz
Good luck, James NZ.
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4 Reactions@jamessaxo
Thank you James. I shall try it. I take B-12 and a host of other pills for various ailments. My neuropathy stems from the chemo treatment I had in2015 for rectal Cx, so my neuro tells me. I also have debillitating RA in my hands and spine. Walking is difficult and I am only 68. Now using a cane.
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3 ReactionsMy Neuropathy comes from a weakened spinal column after having surgery to remove a tumor that turned out to be benign stage 3. I was advised that these tumors are never anything & it would be rare for it to be cancerous. I then proceeded to have 33 rounds of radiation therapy both front and back so essentially 66 rounds of treatment on my spine to prevent it from going into lungs or brain. I was very heavy back then so they had to make sure that it was thoroughly clean of cells that may have been released during surgery. After this I continued to work & I made myself walk because I had no choice my mother had Parkinson’s and I was her caregiver also my husband was disabled & I was his caregiver. We qualified for no help & I knew I would be the one who would suffer in the long run but you do what you have to do in life & we had no children so I was the last one in line. Now they including my spouse is all passed on, I’m 63 & trying to just make it to the restroom on my own. My scoliosis from where the lamia was removed caused my spine to weaken & curl to the point it’s pinching off the nerves to my legs bladder & bowels. I tried to live without meds but I’m just in excruciating pain feels like somebody is trying to slice my legs off & my scoliosis I can’t find a surgeon to take a chance on surgery they say it’s to risky. But I’m Already unable to walk much Sometimes the only relief I can get is in my electric wheelchair which has a power tilt so i can tilt myself to the point of getting off my pressure on my back.
As for sleeping I sleep on ice from shoulder blades all the way down to the tailbone. The ice freezes it to the point my spine is frozen & I can’t find to longer feel anything for at least 4 hours. I found 12 x 12 ice packs I keep about 6 in rotation at to make sure they are always frozen 🥶 solid whenever I need them. So for me it’s a mixture of medication and freezing my spine for resting purposes because I know the next day I will be facing this pain all over again.
I do have a caring & great doctor to help me all he can.
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4 ReactionsHello @pjulien63, Welcome to Connect. I can't begin to imagine how difficult it has been for you to manage with everything that has been put on your plate. It is good to hear that you have a caring and great doctor to help you. You mentioned you can't find a surgeon to take a chance on surgery because they say it's too risky. Do you mind sharing what surgery is too risky for you?
@johnbishop
Hello & thank you for caring. The surgery that needs to be done is on my lower back around the L4 L5 region. All the neurosurgeons that I have spoke with so far say that my scoliosis and stenosis is so severe that they don’t believe they can straighten it enough to release the pressure. They say that because of the amount of radiation I have they’re worried that in trying to put a rod or screws and try to straighten it might make it worse. I guess it’s because they feel the bones are probably brittle due to the radiation. I have talked with three different surgeons And none of them feel that they can take the risk.
But unless something‘s done, I’m to the point of having my legs pinched off altogether. I have went through extensive shots in this area, and no relief has come from it unless something‘s done. The only thing I see in my future is severe pain and living with it at level seven and eight constantly. It’s extremely depressing to say the least I can’t travel far enough to find other surgeons. I talked to Barnes jewish hospital and since traveling is hard, they have the doctors just send all the information including my last MRI and talk to me on a video conference. I don’t know what else to do. I seen that there was many doctors at the Mayo Clinic that are specialist in this also at the Cleveland clinic and one down in Phoenix. The curvature in my spine looks like an elbow pipe used in plumbing that’s how severe it is. When they did my original surgery for taking the tumor out, they did not replace the lamia with rod and over the years they just came in on itself. I’ve been told that they should have put a rod in there to help stabilize my spine. There was a total of four taken out in my original surgery was 12 hours long because the tumor had grown in and out of the spinal cord
I’m not sure if that helps you get a picture of what is going on but if you think that you can help in anyway I will try to get more. Thank you again. It’s nice to know that people care.
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1 ReactionI have had neuropathy in my feet for 3 years now. Am 66. It started as feeling as if I were standing barefoot on a block of ice. Podiatrist said nerve reception could be causing it as either super hot or super cold. I've been trying all sorts of things and lately have been experiencing leg and shin cramps at night. I'm already diagnosed with low sodium, magnesium, and calcium. I used nervive roll on and also living well rub on cream relief for sore muscles and joints. Yes it works for the joint relief but not the muscle cramps and neuropathy. I believe it's not just a side issue for everyone anymore. It is really a major deal for more than you or me!!
