Grover's Disease

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

@sarkei

Thank you for this, I’m going to try cilantro and take a look at my supplements. I read that sun damaged skin could also trigger GD but I’m trying to figure out why I never had an outbreak like I do now. No issues last summer or over the winter except for two years ago. I take viatimin A but I will look into viatimin D. It appears sun makes it worse for me. Any suggestions for creams and what are the best anti inflammatory vegetables to eat?

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This is for everybody on this site : I do the smoothies every day. For itching I take very hot showers targeting the site of the itch, when out I apply Tiger Balm Shoulder and Neck and, or, generic hydrocortisone immediately. It works for a couple of hours at the very least. Good for me. For those who read and are interested in the skin, the Aug. 3 & 10 issue of the New Yorker has an article called Your Skin is a Wonderland that reviews a book about skin. No cures but very, very enlightening. You will question all the soap we use as well as all the other so called "skin care" products we think are helping our largest organ.

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@sarkei

What type of cilantro do you take? Supplements or cilantro shakes? Do you know of any cilantro shake recipes

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What I do: I buy several bunches of cilantro, cut off the bottoms where the dirt is, clean thoroughly, divide in half, put in freezer bags and freeze. The smoothie is honey, flavored yogurt, a bit of juice, some diced up fruit, and the frozen cilantro, sometimes an ice cube. Bananas are great to help negate the cilantro flavor as well. The pills are useless. Your recipe is up to you. I blend it on high until the drink is really smooth and their are no big hunks of cilantro in it. Actually can taste pretty good once you get it right.

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@help4meandu

Wow! Very informative thank you. I have suffered from stress and anxiety most of my life and of course the covid situation exacerbates everything. Just had blood work done. Will ask dr for report. Take lot of supplements and medications but should work on diet. I did notice it’s worse in winter for some reason yet heat of summer supposedly contributes. Very disheartening.

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You need a biopsy to be positive.

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@justmemyself

As nodgabnoj recommended, I would review all the posts here and check out the SkinCell forum too. What you’ll find is the following:
1) Supposedly Grover’s is exacerbated by heat and sweat — except for those that aren’t actually affected
2) Supposedly Grover’s is worse in the winter months but plenty of people have it in Florida and California where real winter is not a factor
3) Supposedly Grover’s is exacerbated by dry skin — except when it isn’t

Grover’s can be transient, recurrent, or persistent. Some people have been cured, or sent into permanent remission, (however you want to phrase it) by using a DMSA under doctor supervision, eating cilantro, avoiding gluten, avoiding grains, avoiding sulfites, taking vitamin A and D, etc.

I’m less inclined to think of this as a disease and more as a symptom caused by some environmental toxins (which, of course, are everywhere) and the body’s difficulty in addressing it.

In the West we are conditioned to think a) you get something and b) you then get a prescription to make it go away or manage it. And while that is sometimes true, I’d suggest it makes sense to look at things holistically and take a systemic approach.

1) What are your vitamin levels? What are your heavy metals levels? Do you have elevated inflammatory markers in your blood?
2) What is your diet and is it anti or pro inflammatory (sadly, there is no middle ground)?
3) What is your stress level and how much sleep to you get?
4) Do you come into contact with toxic substances through work?

Addressing all of the above will make you healthier but is no guarantee of a cure. The only thing I’ve seen, though, is that the long term solutions have only occasionally come from topicals or drugs. If it isn’t transient, systemic changes in lifestyle are likely the best way to address it and all of the anecdotal evidence points to that.

Granted, that is just my two cents.

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Loved your summation of GD!

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@nodgabnoj

You need a biopsy to be positive.

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Just be aware that your GD must be in the active stage for the diagnosis to be correct. It took over a year for a derm to finally guess that I might have GD and by then my 1 year outbreak was calming down. My papuales, front and back of torso, upper and lower torso with only the sides clear were crusted and falling off at that time. My diagnosis was negative, but there was no doubt in my derms mind or mine after doing research that is was GD. I had 6 months of calm and then it came back and both derm and I decided not to bother with biopsy. To give any of you hope, each recurrance only lasted 6 months, giving me 6 months off and each time it was slightly less severe.
Because of cilanto I'm still free of GD doing all my regular outdoor activities!

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@nodgabnoj

This is for everybody on this site : I do the smoothies every day. For itching I take very hot showers targeting the site of the itch, when out I apply Tiger Balm Shoulder and Neck and, or, generic hydrocortisone immediately. It works for a couple of hours at the very least. Good for me. For those who read and are interested in the skin, the Aug. 3 & 10 issue of the New Yorker has an article called Your Skin is a Wonderland that reviews a book about skin. No cures but very, very enlightening. You will question all the soap we use as well as all the other so called "skin care" products we think are helping our largest organ.

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Fascinating article. So hard to let go of the over cleansing and over moisturizing etc. Will look for book at library.

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@gardeningjunkie

Just be aware that your GD must be in the active stage for the diagnosis to be correct. It took over a year for a derm to finally guess that I might have GD and by then my 1 year outbreak was calming down. My papuales, front and back of torso, upper and lower torso with only the sides clear were crusted and falling off at that time. My diagnosis was negative, but there was no doubt in my derms mind or mine after doing research that is was GD. I had 6 months of calm and then it came back and both derm and I decided not to bother with biopsy. To give any of you hope, each recurrance only lasted 6 months, giving me 6 months off and each time it was slightly less severe.
Because of cilanto I'm still free of GD doing all my regular outdoor activities!

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How are you taking cilantro, pill form or smoothies?

