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I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?
How are you taking cilantro, pill form or smoothies?
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Fresh or frozen. I have never read of anyone having success over GD using pills. I don't know why.
Question: Has anyone here tried Metal Magic, which has cilantro and chlorella? The "fresh" cilantro I can buy here is usually shot through with rotten leaves as well as dirt, and takes forever to clean – I tried consuming at least 1/2 to 1 whole bunch every day for a week, but it was taking up too much time.
Fwiw, I've been suffering from GD more or less steadily for 2 years. My case is biopsy-confirmed, and blood and patch skin tests revealed no significant allergies. My GD manifests differently on different types of skin (assuming it's all the same thing). It started with itchy eyes and eyebrows and has worked it's way down: first rosacia on my face, then itchy neck with redness in the horizontal creases of the neck, then itchy bumps that tend to scab up on my shoulders and back, then bumps on my chest, then the same itchy redness in my armpits, then bumps spreading down my arms, with more of the itchy redness on the insides of my elbows. The armpits and elbows quickly become much more itchy if my arms are in a position that closes those areas off from the air – honestly, I've wondered if it were something fungal; they're better if they stay dry. On drier but tender areas on my arms like my inside wrists, fine, short little scabbed lines will appear in the fine creases of the skin.
Sometimes the itchiness wakes me up in the night. The areas colonized earliest remain bumpy and itchy, but tend to be less so. As an outbreak starts to resolve, I seem to be left with a few new little tiny warts or skin tags that remain very itchy.
Heat and clean hot water don't seem to bother it, but sun and sweat do.
The only things that have really seemed to help are witch hazel, prescription strength cortisone; they usually tame the severity a bit and temporarily ease the itching, but they don't eliminate it. I do use a bunch of other stuff but am not sure they make much difference; and some things docs prescribed seemed to make it worse. I have not tried the light therapy, and my doc has never mentioned it (he is the 2nd derm doc I've seen; the first refused to even look at the rash).
It seems clear the docs have no idea what's really going on; and I'm not convinced this is really a singular disease, or rather some kind of deterioration in the skin's defenses or ecology that makes it vulnerable to more than one type of breakdown or attack.
I agree with you, you have more going on than GD. I have 3 forms of eczema including GD. Seems like you have had many tests. You mentioned patch testing. Was that the 5 Day Extended Patch Test and if so how many substances were checked? What type of blood test? What did it check for. My Medicare wouldn't cover my blood test (they did the Patch Test) so had to pay out of pocket $600 and that test showed allergies to 5 or 6 metals with the most severe aluminum and nickle. It didn't even test for mercury.
Has anyone suggested you have Atopic Dermatitis, so many of your symtoms sound like others with Atopic have. I have or had 3 forms of eczema and Atopic is not one. Maybe you could start a discussion asking for those with Atopic to share there symtoms with you. Dupixent seems to be the miracle drug for them.
I have been to many derms and an allegist over the years and I learn nothing from some, but have learned much from others. My suggestion is to keep searching for a good doctor. Perhaps you can mention your area in a discussion and ask others if they know of a dermatologist who is knowledgeable about eczema. So many today just want to sell face rejuvination where the big money is.
I'm glad your reaching out on this site, keep it up as I know first had blogging has provided me insight I never got from doctors.
Great recipe. Mine was similar.
unsweetened almond milk
probiotic whole milk yogurt
1 packet stevia (only sweetener allowed on my plan)
1/2 bunch fresh or frozen cilantro
1/2 cup fresh fruit or frozen banana slices (I would like to add more fruit but my anti inflamation diet even limits natural sugar)
What grains besides wheat do you avoid?
Itching is the worst part of GD as one can cover up our torso. I know you count yourself lucky. Do you get the pain from pressure of any kind. I could not lay on my back, even to lean back driving a car because of the pain. To lay down I could only do it on my side.
Right now, I avoid all grains including the healthy whole grains like quinoa. My diet has zero grains. I will likely introduce whole, healthy non-glutinous grains in the future but not anytime soon. I’ll be sticking to a vegetable heavy paleo-esque diet for a while.
I have had, thus far, no physical symptoms beyond the rash. No itch, no pain, no discomfort.
Wow, the pictures of atopic dermatitis do look like part of what I have! Although it's described it as mostly affecting young people, which I'm not; but thanks for the advice on all counts.
I have learned that every form of eczema has variations and exceptions. GD is also described as being attributed to mostly to males and yet look at how many of us bloggers are women! Perhaps years ago when men spend much more time in the sun as farmers and women stayed inside doing the domestic chores GD developed in more men. In the past women might have listened more to their grandmother's warning about skin spots and damage, yet my generation believed a tan was beautiful. Today women spend hours outside from an early age; I did and still too. (Today I cover up to protect my skin).
Today we are all exposed to substances never put in our enviroment years ago. If I was a prairie wife even 100 years ago I would never have been exposed to the substances that am allergic to today. With repeated contacts our bodies start to fight back and raise up our histamine armies trying to protect us from substances they believe are harmful. You may not have Allergic Contact Dermatitis,ACD but who knows if AD is caused from your immune system rejecting your environment too. Many are born with up AD, but why? Their mother's have been exposed to substances and perhaps it passes on to the child.
AD. I would sure check out Dupixent.
If you start a discussion asking for those with AD to share what age they developed AD you will find out for yourself that there are many that got it later in life. Must also be some Google search where you could check that out. If you are Medicare age I believe this expense drug is approved.
That sounds similiar to what I did for a 3 month detox and now follow a moderate maintenance plan. I am a believer in anti inflamation diet to control now.
I hope you are following the anti inflamation diets we are blogging about. I was in denial and resisted for 20 years- major mistake. For 50 years it didn't matter if I ate sugar or grain type carbs or as mentioned nightshades, but my body changed in middle age. Yours has clearly changed. Giving up processed sugar was the hardest thing I have ever done.
Dupixent has been a miracle drug for me! After itching to death for over two years with GD and Dermatographia, I finally found relief and NO itching! Nothing else gave me anything but very temporary relief.
Very happy to to hear your success also with Dupixent. My house resembled a pharmacy after 2 years of incessant itching all over. Been on it since March, and has truly been a Godsend!
That’s a good recommendation. I often see commercials and might ask dr about it. Any side effects to be aware of? I’m on so many different meds. Between pharmaceuticals and supplements and creams my counters are full.
Try Miracle Oil Tea Tree Skin Creme. Apply twice a day for two weeks then once a day after showering in morning. It has been about a 90% effective cure for me. No more itching. But comes back if I don’t use everyday. No prescription needed.
How else are people taking cilantro other then shakes? I’m using it in salads but I was curious if others have recipes. Also does the red dots fri. Grover’s ever fade?
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