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2 Reactions@v8auto, you have a window of 3 hours to edit your comments. Click the 3 dots to the bottom right of your message and select "Edit".
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1 Reaction@papa, my daughter died from rectal cancer. Papaloma virus. She was an indoor worker therefore had low vitamin D. Most people are low D. Get yours measured please. D adjusts, fixes DNA errors so cancer does not grow. Good luck, James nz
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1 Reaction@pjulien63 Thank you John for introducing me. I feel for you and yours is a very complex spine situation. I am a Mayo spine surgery patient, and my surgery was pretty simple, but 5 surgeons misunderstood the diagnosis and were afraid to help me because they could not be sure why I had pain all over my body. I was always looking for the next doctor to consult and reading the research papers they published. This brought me to Mayo Clinic and to Dr. Jeremy Fogelson who is an expert with spine deformity and scoliosis surgeries. I didn't need deformity surgery, but it was his paper that led me to the correct diagnosis that I found when I looked up terminology, so I knew I had found a surgeon who would believe me when I said that my spinal cord compression at C5/C6 was sending pain all over my body. 5 local surgeons refused to help me, and he welcomed me and to finally be validated after 2 years of searching and then get expert life changing surgery was truly a gift. What I know about him from my experience is that he likes the challenge of difficult cases to solve and really wants to help patients. He is kind and compassionate and is teaching new surgeons at Mayo. I had not experienced that level of compassion and expert care before in medicine. In his education history, he has excelled consistently and is highly respected at Mayo and in the spine surgeon community.
Mayo has a 3 D printing lab that helps a surgeon understand the complexities of spine surgery so they can plan how to do their surgeries. This link is a story about this with a photo of Dr. Fogelson in the OR with a 3 D model.
https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/point-of-care-additive-manufacturing-provides-complex-scoliosis-models/mac-20509966
He does invite his colleagues to collaborate on other issues affecting patient outcomes. As you know, bone quality can be an issue with scoliosis, and sometimes he has a patient build bone with treatments before spine surgery. I believe he would be an excellent surgeon for a consultation in your situation.
Here is Dr. Fogelson's profile. https://www.mayoclinic.org/biographies/fogelson-jeremy-l-m-d/bio-20055624
Here is a link to request an appointment at Mayo.
https://mayocl.in/1mtmR63
Dr. Fogelson is at the main Rochester, MN campus. You will get a call back after initiating your request and they will set up an account so you can send in medical records and imaging for review. Tell the intake coordinator you are requesting Dr. Fogelson. When you send your records, include a letter requesting that your records be reviewed by Dr. Fogelson and describe your history of your spine surgeries and your condition now, and explain how much this is affecting your life. I read that you cannot lay down to sleep unless you lay on ice packs to numb your back, so tell him that and describe mobility issues and how this affects your daily life and how this has worsened over time. Also tell him how other surgeons are not willing to take your case and that you don't know what to do.
Please contact the Mayo billing department to check if you have in network insurance coverage for Mayo. Here is the web page and it's a good idea to also call them to verify since things can change. https://www.mayoclinic.org/billing-insurance
Do you think you would be able to travel to Rochester? If you need a virtual appointment, it is worth asking even if it just preliminary, but I don't know how Mayo handles that. Perhaps it could be a collaboration with one of your local physicians from their office if medical questions need to be answered.
I do hope you will find the care you need. Dr. Fogelson gave me back the coordination in my arms that I was losing, and I am most grateful to him. If you do follow through with Mayo, please stay in touch and let me know how you are doing. There is also a free Mayo Concierge service that can help you find travel arrangement and accommodations. There are lots of wheelchairs available at Mayo. Do you have someone who can travel with you for a future appointment?
Here is the information for the Concierge services.
Five Ways to Contact Mayo Concierge Services
Phone: 507-538-8438
Live Chat: https://www.mayoclinic.org/patient-visitor-guide
Email: concierge@mayo.edu
Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services
In-person in Rochester MN: Lobby hours are 8:00-5:00 Monday through Friday. Offices are located in the International Center in the Mayo Mathew’s Lobby, Executive Lounge on Mayo 5, Radiation Oncology Lobby – Desk R
Lastly, when I was in the operating room, the nurse held my hand to help me stay calm. I hope that you can feel something similar now even though these are just my words on a page.
God bless.
Jennifer
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4 Reactions