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Anyone have granulomatosis with polyangiitis (GPA) or Wegener's?
Just diagnosed in May, 2017. On a maintenance dose of 12.5 mg. per week of methotrexate Tapering off prednisone since May also-2.5 mg every other day for 1 more week. Was feeling fine until @ two weeks ago with starting the maintenance dose of methotrexate. For two-plus days I have side effects of extreme fatigue and tiredness and some gastrointestinal problems. Also, some insomnia. Is this normal for methotrexate? Could the symptoms be related to the steroid tapering? Thank you for considering this.
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are there specific blood tests that your doctor has suggested that help follow-up your condition. My sister in lay recently underwent a surgery to prevent a trachea from getting stuck due to ANCA affecting them. She was on low dose steroids but now the dose had to be increased despite remission.
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1 ReactionSorry you're not feeling well. Your med doses seem low. I know that might seem to indicate you should be feeling better. But GPA sets a 'new normal' for your body--and it's not like it was before the disease. Take it slow and listen to what your body is telling you.
My experience (7 years) in is to befriend the changes , not fight them. My life is different, but not awful.
Many people think fighting it is good. People fight cancer... which is curable. You can win.
GPA is not curable. There is no win o. The path is to learn to manage what is happening. Diligence and Acceptance keeps you sane and hopeful.
Best of everything to you,
I am taking 20 mg. Methotrexate once week via auto inject. I was advised there are fewer gastro side effects with this method. I also take 5 mg folic acid daily except on the day of injection and 10,000 units vitamin A. I have no side effects. I appreciate it's different for everyone. Good luck.