Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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I have just recently been diagnosed with what the pathologist states suggestive of Grover’s . I have been reading a lot on this forum and recently bought cilantro extract. Any advice on how to consume and or after affects?

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@gardeningjunkie

Study on the internet about the 5 Day Extended Patch Test, yes it is a full 5 days unlike the environmental test you have already had. I've had the True Test 5 Day Test twice. The kit is extensive, around $1,500 but Medicare covered it based upon my severe symptoms.
Once tested you will be given an id # so you can go to the ACDS Camp list program on which your doctor will have you registered with all your allergen's. This Camp list is updated every year and it lists products which do not contain your allergen's. It's a good starting place. It's the only reason I've actually found certain make up and grooming products safe for mel. Unfortunately sometimes I react to products which should be safe because they don't contain my allergen's yet I think that's because I wasn't tested for their additives, or I became more reactive over time. So still go slowly with new products.
I understand what you describe as little white bumps which are under the skin. These bumps are just dormant GD, waiting to explode. Mine are confined to my upper and lower back now and not the entire torso (except th sides and breasts which never had GD. If I go outside in the heat and sweat I can feel them get larger, but if I stay cool for a few days they will recede and not turn into a papuale. However mine have been dormant for so long they do not itch or hurt. The pain took over a year to go away even after my outer skin was totally healed. We're simply damaged.

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Thank you! Sounds like our Grovers is very similar. Will ask my docs about the patch test!

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@jtboston

Does anyone GD appear like this?

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Yes but on torso. Sorry you're dealing with this. Great advice on this site. Don't put anything irritating or abrasive on it. Sweat and abrasion together can make it worse. Those little dots need to heal and it can take a long time - the less you touch them the better. Use the gentlest soaps (only if absolutely needed) and creams or none at all. Gently blot dry or let air dry. They just need time to heal. I have also found anti inflammatory diet and supplements (including the cilantro) and a daily anti histamine help. Some people on this site have found oral or topical steroids, antibiotics or anti fungals help.

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@groversgirl

Yes but on torso. Sorry you're dealing with this. Great advice on this site. Don't put anything irritating or abrasive on it. Sweat and abrasion together can make it worse. Those little dots need to heal and it can take a long time - the less you touch them the better. Use the gentlest soaps (only if absolutely needed) and creams or none at all. Gently blot dry or let air dry. They just need time to heal. I have also found anti inflammatory diet and supplements (including the cilantro) and a daily anti histamine help. Some people on this site have found oral or topical steroids, antibiotics or anti fungals help.

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I have it on torso and back as well. Dermatologist said that it would appear I have some folliculitis as well and was not entirely sold on Grovers. He recommended dial anti-bacterial used it twice and everything blew up on me. Horrific and painful.

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That is exactly how Grovers would react - ouch! Sorry to hear it. Maybe you can do a small patch test with antibiotic cream which could possibly help if it's folliculitis and wouldn't hurt oif it's Grovers. You could also patch test with antifungal and steroid creams. Good luck!

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I’m using triamcinolone now and taking doxycycline. Just want it go back to rash vs. what the soap did. Shouldn’t have listened. Seems as if nobody wants to make the call as to what I have but path report says “consistent “ with Grover’s . He also started me on Rinvoq which I am hesitant about. Going to try a couple weeks and see what happens. Miserable.

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@jtboston

I have just recently been diagnosed with what the pathologist states suggestive of Grover’s . I have been reading a lot on this forum and recently bought cilantro extract. Any advice on how to consume and or after affects?

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I have been taking the extract for a couple of years. I just got tired of making the smoothies. Does it work? I'm pretty sure the smoothies worked for me, two years of them. I believe the extract may work, but not as effective as the fresh. I do take the extract even when the G D is in remission. I do believe that it helps limit the out breaks. I mix it in with juice, two droppers instead of one, once a day with no side effects. I will take it until I am convinced that the disease is in full remission, which may never happen. Good luck.

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@nodgabnoj

I have been taking the extract for a couple of years. I just got tired of making the smoothies. Does it work? I'm pretty sure the smoothies worked for me, two years of them. I believe the extract may work, but not as effective as the fresh. I do take the extract even when the G D is in remission. I do believe that it helps limit the out breaks. I mix it in with juice, two droppers instead of one, once a day with no side effects. I will take it until I am convinced that the disease is in full remission, which may never happen. Good luck.

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I’m on day 2 now I will let you know

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@groversgirl

Yes but on torso. Sorry you're dealing with this. Great advice on this site. Don't put anything irritating or abrasive on it. Sweat and abrasion together can make it worse. Those little dots need to heal and it can take a long time - the less you touch them the better. Use the gentlest soaps (only if absolutely needed) and creams or none at all. Gently blot dry or let air dry. They just need time to heal. I have also found anti inflammatory diet and supplements (including the cilantro) and a daily anti histamine help. Some people on this site have found oral or topical steroids, antibiotics or anti fungals help.

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All good advice I follow. I would only add, do your best to keep your skin cool at all times. When you get warm, blood flows to the surface of the skin to cool the body and brings histamines with it, which inflames the skin. Be cool, literally. And good luck.

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