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@nodgabnoj

What I do: I buy several bunches of cilantro, cut off the bottoms where the dirt is, clean thoroughly, divide in half, put in freezer bags and freeze. The smoothie is honey, flavored yogurt, a bit of juice, some diced up fruit, and the frozen cilantro, sometimes an ice cube. Bananas are great to help negate the cilantro flavor as well. The pills are useless. Your recipe is up to you. I blend it on high until the drink is really smooth and their are no big hunks of cilantro in it. Actually can taste pretty good once you get it right.

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Thank you! I’m going to try it

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@sarkei

How are you taking cilantro, pill form or smoothies?

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A lot of folks, myself included, are doing cilantro smoothies. The recipes vary. Mine is:
Unsweetened coconut milk
Vegan protein powder
Collagen powder
Tablespoon of almond butter
1 bunch of cilantro
A cup of spinach
1/2 cup of blueberries
1/2 cup of raspberries

I’m not saying this will be for everyone but I also just finished a 30-day detox guided by my functional medicine doctor, including 3-days of a fasting-mimicking diet. I had to drop gluten years ago but have also eliminated all refined sugar, dairy, and grains. It’s not purely paleo but skews 75% vegetables with generous servings of protein, oils/fats (avocado, olive, coconut), protein (I avoid beef but not bison), legumes, and some nuts/seeds and fruit.

Generally, this takes will power. But I feel good, my athletic performance hasn’t dipped, and it certainly isn’t making things worse. I only have fading brownish, flat pigmented spots and a few tiny brownish crusty ones. Is it just fading on its own or is the cilantro and my diet working? Only time will tell.

Oh yeah — and Grover’s itches. Except when it doesn’t. Mine does not. It seems to be a personally-specific problem and everyone needs to find what works best for them.

Best of luck to everyone!

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@justmemyself

A lot of folks, myself included, are doing cilantro smoothies. The recipes vary. Mine is:
Unsweetened coconut milk
Vegan protein powder
Collagen powder
Tablespoon of almond butter
1 bunch of cilantro
A cup of spinach
1/2 cup of blueberries
1/2 cup of raspberries

I’m not saying this will be for everyone but I also just finished a 30-day detox guided by my functional medicine doctor, including 3-days of a fasting-mimicking diet. I had to drop gluten years ago but have also eliminated all refined sugar, dairy, and grains. It’s not purely paleo but skews 75% vegetables with generous servings of protein, oils/fats (avocado, olive, coconut), protein (I avoid beef but not bison), legumes, and some nuts/seeds and fruit.

Generally, this takes will power. But I feel good, my athletic performance hasn’t dipped, and it certainly isn’t making things worse. I only have fading brownish, flat pigmented spots and a few tiny brownish crusty ones. Is it just fading on its own or is the cilantro and my diet working? Only time will tell.

Oh yeah — and Grover’s itches. Except when it doesn’t. Mine does not. It seems to be a personally-specific problem and everyone needs to find what works best for them.

Best of luck to everyone!

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Great recipe. Mine was similar.

unsweetened almond milk
probiotic whole milk yogurt
collegen powder
1 packet stevia (only sweetener allowed on my plan)
1/2 bunch fresh or frozen cilantro
1/2 cup fresh fruit or frozen banana slices (I would like to add more fruit but my anti inflamation diet even limits natural sugar)

What grains besides wheat do you avoid?

Itching is the worst part of GD as one can cover up our torso. I know you count yourself lucky. Do you get the pain from pressure of any kind. I could not lay on my back, even to lean back driving a car because of the pain. To lay down I could only do it on my side.

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Marianne- I like your idea of having a follow up smoothie once in a while and bought some cilantro today. I do eat salmon, mussels, full of mercury I'm sure and cilantro is a heavy metal detox.

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Question: Has anyone here tried Metal Magic, which has cilantro and chlorella? The "fresh" cilantro I can buy here is usually shot through with rotten leaves as well as dirt, and takes forever to clean – I tried consuming at least 1/2 to 1 whole bunch every day for a week, but it was taking up too much time.

Fwiw, I've been suffering from GD more or less steadily for 2 years. My case is biopsy-confirmed, and blood and patch skin tests revealed no significant allergies. My GD manifests differently on different types of skin (assuming it's all the same thing). It started with itchy eyes and eyebrows and has worked it's way down: first rosacia on my face, then itchy neck with redness in the horizontal creases of the neck, then itchy bumps that tend to scab up on my shoulders and back, then bumps on my chest, then the same itchy redness in my armpits, then bumps spreading down my arms, with more of the itchy redness on the insides of my elbows. The armpits and elbows quickly become much more itchy if my arms are in a position that closes those areas off from the air – honestly, I've wondered if it were something fungal; they're better if they stay dry. On drier but tender areas on my arms like my inside wrists, fine, short little scabbed lines will appear in the fine creases of the skin.

Sometimes the itchiness wakes me up in the night. The areas colonized earliest remain bumpy and itchy, but tend to be less so. As an outbreak starts to resolve, I seem to be left with a few new little tiny warts or skin tags that remain very itchy.

Heat and clean hot water don't seem to bother it, but sun and sweat do.

The only things that have really seemed to help are witch hazel, prescription strength cortisone; they usually tame the severity a bit and temporarily ease the itching, but they don't eliminate it. I do use a bunch of other stuff but am not sure they make much difference; and some things docs prescribed seemed to make it worse. I have not tried the light therapy, and my doc has never mentioned it (he is the 2nd derm doc I've seen; the first refused to even look at the rash).

It seems clear the docs have no idea what's really going on; and I'm not convinced this is really a singular disease, or rather some kind of deterioration in the skin's defenses or ecology that makes it vulnerable to more than one type of breakdown or attack.

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